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September 4th
This morning I woke at 2.30 aching all over, I can barely get down the
stairs ,I know I have fibromyaliga but it will be a miracle to get a
diagnosis, not that I have approached my new doctor. Well
not inasmuch that I actually suggested I have this illness, at least not
in so many words although I consulted him with my aches and pains. Blood
tests were taken and they where satisfactory. I know that it pointless
to pursue this matter, for reasons learnt from past experience I know
that there is this idea amongst doctors here in the UK that you cannot
have fibromyaliga or ME if you have a mental health problem. I have
suggested this possibility to my psychiatrist and a psychologist, neither took any real
notice, I can't even recall any comment if indeed any comment was made.
All I want is a diagnosis one way or the other I am not looking to have a so-called fashionable illnesses, I am not that superficial. I am
hurting and in pain, my life is a misery and its getting worse and all I
want to know is why.
It started just after giving birth to my still born daughter, a
coincidence or a malady borne of the tragedy of this loss or a sickness
the cause of which is unknown. Although I think I may have fybromyaliga I may
of course be wrong, I am not that arrogant, perhaps my physical
suffering is a result of my mental illness and therefore the doctors are
right in their assumption, who knows. Well I don‘t, that’s for sure,
that’s my whole point isn‘t it. Perhaps my ailments are symptoms
of somatization disorder, an illness of psychological origin, the symptoms
of which are very similar. Whatever all I am asking is to know why and
to receive treatment if any exists and to seek out others similarly
afflicted.
It started with an ache in my right hip and than came the headaches and
increases in migraine. Now most of my body is a throbbing ache
particularly my limbs so heavy and stiff in the morning. I am exhausted
and weary and feel just awful. Whatever it is, it’s getting worse and
all I am asking is to know why. The same applies to the social
interaction problems that have further inhibited my life, a life
already greatly incapacitated by OCD. My social ineptness is taking a
turn for the worse along with all the rest of my suffering which
includes an alarming increase in sensitivity to external stimuli. I
consider I have Aspergers syndrome. Note the word consider: again I am
not looking for a diagnosis for yet another fashionable illness, I have
simply given some thought to this possibility. I have considered the
possibility that I have some mild or high functioning autism, which is
how Aspergers syndrome is some times referred, since
reading Donna William’s autobiography,
Nobody Nowhere over ten years
ago when I first started to write my memoir. I had read this book mostly
in order to give me some idea how to go about this task; I had not read
it thinking that I had autism. I knew very little about autism except
for the very stereotypical misconception that autists were very retarded
and withdrawn.
So I genuinely give this possibility great consideration for reasons
which I mentioned in previous entries and which I will tell you in more
detail the very near future. I think there is a connection between these
two conditions, although I know that autism is not an illness as such I
believe there is a relationship between it and OCD. All I am asking from
mental health professionals is to know one way or another. Yes perhaps it’s an obsession
or as my mother would say a bee in my bonnet. If this is the case well
all well and good but if not I need to know for the same reasons already
mentioned in reference to fibromyalgia. I admit to having given credibility in
the past to some rather bizarre notions, at least notions that will seem
to most to be bizarre and incredulous and I will share them with you
another time, doing so here now will only complicate the issue.
Aspergers syndrome answers a lot of questions concerning problems with
social integration and my failures to be wholly a part of society,
problems which I have struggled with for years. if I am wrong........ Well
I am wrong, Whatever. I really wish medical professionals would try to
understand how important it is for sufferers to know why they suffer the
way they do. The most important reason we need a label if you like is so
that we can feel less alone with our suffering and seek out others who
suffer likewise in order to relieve that terrible loneliness. One cannot
do this without a diagnosis with any degree of confidence, at least this
is the case for me. Of course having an official diagnosis will not
alleviate either my fybromyaliga or my Aspergers syndrome, I will not suddenly
be free of pain and a social success but at least I will be able to make
some sense of my suffering and know that there is a reason for it and
that it is not merely some strange idiosyncratic inexplicable part of me
that no one else experiences.
This morning I am irritated I am so sick and tired of being sick and
tired. I struggle down the stairs so stiff and aching my limbs feeling
like lead. I do three sets of tai chi hoping to relieve this awful
feeling along with an appalling stiff neck, a chronic misery of which I
have suffered for over ten years and which will get steadily worse as
time goes on. It is only just after 2am far to early even for me to rise
yet I cannot lie there in bed with my aching body tormented by my OCD
thoughts. Tai chi does little to relieve my misery and in fact I now
have a headache which is migraine but it will be a few hours before I
feel secure that I do indeed have a migraine and not a tension headache
as my medication works only for migraine. I feel so weary and tired of
it all. At 5.45 I get my husband out of bed and take my medication I cannot
cope with this alone, I feel guilty but I need help getting a hot water
bottle for my head and I need company I am so afraid, I always am in
case my medication does not work. It is hard to face such anxieties alone.
There is the usual noise from the factory, believe it or not they’re
working this morning, this morning being Sunday! It is now 5.30 and
there they are as I can see the lights from my window. I am angry, do we
have no rights anymore for any peace and quiet not even on a Sunday in
this mad materialistic world where all that matters it would seem is
making money usually at the detriment of the many for the benefit of the
few. My medication has worked for the migraine but a significant tension headache
remains and I am irritated and more sensitive to this noise more so than
usual due to my headache.
The two main hazards of
psychoanalysis: that it might fail, and that if it succeeds, you'll
never be able to forgive yourself for all those wasted years.
Mignon
McLaughlin
This afternoon I cry, I
just can't help it. I am sitting in our yard trying to enjoy the last
remnants of summer - if enjoy is a word I can really use with any real
meaning. I should perhaps say I am trying to enjoy or at least appear to
be enjoying the last of summer. I cry that I am aging; that my life has
passed me by; I cry that I am so ill that I cannot enjoy what remains of
my life because of my OCD and all the other illnesses; I cry for I fear
the misery which will inevitably be part of my future and I cry for the
loss of my life and my inability now to do anything about it. I cry for
the seemingly hopeless situation of my son. I know I should not cry as
such will bring back a headache or another migraine. Mostly I struggle
to resist the urge to cry but today I cannot.
I am now ashamed to admit to my
crying and all my complaining here. The recent suffering of thousands in
New Orleans and the tragedy in Iraq when a thousand pilgrims died and
the continuing suffering of millions starving in Africa makes me so
ashamed to be so into my own pain. The misery of suffering in the world
compared to mine is overwhelming and I should get some perspective but
no the suffering of others compounds my own and I feel so guilty. Yet in
addition to my own misery I feel so overwhelmed with the suffering of
the world and as I write now I have to fight off more tears yet again as
I cannot easily dismiss the awareness I have concerning the suffering of
all beings. Life is so full of suffering and I wonder how on earth
anyone one copes with such unimaginable circumstances that occur on a
daily basis. My heart goes out to all creatures who suffer. My own
suffering seems great, yet in comparison to the suffering that fills the
world right now it is nothing. I am greatly affected by universal
suffering and it is one of the reasons that I am chronically depressed.
How can I not be depressed, how can one be happy really and truly happy
when others suffer?
September 5th
Another migraine greets me in this morning as soon as I woke - well no
actually that is not quite correct. I had it in my dream, in my dream I
had a severe headache and like reality I was attempting to ascertain if
it was a migraine. The context and the images of my dreams have faded
except for the knowledge that I had a severe headache and yes in my
dream the pain was real just like migraine in waking life. I do not
know if this happens to other people I imagine that it must do. It is
sickeningly depressing to face this again the next day but after
yesterday’s crying episode I am not at all surprised as often a headache
or migraine will follow the next day. So crying is one of so many things
in my life that I cannot do without suffering dreadful consequences.
I go downstairs to fill the kettle for a hot water bottle. Yes I will
wake my husband I know it seems selfish but it is not easy to face so
much alone. A note on the worktop left by my son tells me there is a
slug in the washing up bowl. It has gone now but where has it been? It
is bad enough that it has been in my washing up bowl but it could have
been anywhere: on the worktop, the draining board, in the sink on the
crockery in fact anywhere!
My heart sinks as soon for as my headaches has been alleviated I will
find myself in the throes of an OCD panic. I cannot trust either my
husband or son to clean the bowl, the crockery that was in it and on the
draining board, the work surfaces or sink adequately so I have to do it
and right after a migraine. I really am becoming increasing more
depressed by my situation.
After the headache had subsided, it was most probably a migraine but the
tension headache which accompanied it of course still remains, I have to
face the task at hand. I scrub the bowel with scouring cream, scold it
with boiling water, wipe it with alcohol (I can’t use disinfectant as I
think it might be poisonous and also a hazard to the environment) than I
just let the tap run into the bowl so that it overflows with cold water
for ten twenty minutes or more. This doesn’t relieve the anxiety much at
all and I wipe it out again and scold it again and run the water some
more. As always I feel guilty about running so much water despite the
copious amounts of rain we have here although not the amounts we once
had. I now had to scrub and scold the draining board and sink and all
the crockery and cutlery that was drying on the draining rack and
crockery which was unwashed. The slug must have found its way into the
bowl from somewhere but not knowing the route of the slug I have to wash
the entire worktop, scold and wipe down with more alcohol, the kitchen
smelled like brewery. I did it in a state of relative calm, perhaps I am
resigned to this way of life but feeling sad that just lately I am
finding myself regretting more and more the waste of my life as I become
more depressed that nothing really is going to change for me now at my
age. There seems little left for me to try and it is one thing after
another just lately and I do not know what I can do to stem the tide of
my OCD. So many obsessions are now so obscure and are complex and
difficult for me to explain to you or to anyone else, and without being
able to do this I doubt I will ever be free or even relieved of some of
the more inhibiting obsessions and compulsions.
Today I have to go out, It could have been an enjoyable trip, the
weather again was warm , perhaps rather too warm but nonetheless the
kind of weather that should make you appreciate your life but no not
when you have OCD.
I know it should have been enjoyable if I was not haunted by the fear of
death all the time. Yes maybe I have not made that clear on some
occasions here although in my
memoir I
have - at least I hope so. My OCD is driven and given great momentum for
the most part by my fear of death; the fear of it occurring to not only
myself but to others, but not only people I love and care about but also strangers and also
animals. For instance I worry about germs and have to decontaminate
should I inadvertently pass on contagion to someone else, most of my
religious scrupulosity concerns superstitious anxieties that doing the
wrong thing will cause harm in some way or another to others, even
bringing about the death of another. All but a very few of my obsessions
and compulsions are carried out because of my fears of causing harm to
either a person or an animal. As I have mentioned before my anxieties
about throwing away certain items in the bin such as empty bottle of
cleaning materials or hair colour is due to concern that animals
foraging about in the garbage tip will be harmed by such toxic
substances.
Moreover morbid thoughts haunt me. My life
reminds me of that awful feeling you can get on Sunday when you do not
enjoy this day because the thought of having to return to school or work
or some other unpleasant but duty bound obligation preoccupies your
thoughts and detracts from your enjoyment. For me this is how my life
feels as rather like Sunday I cannot enjoy my life because I know that I
am going to die. These thoughts haunt me and not just now and again
either as such thoughts haunt everyone. No these thoughts have been
there throughout my life over and over again and again throughout the
day. I cannot even begin to tell you how many times each hour, each
minute that such thoughts return, I have never counted them but I can
safely say the fearful thought of death is in one way or another always
in the background following on the wake of another thought whilst giving
rise to yet another thought. Most actions I undertake are driven by my
fears and are the result of such morbid thoughts and ruminations , it is
now so common place that I cannot image what my life would be like for
without this dreadful companionship of morbid misery. So basically I
cannot enjoy my life because of my fear of death. Morbid I know but
these thoughts are OCD thoughts, they are unwanted and intrusive and
they have took away my life and now as I grow older they are of course
becoming more dominant. Today the sun shines but I cannot shake off my
fears, or stop worrying about my son, or stop compiling with all my
obsessions and compulsions, no not once not ever and not just because
the day is warm or its a holiday or its Christmas or because its
inconvenient for someone else or whatever. You would be surprised to
realise how often people expect you to set aside your problems on
certain days, under certain inconvenient circumstances but no sadly this
is not the case. No matter what they never leave me alone.
Today my life is just awful and somehow the sunny warm weather
accentuates this fact, the fact that I am not like others and I will
never will be and I try go about my life as though I am to the best of
my ability but inside I enjoy so little. I know I could, I can feel it
inside as though deep down underneath all the OCD and all the other
misery there is the potential to be happy or least satisfied for some of
the time as of course no one’s life is full of happiness. Most people
suffer in some way or another even if it is not the twenty four seven
torment of OCD.
.
Today to add to the mix, if not suffering from a migraine and the
remains of a tension headache where not enough, my IBS is just awful,
this necessitates frequent use of the toilet a real performance of
covering the seat with tissue, using tissue to lock the door, to flush
the toilet, to open the door. The use of tissue prevents my hand from
coming into contact with areas of the toilet cubicle, such as the lock,
that I would feel where contaminated, as these areas will have been
touched by previous users who will have of course not washed their
hands. Furthermore I have some really crazy obsessions and compulsions
here of which you might be surprised if you are looking at OCD in a
stereotypical fashion. Now when I make “paper nests” (a term I found on a blog made my someone complaining of people with OCD
leaving “paper nests” on the toilet seat and not removing them) on the
seat to avoid becoming contaminated occasionally a piece of paper falls
to the floor. I now panic that I have contaminated the floor with the
toilet seat which has been next to the paper. Here is a good example of
an OCD chain reaction. The paper contaminated by the seat falls to the
floor, the floor is now contaminated even though I pick up the paper and
lush it away; another person enters the toilet, walks on this exact spot
where the paper fell, the contamination is now on her shoes thereafter
everywhere this person walks the contamination is spread. A big and
fearful responsibility and I feel I will be punished in some way by
something awful happening to some one I care about and furthermore I also worry that
the contamination will be
spread .... well practically anywhere and
everywhere! This fear is so strong and sometimes a scenario of disaster
will present in my mind with a particular person, on particular day, time,
circumstance and so on. Sometimes I try to cancel it out by swearing the
type of oaths mentioned in my memoir and
My story
but usually the first fear
is worse and is not migrated or cancelled out. What do I do? I lurk
about waiting until no one else is in the toilet than using tissue I
wash the place were the tissue has fallen the best that I can with a
tissue soaked in water. I cannot use soap as you might think as this
presents another harmful consequence arsing. I fear, as bizarre as this
seems writing it here, that the soap will interact with whatever the
cleaner uses to clean the floor, a chemical reaction of some kind with
toxic fumes and than someone will be harmed. Crazy? Yes I know it is and
when I sit here now writing when I am not affected by it and not in the
throes of this particular OCD misery I gain a more rational perspective.
Yes it is indeed harmful to mix certain cleaning materials but in
the minute amounts here…….. Just writing that here causes some serious
doubts and now once again as I do in such situations the fear comes to
me that even mixing in such minute amounts could cause harm even though
one of the components is simple liquid soap. I am tempted not to include
this idiotic behaviour here for anyone and everyone to read. It's
embarrassing !!!!!!!! Yet when I am there and in the grip of such OCD
thoughts it all seems too real and I cannot ignore these
bizarre thoughts that ignite the compulsions that take away my life and
make it a living hell.
I have awful IBS to day and this means I am in and out of the toilet and
this silly ritual occurs upon several occasions despite the extreme care
that I take not to allow paper to fall on the floor. A similar ritual
occurs if I have the notion that I have accidentally contaminated the seat because the paper has
slipped off onto the floor or into the toilet. This one is worse I guess
as I have to wash the seat in a similar manner as I did the flour and
for similar reasons and that of course presents other
contamination anxieties. It is bad enough wouldn’t you think to have
these contamination fears and having by necessity to need to use public
toilets without all these strange compulsions adding their perverse
momentum. The more usual contamination concerns are of course present
when using a public toilet, the familiar ones such as getting out
without touching the main door as I know a lot of people do not bother
to wash their hands. And than there is the contaminated tap washing
session, which I have mentioned in a previous entry I am sure, where I
wash my hands than rinse the tap and wash my hands again; the logic
behind that I hope is obvious as this is getting a rather lengthy entry
and I do not want to bore you with every infinite detail, particularly
when I have already done so.
Today was quite pleasant day notwithstanding the misery of numerous
trips to the toilet and the stressful rituals that this entails and
other anxieties far too many to mention and now such a part of my life
that I could not begin to recall them all if I tried,. We visited
Belsay Hall,
Castle and Gardens
in Northumberland a property belonging to English heritage. This magnificent manor
house albeit empty was fascinating to walk round. In some ways it was
more interesting to see such a house as this completely empty as it gave
you an idea just how huge these places are. I could not help thinking
how wonderful to have all that space to put our clutter, silly I know
but if you think about it my hoarding and cluttering OCD would not be
such a problem with such a huge amount of space – not the answer I know
and of course not a possibility either.
The property also consisted of a ruined castle and magnificent and
unusual gardens with exotic and rare plants from all over the world. The
garden has been planted in an abandoned quarry from which stone had been
taken to build the castle. Here are some photos which will give you an
idea how pleasant this garden is. It is a real treat to be
somewhere where all you can here are the songs of birds and the rustle
of the wind.
Click on thumb
nail to view larger picture
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Belsey Gardens |
Belsey Gardens |
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Belsay Gardens |
Belsay Pond |
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Belsay Castle |
Belsay Hall |
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September 7th
I am so tired today and so angry rather like the character in the film
Crash who is angry all the time from the moment she wakes until she goes
to bed. Today however my anger is most certainly justified: I have had
the total of only two hours of sleep. The factory in our village is now
working twenty-four hours each day and even on Sunday morning. Now do
not be mistaken, this is not a country village in the idyllic sense of
the word with quiet country lanes, thatched cottages, with birds singing
along with other peaceful and natural sounds of the country and little
traffic that my be conjured up in the mind, particularly by people from
elsewhere in the world. No it most certainly is far from idyllic or
peaceful. A main A road cuts right thought the village but more
importantly there is this factory, it is not a small local business by
any means it employs two hundred plus people and it is now making a
noise all day, there is no respite and the noise last night was
shocking, loud thumping and than the constant dome - well more a whining
noise - of machinery throughout the entire night. At night they appear
to make more noise than during the day! I can’t say I notice it much in
the daytime except if I open a window. I know I am very highly sensitive
to noise, both low and high frequency but more particularly low
frequency which I can neither get used to nor block out as is the case
with high frequency noise in some circumstances such as noise at the
cinema or similar - I can go to the cinema on most occasions although
recently this has not been easy as either they are turning up the volume
or my sensitivity is becoming more acute.
Moreover concerning
the factory I have no recourse to action whatsoever other than complain
to the manager, a very pleasant man who has made some considerable
effort
to stop the low frequency hum emanating from a machine that is operating
twenty four seven. Nonetheless he will or can do nothing about the
noise which carries on all night. The local authority responsible for
environmental noise pollution will do nothing, the sound is apparently
within the criteria set by the world health organisation WHO and is
considered not to be a health hazard. This rather depends on your
perspective, it is most certainly psychologically damaging and it has
done much to aid my deterioration since we moved here. I wonder if
whoever sets these rules would like to sleep in my bedroom at night. The
WHO Criteria concerning noise nuisance is in any case measured in
decibels and you cannot measure low frequency noise in decibels. Volume
has nothing to do with the torture inflicted by low frequency noise,
noise that is emanated as a monotonous sound like one continuous note of
music. However at the time of writing the low frequency noise seems to
not the problem if once was, if I dare to tempt fate by saying this. In
any case it would be drowned out by the noise of night time machinery.
Last night I had to sleep on the settee downstairs where the sound is
less loud. I am really at my wits end. I lay there tormented by awful
OCD intrusive thoughts and such thoughts add their momentum to my
inability to sleep.
The only course of action open to me is moving. The thought of moving is
unsettling neither I, my son or husband are really up to the enormous
task of moving house, a costly and traumatic business where few have any
sense of honesty or decency and the law is on the side once again of
those who exploit others. Here in the UK you can be right at the point of signing the contract and be gazumped and
left paying the legal fees for the legal work completed and thereafter
forced to start all over.
I do feel so trapped now by my circumstances and rather wished that we
had remained in our old home in the south east. It seems as though since
moving nothing has gone right and I sometimes feel as though it never
will. It was a thoroughly bad idea and one that was undertaken in a kind
of delusional state I can’t really think of a better word to describe
it. None of us are really up to such a huge transition as changes in
routine, even tiny changes really distress and confuse all of us. Life
here is difficult and I still feel so alien and out of place as though
this is not my home nor ever will be.
September 8th
Again to day I am so angry, what is the matter with society right now,
it is as though there is no understanding for the situation of others.
No empathy. This morning we arrive at our local supermarket, which has
been undergoing some radical refurbishment or rather more an entire
reconstruction to the extent of adding a second story. The merchandise
has been moved from one place to another without any warning or
indication as to where you might find what you are looking for after it
has been moved. No you’re left to wander about aimlessly becoming more
and more frustrated. There are few people to ask, it is a huge store and
if you go to the wrong place it can take a considerable time to get to
the other end of the store. Okay perhaps if you are able bodied it is no
big deal but if you are not or you just want to get your shopping over
with as quickly as possible because you are anxious well........This of course happens from time
to time even when the shop is not undergoing such drastic changes. For
me and many others who find if difficult to cope with shopping for
various reasons, such as panic disorder, agoraphobia and for me the
inability to cope with things not being the way I expect them, any change
in routine it is annoying and stressful and adds to the OCD type
problems which present when I am shopping.
I appear so angry nowadays,
most times I do my best to subdue it, suppressing it quite well upon
most occasions but today my anger wells up inside. It appears to me that
no one has any consideration or common sense any more and furthermore I
do trust anyone to make sure that the food I buy is fit to eat. Frozen
food is a particular area of anxiety. This is more so when I know that
it has been moved from one freezer to another or if a freezer has broken
down as was the case some weeks ago. I still cannot buy the frozen food
from this shop that was moved from a fridge that was broken down and
neither am I happy to buy the frozen food today which has been moved to
a different location in the store and has been put into a different
freezer. I really do not trust the staff not to allow the food to thaw
while they wander off somewhere with the typical laid-back attitude
which seems to me noticeable of late. Or perhaps it just seems that way
to me with my exaggerated OCD perception. I have a dreadful anxiety born
of OCD intrusive thinking that food has been refrozen and as a result is
potentially fatally hazardous. I do of course recognise that my idea of
refrozen is not the same as most others peoples’ ; I get anxious after
about ten minutes if I cannot get my food straight into the freezer
after removing it from the freezer in the shop so if there are any
delays getting it home I dump it too fearful of the possible
consequences to use it. I am now at the stage when I would really not
use frozen food at all.
A further irritation today to adds to my mounting anxieties and
regrettably my anger: The toilets are no longer available downstairs.,
“New toilets may be accessed upstairs but only by using the lift” the
sales assistant tells me as if it is not a problem. “I cannot use the
lift and I need to go to the toilet, the whole situation is disgusting
and inconsiderate” I reply with obvious anger and walk off vowing never
to return to this store. It is of course quite understandable that the
fear of people with OCD is generally not widely known, except perhaps for
contamination obsessions and compulsion, as the symptoms of OCD are
diverse and vary from person to person. It would be unreasonable for me
to expect this assistant and whoever is responsible for this
unsatisfactory situation to understand that I do not like to use lifts
as I fear that I will become trapped, the lift might crash to the ground
or it might get stuck and if I get a headaches or migraine I won’t cope
. Yes these are among the fears that prevent me from using the lift and
in general I would not expect people to really understand such
anxieties. However, claustrophobia a fear of confined spaces is a common
phobia, a phobia of which most people would be aware - well you would think so wouldn't you.
So even if they did not understand or were aware of OCD they should at
least be aware of claustrophobia. You would think that most
people had some inking, some vague idea that there will be certain
customers who will not be able to use the lift and will therefore not be
able to access the toilet. Yet this seems not to have occurred to
anyone! Amazing! Most people live within there own cocoon of existence
seeming totally unaware of the potential difficulties of others.
Moreover surely the fact that the only exit from the upper story is by
lift is a health and safety violation. Should there be a fire and
the location of stairs is unavailable....... well the out come is
unthinkable. There was of course obviously a
stair case – at least I hope so but I did not see one anywhere - but not
apparently for use by the general public at least not at this time. Yes
the situation may only be temporary - least I hope so, if it is not I
will not shop there. I can’t , it’s as simple as that! But even if it is
only temporary it is not only inconvenient but could be a major problem
for some people and made me quite ill due to my medical problems. I was
halfway through my shopping and had to carry on. I did feel rather
guilty about losing my temper as it was not the staff member’s fault and
perhaps if I had not
lost my cool I may have been allowed too use the
stairs , but hey I am only human and do so get fed up with the lack of
awareness for the situation that I and so many others are in. The lack
of public awareness concerning mental health problems and the impact
such has upon the lives of these who suffer from them infuriates me.
However perhaps something good might come from my outburst and it will
make them think that access by lift only is less than ideal, but sadly
somehow I doubt it as there is so much apathy nowadays. I know that we
OCD sufferers have this over responsibility thing but it appears to me
that most people have gone completely in the other direction thinking
that nothing is their responsibility.
September 9th
It is preoccupation with possessions,
more than anything else,
that prevents us from living freely and nobly.
Bertrand Russell
My old office chair sits out in the passage on the landing right outside
my bedroom. I cannot use it, the seat slopes to the back and it makes my
back ache. Some months ago we bought a new one, the one I am sitting in
right now to replace it, yet the old chair is still here. It is of no
use whatsoever and was in my bedroom for want of a better place to put
it but it takes up space and I want to throw it out, but no it has sat
there now for two days just getting in the way. My husband fiddled about
with it yesterday trying to fix it. He knows he cannot but he tried
anyway reluctant to take it down the dump. He questions why it has been
thrown out onto the landing even though he knows of course that we
bought another one to replace it way back in June!. Hoarding and
cluttering the general all round inability to throw much of anything
away except food and packaging and other paper waste such as junk mail
and so on is becoming a major problem. It is not only me with my OCD who
is finding this an increasing predicament but neither my son nor my
husband can throw anything away with any ease. My son seems not to want
to throw away empty toiletry containers or toiletries he does not use.
His room is really cluttered with all sorts of stuff, books, videos,
CDs, ornaments, plants, his artwork and just stuff, stuff and more stuff
not easy to define and the living space is becoming gradually reduced.
He complains of not having room to do his artwork but cannot get rid of
his clutter. The same goes for my husband and I.
What is the concern here about disposing of useless items that causes
this
problem ;what is the thinking behind the fear and the anxiety along with
that sick empty feeling one gets at the mere thought of disposing of
ones stuff? For me personally it is not easy to define in the same way
as it is to tell you why I feel the compulsion to wash my hands after
touching for instance a door handle. I can tell you that I wash my hands
because I fear contamination by germs and if I do not wash my hands I
become anxious fearing that I will spread this contamination to others
and cause them harm. No it is not easy to tell you why I have this
anxiety about throwing things away, things that are of no use, take up
space, have no sentimental value and are inhibiting my life more and
more. All I can tell you is that it makes me anxious. Yet unlike the
above compulsive washing example I could not tell you in so many words
the nature of this anxiety. The nearest I can come to define this
feeling is to describe it as rather like a feeling of loss, a heaviness
of heart, a sinking feeling the kind you get when you have lost
something of great value but tinged with an anxiety difficult to clearly
define. Yes, a feeling of loss most certainly plays a significant part
here and even just the thought of throwing away certain items brings
about such feelings.
Giving things names, such as my computers, makes these feelings worse.
Since becoming interested in computers, or as my son says since becoming
addicted to computers, I have had three, they all have names. The first
one nearly nine years old is not really functioning at all now - well
the computer itself still works but the monitor is broken but there it
sits still on it’s desk in our bedroom taking up space along with its
printer which without the computer is also useless as it is incompatible
with the newer computers. My second computer has never really functioned
that well but it is only three years old and does work with most of the
current software and is compatible with most up-to-date peripherals and
broad band and so on and most normal people would have sold it to help
pay for the new one but no I can’t part with any one of them.
On the top of the landing sits a chest of drawers, it takes up space and
makes the place feel cluttered and cramped, which of course it is. Our
home is small, three adults live in it, adults who need space because of
their hobbies, space that is becoming less available due to all our
clutter, This chest of draws is a real pain in....... well you know
where. Yet I can’t get rid of it, I am simply too anxious merely to dump
it. It is mind you a good piece of furniture despite the fact that it
came flat packed and this of course makes it even more difficult to
throw away. But it is more than that, even though I don’t like it and
regret buying it I cannot dispose of it . It is like throwing part of me
away, or even a part of someone else. You know writing all this here
makes me actually realise it feels as though I would be causing harm as
though to a living being. Crazy or what! I am really not sure I should
actually leave that last sentence in as I will worry that people will
think I am crazy. A chest of drawers, bizarre! More understandable with the
computers or with your car, Cars often become items of great affection
which many people personify and which they feel sadness when the time
arrives to part with it.
I can’t have the chest of drawers in our bedroom, there is simply no
room for it due to all the clutter of our collections. Books, soft toys,
mostly sheep, plants crystals, and other ornamental nick knacks along
with art materials and my artwork. None of my artwork is thrown away,
not even the failures or the quick sketches which some times are barely
a scribble. No even the ones that have gone damp or discoloured, all are
stuffed under the bed. There are four shelves on the wall and a bookcase
full of soft toys, books are shoved in the wardrobe so I do not have
room for a lot of cloths. There are ten huge sheep and various other
critters on the bed and several gremlins from the days when I was
obsessed with the film of that name. In fact I have never thrown a
stuffed toy away. There are dozens of them in the attic and in cupboards
some belonging to my son when he was child. I have the first soft toy we
bought him when he was a baby. There are still more stuffed sheep in the
sitting room lined along the back of the settee, on chairs, the floor ,
everywhere.
We all seem to collect things and have phases of different types of
collections. This may be the result of what I believe to be our autistic
traits. I have said before my son has Asperger syndrome. I believe I may
have this also co morbid with my OCD and I also believe my husband to be
somewhere on the autistic spectrum. I mentioned this before in some
detail and will write about it at length soon. There are those who
believe there is a relationship between OCD and autism and I believe
that as a sufferer of OCD you can either have traits of autism or have
it co morbid with your OCD as you can anything else. Anyway I digress.
Back to my hoarding and cluttering. The sitting room is crammed with
more books and evidence of the various collections we have been
preoccupied with over the years including enough crystals to start our
own geology museum :-) just kidding - well I think so. There are also
plants and a general clutter of useless dust collecting ornaments that
serve no aesthetic purpose and kind of resemble a bric-a-brac shop.
There is nothing of any real monetary value just clutter borne of a
compulsion to collect useless items a typical syndrome of OCD hoarding
and cluttering. Yesterday we were tempted to buy a ceramic bowel. We do
not need it was just pretty it would however not be appreciated lost as
it where in a sea of clutter. There are dozens of CDs hardly ever used
since my sensitively to noise has become increasingly worse and the
constant exposure to music wherever we go nowadays has put me off
playing my own music. There are piles of
paper in cupboards, receipts, pamphlets, letters and such like. They are
never looked at, never needed, still they remain pushed into the
cupboards. Even in the vestibule there are all kinds of clutter we seem unable to
part with although we no longer use or need it.
There is of course no squalor or dirt and decaying food as you may have
seen in recent TV programmes concerning severe case of OCD hoarding and
cluttering, because of my contamination OCD all food is removed and my
house is OCD clean, it is just cluttered.
September 12th
People are not disturbed
by things, but by the view they take of them.
Epictetus
Usually I refrain, sometimes with considerably
difficulty, to make personal comments about world situations, politics
and the like or upon matters which may give offence or cause contention.
However to day I will break this rule and have a real good moan about
taxation here in the UK. I cannot imagine there will be anyone out there
who will feel offended or upset by my complaining about the grossly
unfair and over-the-top tax system, especially when it comes to patrol
and particularly with regard to the present situation concerning a
shortage of patrol due to the problems in the USA with hurricane
Katrina. Patrol here has just risen to £1 per gallon, it has risen by 20
percent in a short space of time and patrol stations here where quick to
reflect this rise almost immediately as if capitalising upon this
dreadful tragedy. However such a raise in price
would not be quite so marked if it were not for the fact that patrol
here in the UK is hugely expensive anyway far far more so than elsewhere
and in particular in the USA where compared to the UK patrol is cheap.
Here in the UK there is I believe an 80% tax on
petrol - correct me by all means if I wrong. Whatever the exact figure,
the taxation here is enormous on petrol.
Taxation of course is necessary, a country cannot function without it,
although what our country spends it on of course is quite another matter
and one that I will not discuss here as such is too controversial.
Nonetheless the extremes to which taxation has taken since I first paid
tax when I began to work back in the sixties is truly overwhelming and
causes hardship and is grossly unfair. In those days I was taxed from my
wages, and that was it and so it was for most people except the very
wealthy. Furthermore it was a relatively small amount, at least in
comparison to that of today and I did not complain although most of my
colleagues did. Now we are taxed (value added tax VAT, 17.5 %) on
everything that we purchase from stores (except food), mail order, even
medical supplies unless you’re disabled. Also included is work
undertaken, such as building work, plumbing and the like, solicitors,
surveyors, you name it anything where money changes hands you have to
pay VAT and more shocking here in the UK you pay VAT for a funeral !
There is also a capital gains tax, not that this effects me, nonetheless
without going into very boring detail this tax can be rather over the
top. A neighbour some years ago sold a house which she had inherited, as
this was her second house she had to pay capital gains tax, an enormous
amount of between 20 and 40%. and this was on top of death duties. And
if that was not enough there is a road tax, you pay a set amount
annually per vehicle according to it's type and of course there is the
council tax that each householder pays according to the value of his or
her property and I am sure there are many other hidden taxes; it is my
understanding that the UK is the most taxed nation in the world.
Any way what as all this got to do with OCD. Well it would be easier to
ask, what has any issue in life not got to do with OCD? Virtually
nothing in my life. Things such as this effect OCDers as much as it do
anyone else in fact more so perhaps. Besides I just needed to complain
as do we all do from time to time. Concerning the patrol tax in
connection with the current situation, this has quite a profound effect
on me not simply due to a very limited income but to the possibility of
patrol shortages and being stranded in a rather remote
village - at least remote if you cannot travel by public transport
because of health issues. Yes there is a main road running right through
the village but not much use to you if have no patrol and cannot use the
bus! There are no shops except the news agents who sells only the very
basics. My GP, dentist, and optician are all at least three miles away.
So yes I am stressed, without patrol my life will be drastically changed
for the worse. Here in the UK right now there is a possible threat to
petrol supplies as the result of demonstrations at oil refineries in an
attempt to persuade the government to offset the price increase by
reducing the tax on petrol, a futile endeavour I know but something
needs to be done and I agree with the protest. However the result of
this protest is the fear that there will be a blockade and therefore
petrol shortages. There is no blockade planned, just protests, but
seemingly people panic rather like those of us with an anxiety disorders
and overreact and panic buy petrol and consequently there is a shortage.
But hey am I panicking too soon? Yes of course and today I feel less
stressed than yesterday as a more rational perspective takes over or is
it that for now the threat has receded after our spate of panic buying
and we have a tank of patrol. Not helpful I know but like everyone else
I am not keen on being without petrol in an emergency particularly as I
am unable to use public transport. Yes I may be taking it all out of
proportion and the situation is only temporary but it does give me an
idea what my life would be like if there were severe shortages of petrol
and yes it has made me feel more insecure. Also sometimes I feel now
that there are just so many things that set me off into a state of
panicked anxiety, it is getting more and more difficult to find any
moment of peace at any time to any where.
Again I feel very ashamed
complaining of such an insignificant problem when there are so many much
far serious problems which effect the world and the effects of this
disaster concerning the rise in price of petrol are of course
inconsequential compared to the suffering that has occurred to the
people of New Orleans and which occurs on a daily basis all over the
world. Here in the UK we can depend on many things and often take them
for granted such as medicine, electricity, and clean water - there will be a water supply of
fresh clean water whenever I turn on the tap, I will not have to walk miles each day and carry home
water barely fit to drink as is the case in many African countries.
To get
perspective concerning petrol and owning a car here in the west,
consider that in china only 1 person in 75,000 owns a car. Nonetheless
such realisations do little to mitigate such anxieties although it helps
to gain some perspective from time to time.
September 14th.
Have nothing in your
houses that you do not know to be useful or believe to be beautiful.
William Morris
People become attached to
their burdens sometimes more than the burdens are attached to them.
George Bernard Shaw
Over the last two or three days we have been decorating the sitting
room, an enormous task for me with my OCD for a number of reasons, such
as contamination fears concerning paint which of course is a toxic
substance. However anxieties over paint are not as severe as they once
were although if paint gets on my hands I still have to get as much off
as I can, resorting to scrubbing with a Brillo pad! No I can’t use
turpentine as that is toxic and the smell on your hands is difficult to
get rid off and this of course means that particles of the substance
remain. Once you know that smells are caused by particles of the
substance in the air your whole attitude to smells of course changes as
you feel more exposed to contamination. Nonetheless
notwithstanding these problems handling paint is not quite the trauma it
once was. But decorating continues to be an endurance test for me with
my OCD. The accumulation of clutter which of course all needs moving
adds stress and makes the whole endeavour far more exhausting than it
would otherwise be and rather spoils the after effect of a newly
decorated room, for as soon as the clutter is returned to its place it
seems as though nothing much has changed and you hardy notice the new
colour paint or the rearranged furniture.
If you recall from a previous entry my husband, son and I all have
quite significant difficulty disposing of our possessions and cling to
things that are no linger used or really wanted for any reason. Moreover
we seem to collect all manner of things to extreme levels seeming not
knowing when it is appropriate to stop despite the fact that our living
space is drastically reduced and our ability to get on with our lives
becomes thwarted overwhelmed as we are with the things we buy, collect and
the things we never throw away, which is virtually nothing except waste
food and such paper items as junk mail. And sadly we even hang on to
paper waste of no particular use for some considerable time, if not
indefinitely, such as old letters, receipts and yes I suppose some junk
mail in certain instances and other bits of paper such as scribbled
reminders and so on . I have a letter from Sussex council it is over five
years old now and is of no relevance at all, the issue having been
resolved and in any case we now live three hundred miles away! I noticed
this letter the other day, although it is of no use it somehow got
brought here when we moved along with all our other clutter. Even moving
house did not compel us to part with our stuff, it was all simply packed
into crates with no sorting whatsoever . We planned to sort out our
things when we arrived but this never happened, things just got shoved
into cupboards, stacked on shelves, under the bed and so on. Has this letter
been thrown away? I have no idea, I do not recall doing so. Silly I know
but as I have said before, although sometimes the reason for hanging on
to our stuff is obscure even to myself it is nonetheless no easy matter
to ignore.
You know I really wish people would stop inundating you with unsolicited
advertising, sometime you have no idea what is relevant, what you have
requested and what has been forced on you. Sometime it is this anxiety
that makes me hang on to even junk mail from time to time even though I
know on a more rational level that I have not requested it and it is of
no use. Perhaps it is the fear of making a mistake and throwing away
some papers that I might need or have requested, such as communications
from our bank which in fact did happen on one occasion.
Concerning the petrol anxiety,
well nothing much of any thing came of it, the protest was not well
supported and there was no disruption to the supply and all that panic -
no not just mine but from the public in general - was all for nothing.
Odd how at the time your imagination runs riot with a variety of
disastrous scenarios that really scare you and which seem all to real
posing a threat to your well being. And than in retrospect when
the situation has resolved and the delusional or exaggerated thinking
has been bought into a more logical rational perspective you wonder why
you allowed yourself to be influenced yet again by the irrational
torment of OCD. I guess that is the nature of the beast, the tormenting
OCD monster only too ready to exploit any situation no matter how
insignificant or how illogical in order to drive you crazy and fill you
with anxiety. It is interesting to note that this anxiety was one
that was shared by many. Yes maybe for altogether different reasons and
most of these reasons would not have the neurotic component as mine
perhaps, but nonetheless the anxiety and behaviour of the public who
queued for ages in long queues and even argued with one another just
goes to show you how irrational and insecure everyone is at times.
September 15th.
True friendship comes
when silence between two people is comfortable.
Dave Tyson Gentry
I feel rather more hopeful today concerning my son who has somehow
despite his social integration difficulties at least managed to go along
to a meeting of fellow sufferers of Aspergers syndrome and high
functioning autism for a social evening. Yes seems rather incongruous
doesn't it, but like all of us who are different from the normal, although I
much prefer the term neurotypicals NTs as normal people are referred in
autistic circles, such difficulties are less apparent when one is with
people who suffer in similar ways and where one may feel more
comfortable with ones differences. The meeting arranged by the autistic
society was convened in order to discuss possible monthly get-to-gethers
of high functioning autists and Aspergers sufferers in which they can go out and about to
pubs, the cinema and so on. I hope my son and indeed the others who came
that evening will all gain from this endeavour and the loneliness of
social isolation will be relieved. You know that even if you do not have
the ability to converse with others for whatever reason it does not mean
that you wish to be alone. Such conditions as autism, Aspergers syndrome, social
phobia, avoidant personality disorder or whatever the reasons for your
social awkwardness does not mean that you wish to be by yourself all the
time. Sometimes just being in the presence of others as long as they
understand the problems and everyone feels comfortable is often enough
to relieve such feelings of loneliness even if no one speaks one word.
Often I get the feeling that a lot of people talk simply for the sake of
it, because it is expected and there are feelings of awkwardness between
people if there is not a constant barrage of conversation.
September 16th
Frugality is one of the
most beautiful and joyful words in the English language, and yet one
that we are culturally cut off from understanding and enjoying. The
consumption society has made us feel that happiness lies in having
things, and has failed to teach us the happiness of not having things.
Elise Boulding
I like to walk about among the beautiful things that adorn the world;
but private wealth I should decline, or any sort of personal
possessions, because they would take away my liberty.
George Santayana,
Well the decorating is almost finished and the confusion contained. It
has been exhausting not to mention stressful and not just the actual
process of painting the walls, woodwork and so and all the contamination
anxieties that this involves. No the chaos of our clutter added greatly
to this irksome task and the good natured bickering - at least I hope so
- as to who should take this opportunity to dispose of some of his or
her clutter added rather to the confusion and caused some delay. Now the
thing is that in my experience living with two other hoarders and
clutters, who do not necessarily have OCD although my son most certainly
has a mild form, is that each one of us sees the others clutter as
well........ clutter, rubbish, useless, and a source of chaos and
confusion inhibiting normal functions and generally overwhelming while
his or own personal clutter is simply a collection, is aesthetic and
essential and for whatever reasons he or she needs to keep it. So here
we have the situation where we are each trying to persuade the other to declutter or to at least put something away and not have everything out
so the house looks like a flee market or a bric-a-brac store or even a
charity shop!
After decorating I simply could not stand the thought of putting all our
clutter back where it was before as the new decor would barely be
noticed and quite frankly the feeling of space, all that space was lovely
and something rarely experienced in our house. It has to be said,
although I can’t part with my stuff for reasons already mentioned in
early entries, it is very depressing and confining, rather like ones
cluttered mind it adds to the feelings of anxiety and frustration that
we are all experiencing each for his or her own reasons. And besides it
seemed a good opportunity to try and get some order from the chaos even
if we actually throw very little away and at least have the sitting room
look like a more normal sitting room. Sometimes if you have a problem
with hoarding and cluttering it can help to move things around and try
to confine them to restricted areas in some semblance of order. This
works if your hoarding has not reached such severe levels that you have
no space at all, your stairs are not crammed with stuff, every room and
cupboard even your bath and so on is not jammed packed and all you have
are paths leading round the house as was the case with a couple of
people I have known. If this is not the case than you can feel much
relief by moving things around and finding places to cram them and try
to have at least one room clutter free or relatively clutter free.
Of course ones man’s clutter and rubbish is another man’s or woman's
personal and precious collection. So some understanding and tolerance is
required. The idea was, at least concerning the abundant collection of
ornaments, (crystals, plants. soft toys, mostly sheep, books and various
curiosities including bits of old abbeys and other ruins, rocks
collected from the beach and other unusual items which to many would
seems odd to say the least), is to try to have only a few things out at
one time and than rotate them every few months or so.
My husband really has trouble with this and you can feel the tension and
anxiety of which he appears to have little insight into, reasoning with
him does little to help as indeed is the case for myself when my son
tries to get me to dump my nine years old computer which I cannot use
because the monitor has broken. “It’s a machine he says“ trying to
conceal his amusement, “it’s not sentient. But as I have I explained
before the feelings I get if I try to throw away such an item are as
though it is a living being. Crazy! Yes deep down I know this yet there
is this conflict, myself, my psyche is divided and in my heart I cannot
see it this way and such items will probably never be thrown away while
I am still alive. It would be so librating to get rid of some of my
things but there is this block, this ache in my heart and I just can‘t
despite the fact that sometimes all our clutter drives me round the bend
- well further round the bend :-) . So naturally I understand both my
son and husband and it is with some unease that we all make this attempt
and as I have said before nothing really gets thrown away. And as long
as it does not leave the house I am okay albeit with some ill ease as I
attempt to store things away. We have tried this strategy before and it
has been okay for a time although we never ever get it quite right and
there remains far more clutter than would be the case in most homes. My
husband’s difficulty coping with this soon comes to the fore and it is
not long until he is surreptitiously sneaking things back when he thinks
no one will notice. Moreover it is getting more difficult to find places
to store our stuff, the attic is quite full of things I cannot even
recall and there is not a lot of space up there anyway because of the
design and low roof. All our cupboards are crammed and the vestibule is
full. It looks just awful from the road as you can see all the clutter
through the window, I am surprised that one has complained as people
tend to do.
When we first moved in we had a neighbour who was a serious hoarder and
clutterer, she would not allow anyone into the house to do repairs, her
house had been flooded for some reason or another, and she could not get
it fixed and dare not use her electricity. She could not open the back
door and had to take her rubbish, which I image was food only as nothing
much of anything else was thrown away, right along the street past the
entire block of terraced houses to access her yard and her dust bin. Her
home seethed with a profusion of clutter, newspapers and personal
papers, letters, receipts and so on piled high dating back decades. I
felt sorry for this lady I could imagine her pain, she lived alone and
often when sufferers of hoarding and cluttering OCD live alone this
problem becomes very severe indeed. Although we are no where near this
severely affected our clutter does make life difficult and furthermore,
do we stop adding to it? No way. My son groaned on Tuesday night when I returned
home with yet another plant, I simply could not resist. Yes I know it
will add to our problems, I recalled having agreed amongst each other to
buy no more plants, I know I will be upset if it dies and as it grows
bigger I know that of course it will take up more space and add to the
overcrowding. Why I bought it I don’t really know and again it is so
difficult to explain my reasoning as such seems obscure even to myself.
Perhaps it’s that constant drive to be free of depression, to give
myself a treat, a kind of quick fix an attempt perhaps to improve my
environment in the hopes that I will be more contented, less stressed,
less unhappy. It was cheap, just a couple of pounds, no big deal so
against my better judgment I bought it.
It is as if you just cannot help doing something even though you know
that in the end it will be to your detriment; you know that buying
something you like will not make you any happier and you are mostly
doing so to try and make yourself feel better even though you know from
past experienced that it never does. And in the end no matter what you
do however significant, or in this case seemingly insignificant, you
seem never to lift that awful nagging depression and are instead making
your situation worse.
For now the sitting room is clearer and with some manipulation we
managed to put away some of our clutter. I did make some real progress
sorting my cloths and separating cloths I have not worn for years and
never will wear again having put on far too much weight. It was no easy
matter mind you. Although the issue with such items as clothing is not
the same as with the computer or stuffed toys and so on there is still
this sense of loss and of making a mistake and various "what if "reasons
why I should hang on to them ranging from the sublime to the ridiculous.
The most ridiculous concerning the possibility of some disaster or
another occurring and the need for warm clothing and none being available.
Silly I know and this consideration is mild but there nonetheless.
So even parting with cloths is no easy matter. In order to do so I
persuaded the clinging part of my psyche that these cloths will help the
local charity shop to raise money, such reasoning off sets my anxiety
rather but will of course cause intensify my contamination rituals:
although the cloths are clean I will need to wash them carefully and it
will be very difficult for me to convince myself that they are clean
enough to give to others . It will not be easy to persuade myself
that by giving these cloths way I am not contaminating anyone despite
washing them cloths meticulously. So now there they are all in black
sacks waiting to be washed, so at this juncture I cannot as yet pat
myself on the back and say that I have disposed of these unwanted
cloths. We did mange to throw away some empty boxes and paper bags and
other bits of paper clutter, and some really tatty curtains. Nearly a
sack full so it’s some progress and allowed us some place to store
things and made feel less overwhelmed in the sitting room.
I do not know how others with this problem feel but if you can give your
stuff away to friends, family, neighbours and anyone you know it is less
of a problem and you feel less guilty - yes guilt is another emotion
which plays a part here. It is indeed difficult to throw away something
as you feel extravagant and wasteful but yet again there are yet other
reasons and motivations at work here and which are not easy to define in
such an obvious way. We have a gothic style mirror which we know the
daughter of a friend of ours will just love and although it will be
difficult to part with it, it will not be as bad knowing that it will be
appreciated and just knowing who has it also seems to mitigate these
anxieties. I know this all seems so superficial and considering the
philosophical, deep and meaningful preoccupations that often absorb my
thinking and occupy my reading this all seems so incongruous but again
it is another case of the divided self, a phenomenon of most mental
illness and OCD is no exception, at least to some extent.
September 19th
There are very few
monsters who warrant the fear we have of them.
Andre Gide
Fear makes the wolf
bigger than he is.
German Proverb
Well I really must publish the above entries I have not done so since
September 9th although as usual I have made entries in my journal. If I
do not publish these entries they will seem rather out of date but I
guess that is not that important and as this is the only way I can keep
this blog going than it is better than nothing. But there is always
something every time I want to publish my entries, something which
worries me something not quite right and the more I read over them the
more faults and consequence anxieties arise. There are anxieties of
which I am simply just too afraid to tell of right now which often cause
some considerable delay. This is how OCD ruins your life no matter what
you try to do it tries to gain a foothold and gnaw away at whatever it
is you attempt eroding your capacity to accomplish anything if you allow
it. And of course this is not just here with my blog or my website but
in every facet of my life. Sometimes it is difficult for me to explain
to you what it is like, that ever present anxiety over one thing or
another along with feelings of fear. It is difficult to find the right
words to explain quite how it feels. Yes as I type this right now I am
afraid assailed with doubts and often such fears return with more
intensity when I write as I relate my experiences both past and present
and try to tell you what my life is like and how I feel.
Everyone, in fact every sentient creature experiences fear . There maybe
many people who rarely have this experience. There may even be the
rarity of a person who never has ever experienced fear although I am not
aware of such a person or if it is indeed possible not to feel this
emotion, which in normal circumstances protects us from danger in
appropriate situations. But I am sure I can safely say that most of us
at one time or another have experienced the emotion of fear and
therefore you have some idea what it feels like. You will of course know
only too well what fear is like if you suffer from OCD or other anxiety
disorder or any other mental health problem such as schizophrenia and
similar conditions where terrifying hallucinations bring about profound
fear. There was no doubt in my mind that the girl on the ward when I was
in hospital back in the early eighties was very familiar with this
emotion, she was clearly terrified each morning as she saw beetles
crawling up the wall of her room. This hallucination occurred every
single day. Her hysterical screaming pierced the quiet of each and every
morning, before the sun had risen she began screaming and screaming.
Fear and anxiety are part and parcel of all mental illness but these
feelings are difficult to describe except by reference to your own
experience; I can never clearly tell you what it feels like to have some
degree of anxiety every day and to be overwhelmed by crushing and
incapacitating fear for all manner of every day occurrences distorted by
dreadful imaginings. But if you have felt fear than you will have some
idea what if feels like.
What is the difference between fear and anxiety? Quite honesty in my
experience very little and during extreme attacks of anxiety the
feelings are more or less the same and I often use fear and anxiety
synonymously in certain situations.
Webster's Dictionary gives the follow definitions.
Anxiety: Pain or uneasiness of mind respecting some event ;future
or uncertain; concern; solicitude; care; disquietude.
Fear: A painful emotion caused by an expectation of evil or of
impending danger; anxiety; solicitude; dread
As I have already said I tend to think that these emotions are more or
less similar in certain circumstances. Fear being perhaps the more
severe, disabling and acute emotion which can occur without warning and
my be fleeting and gone as soon as the danger passes or the perceived
danger has passed and the brain has had time to determine the situation.
For instance a car backfires, you jump with a start, your heart pounds,
you have that adrenalin rush, your heart jumps into your month and your
stomach constricts but at soon as you know the source of you fear and if
it is not a threat you may begin to settle down. But fear can keep on
going, the mind adding momentum sustaining it by dreadful imaginings.
Such as in the above example you could easily image that it was gun
fire, particularly if you suffer from post traumatic stress disorder ,
your mind adds momentum and as a result increases the duration of the
fearful feeling. Fear should in normal circumstances subside once the
danger has passed.
There is not a lot of difference between fear and anxiety and anxiety
can precipitate fear and vice versa as in the above example. However
anxiety as felt by sufferers of the disorders on this website mostly
concerns anticipation of something that is not occurring right now, it
mostly concerns worries of future events or the perceived negative
outcomes of past events. As I have already said anxiety involves fearful
imaginings such as the continuous worrying of a person with
hypochondria who has the idea that he or she has some life threatening
disease; he or she will feel that gnawing persistent anxiety without
abatement varying in degrees which may reach overwhelming levels in much
the same way that it does to everyone during those acute moments of fear
mentioned earlier. From my own experience I can tell you it is no
exaggeration. Prior to my full blow OCD I was tormented for months with
hypochondria and today I have this in varying degrees. I recall that I
had the oddest notion that I had hardening of the arteries at only
twenty two years of age. I had overheard a depressing conversation at
work where it was mentioned that a friend of one of my colleagues was
dying of hardening of the arties. From that time on I was sick with
dread, appalling unremitting dread. I had had similar attacks of such
imaginings: I had worried about leukaemia, lung cancer and other
terminal illnesses. After the doctor had assured me that I did not
sufferer from any of these illnesses my mind, quite against my volition
of course, automatically found another illness to worry about. I recall
that during this time of great anxiety concerning the possibility that I
had hardening of the arties, which of course on a rational level I knew
was a malady of old age, I looked at my wrist and imagined that my veins
had disappeared. What this quite had to do with hardening of the
arteries I had no idea I did not even know what the symptoms were but I
really thought that my arteries had disappeared. I really feel silly
telling you this now and it was only my imagination of course but at the
time it was so real and the fear that overwhelmed me I will never
forget, although of course the exact feelings cannot be remembered.
Nonetheless now as I type just recalling the fear I went through at that
time I feel that anxious feeling rise to my throat.
So please make no mistake, anxiety is no mild emotion, in its extreme it
feels like fear, it leads to fear and it is fear and the fears borne of
anxious imaginings such as that experienced by anxiety sufferers may be
just as real and may feel just as terrifying in certain extreme
situations as fear experienced during a real threat. Any one suffering
from panic disorder will tell you how terrifying it feels when in the
throes of this very severe type of anxiety; a full blown anxiety attack
is felt as excruciatingly overwhelming and incapacitating as fear felt
in the more normal circumstances of a real threat.
It is now 11.55. I am really
now so fed up with checking all the above entries and will publish. I
get so tired of how all this eats away at my life taking away my
precious time, time that could be spent on other things, writing other
things that I hope will be of benefit to others. I am having big trouble
with my old computer and need to give it some attention and I have some
artwork to do and various other projects for this website and that of my
son's although he is gradually taking over this task. I resent how this
manifestation of OCD is inhibiting this endeavour and am tried of going
over and over these entries. There will invariably be mistakes there
always are, I have problems concerning attention deficient that effects
the accuracy of everything I write and whatever I write will never ever
be perfect in that respect and somehow I have to accept this. And
concerning the other fears about causing harm by what I have written or
not written..... well I don't know how to overcome them but even if I
only concentrate on trying to ignore the aspect of my anxiety concerning
grammatical and other similar errors it would be something and would
help cut down the amount of checking involved in that regard. So I am
not re reading for the umpteenth time and will click publish mistakes
and all. Ummm right now I am worrying about the second from last
sentence and other sentences which I think are convoluted and
complicated. I can obsess and re read until my brain is so exhausted and
than I feel so frustrated and irritable as I am feeling right now.
What do a few mistakes matter I am not professional writer. Silly I know
but they do matter, I wish it were otherwise.
September 20th
We have two ears and one
mouth so that we can listen twice as much as we speak.
Epictetus
Most conversations are
simply monologues delivered in the presence of a witness.
Margaret Millar
Last night I watched the film Intimate Strangers confidences trop
intimes a French film by Patrice Leconte Starring Sandrine Bonnaire
and Fabrice Luchini. The film is about a women with marital problems who
when consulting a psychiatrist walks into the wrong office and instead
finds herself discussing the intimate details of her marriage with a tax
consultant who rather taken unawares does not tell this women that he is
not a psychiatrist. After a couple of consultations the tax advisor
still has not the courage to own up to his real identity . The point of
my mentioning this is that there was an interesting conversation between
the legitimate psychiatrist and the tax adviser concerning this women
during which the psychiatrist said how people with her kind of problem
were nowadays unable to find anyone to listen to them, and instead they
had to engage the professional services of psychiatrists whose expertise
they really do not need simply because no one knows how to listen
anymore.
I could not have agreed more. In recent years I have noticed that no one
wants to listen anymore and I do not just not mean that no one wants to
listen to another's problems, no, no one wants to listen to anything any
more, most people seem so consumed by self interest. It appears to me
that no one has any interest in any one else, either pain or joy no one
is interested in the experiences of others - at least not in the lives
of people that they know, real people with whom they associate on a
daily basis. Yet a significant number of people are addicted to soap
operas following closely and becoming involved in the lives of the
characters yet they have no interest or concern for the lives of real
people. Moreover followers of soaps often momentarily lose touch with
the reality of the situation inasmuch that it is not real. We all do
this if we admit it , we get so involved with the scenarios of such
programs on TV. We occupy our thoughts with the lives of these
characters, we feel sadness when they are sad, along with the
protagonists we experience anger and sorrow and we look forward to the
next instalment. We may even feel disappointed if we miss an episode and
ask some else what happened. We even discuss the problems of the
characters but we seem not to care about or take interest in the lives
of real people. Why is this? The lives of real people are more important
and are certainly more interesting. After all these soap operas do not
really show the reality of life, particularly the lives of those who
suffer from mental health issues. Take Home and Away as an example, an Australian soap,
I enjoy it, I have watched it for years, it is a distraction but it has
little baring on the reality of life. One of the characters is supposed
to have OCD, well you would never know it. I missed the part where it
became apparent that she had OCD it was only later on during a another
scenario that the fact came up that she was supposed to be a suffer of
OCD otherwise I would never have noticed. She exhibits no OCD symptoms
whatever, no one gets this well now do they? Wow if treatment in
Australia is that good well...... I am out on the next plane, flying
phobia notwithstanding! Admittedly I did not see the episodes which
portrayed this character's OCD in the first instance but most certainly
in the episodes since there have been no indication whatsoever that she
has OCD.
Most soaps cannot even portray normal conversations with any reality except during angry
scenes and even than they lack the spontaneity, the turbulence and
incoherence of most heated exchanges . Have you noticed in soaps that
for the most part conversations are arranged in a logical manner one
person speaks, the other listens without interruption until the first
has finished speaking and than he or she speaks while the other than
listens. How many conversations have you had recently when that happens?
I can think of very few. How often can you finish a sentence before
someone interrupts you? No not even conversations with mental health
professions are conducted in this manner, the days of laying on the
couch while the psychiatrist or other therapist listens are long gone,
you re lucky if you re able to complete a sentence without interruption.
I am not saying that this happens all the time, in fact in relatively
recently a mental health professional did in fact listen quite intently, but most certainly
through out all the years of my experience with psychiatrists and other
mental health professionals it has upon far too may occasions. Once I
saw a CPN a few years ago for several months and not once did I get to talk about my OCD
in any real way. I recall being interrupted the first time I mentioned
it before completing a sentence and after continued interruption I gave
up. I have great difficulty expressing myself finding the right words
and so it was hopeless for me. I had told this Person nothing
whatsoever. I was told that a report was written up each time I
received a visit I often wondered what was written in that report.
Most certainly conversations with friends, colleagues or family are not
what they once were. No one ever asks concerning your interests, no one
really asks how you are accept in accordance with polite conversation,
have you noticed the look of surprise on another ‘s face if you answer
“How are you?” with a truthful response instead of the usual “Fine thank
you how are you?” If you answer truthfully you will be met with some
astonishment in most instances. We have lived here in the north east now
three years during that time no one has asked us anything about our
lives in the south east or why we came here. No one has asked what
my husband or son did for a living or what we think of our new lives
here, nothing!. And most certainly no one wants much to do with you if
you are ill other than the occasional morbid curiosity and nosiness. No
one wants to listen or take interest . Yet if they can they will
inundate you with all their problems, interests and ideas while barely
listening to yours. This often happens become of my difficulties to having
conversations with others and to share both my interests and my problems
and it is
for these reasons that I am probably at a worse disadvantage than perhaps are
the more socially able . As a consequence I get labelled a good listener
because I simply cannot think of anything to say fast enough before
being interrupted so people will talk on and on.
I was told that I am a good
listener way back in the sixties and many many times since. I rang a
former neighbour the other day, it was a case of necessity , I have not
spoken to this person for nearly two years. We had lived closed to each
other and had known each other for over twenty years yet she did not
even ask after my son or asked much of anything personal at all. In fact
she made the most lame excuse possible to hang up : I will have to go
there is someone at the door. It is so sad and many people feel so alone
as they have lost the art of listening and of caring, they listen to no
one and no one listens to them. We are all so preoccupied in our own
lives and have neither the time nor the inclination to take interest in
others. Sometimes there is just no one to talk with. At least with the
internet you can talk to others and have your say uninterrupted as
communication by writing means they have to listen...... or do they?
I guess most people will read what you have written in an e-mail or
instant message but of course this does not mean that they have to
respond. Now suddenly writing this here I can tell you that in some
extreme cases people with whom you may correspond still do not
have to take an interest or comment. I used to exchange email with an
e-mail pal who never responded unless it was something that interested
her or was about herself. She ignored blatantly any other comment or
inquiry. Yes it is indeed a very lonely world and we are all to some
extent isolating ourselves because of our lack of interest in others.
September 21st
For man, autumn is a time
of harvest, of gathering together. For nature, it is a time of sowing,
of scattering abroad.
Edwin Way Teale
Today is the autumn equinox, it is the beginning of Autumn here in the
northern hemisphere, today night and day are of equal length in both
hemispheres. It is traditionally a time for gathering in the harvest and
for gardeners it is a time for pruning and cutting back and preparing
the garden for the winter months. It is a time
of change not only in nature but within ourselves also for we are of
course despite our sophisticated trappings a part of nature. It is
a time when we have the opportunity to learn new things. Here in the UK
it is the beginning of the school year, it is an opportunity for
everyone to learn something different, for adults also it's a good time
to learn new skills or simply to enrol in an adult education
course to broaden your mind. And for people with problems such as those
included on this website it is a good time to participate in such
distractions afforded by the many learning opportunities available. I
understand for some of us, and right now that includes myself, it may
not be possible to be involved in such an activity for a number of
reasons but if you can it will help you get through these gloomy
days when we begin to feel rather weary and despondent. I am of course
as always speaking from my own perspective perhaps you will see things
differently and see autumn in a more positive light. There are of course
some positives as you tend to wind down and becomes less active and
perhaps you can enjoy the comforts of your own home and the company of
your family during this time of year.
It is however most certainly
not my favourite time of the year and even during times of my life when
my condition has been less severe I have always felt increasingly
anxious around this time. There is something about the onset of autumn that makes me uneasy,
whether this is due simply to the onset
of colder weather ,shorter and gloomier days or perhaps even reminders
of past events, whatever it is I do not like this time of year. I have
had some sorrow during the months of autumn but than I have also at
other times during the summer months in fact more so. But whatever the
reason for my unease there is
nothing I can do about the the coming of autumn and will somehow have to get
through it. At my age one should not wish one’s life away by counting
the months to the return of spring and instead try to make the best of
the situation.
I try to make my home as bright and as pleasant as
possible, not often easy as during the autumn we have problems with damp
and such can make one feel depressed. At the moment I am painting
pictures of flowers on box canvas to hang in the kitchen and have
painted our stools similarly. It is amazing how this creates a more
cheerful and bright look to the kitchen even ours which is rather old
and run down. Even if you don't fancy yourself as a painter it is of
course possible to buy quite cheaply bright and cheerful prints. Also
plenty of plants enhance your environment at a time of year when greenery
is in short supply - well it is here in the northeast. There are fewer trees
than there are in Sussex and I notice this particularly at this time of
the year when trees begin to lose their leaves. Now as an OCDer
with a tendency to compulsive hoarding and cluttering I can over do it
rather and I need to be mindful of this particularly concerning plants.
My son groans when yet another plants is added to what he calls the
jungle. I try my best to mitigate the negative feeling I have concerning
this time of year as much as is possible and I think that making ones
personal environment as pleasant as is possible in whatever
circumstances you are in helps to some extent to improve ones mood.
The following are photos of my
paintings and stools to match, you would be amazed of the difference
these make. People nowadays seem to go for the minimalist look in
sitting rooms kitchens and bathrooms which I find bleak and cold making
you feel as though your are in an office or a laboratory. Yes over the
top clutter is for my family and I a big problem and one that is growing
however bare empty homes are another extreme and a bit of cosy clutter
does much to make one feel more comfortable during these colder gloomier
months.
Click on thumb nail for larger
image.
I am of course not alone with
such apprehension or increases in feelings of depression concerning the
approach of autumn and winter time. If you suffer from seasonal
affective disorder SAD you will be feeling much the same as I and maybe
even worse. In fact anyone who sufferers from depression will not
welcome the onset of autumn. There is definitely a difference in the
amount of light even on a sunny day and for those of us who are sensitive to such things it is indeed
noticeable.
Today is most certainly not a good start at all, I have been awake since
2.30 there has been a loud and very intrusive thumping noise from the
factory in our village which has been working at night for over four
weeks. Sometimes the noise is so loud I simply cannot sleep or I am
woken as I was today and cannot return to sleep. Ever since moving here
this factory has been a real thorn in my side and I have tried
everything to get the problem resolved but it would seem that I have no
rights and they can work 24/7 and make a good deal of noise which is
audible even to the deaf. Yes even a lady of ninety could hear it and
she was very hard of hearing. Well I will not go into details as it
would be tedious and does nothing really for me or anyone else. In the
UK the government is very into human rights issues and quite rightly so
too. However only in certain areas, and this is not one of them. The
problem is it would seem: I don’t have any rights! I don’t have the
right to peace and quiet at night. Yes a main road passes right through
our village and in all fairness I can’t do much about that. But the
traffic does subside at night and is barely noticeable with only the
very occasional passing vehicle, so at night the traffic is not a
problem. But there is something that can be done about this factory,
there could at least be some restriction on working during what was once
referred to as unsociable hours. Not much to ask, we live in a residential area but in a strange mix
of agriculture and industry, it is not quite the idyll one would imagine
despite the pleasant view from the side and back windows overlooking
fields and hills in the distance.
No it is no idyll of peaceful
tranquilly, it is hell for me. I feel as though I am living in some hell
realm where I am tortured by noise every single day, it has made my
health worse due to three years of sleep deprivation. I find it
difficult to complain I do not wish to deprive anyone of a living but I
have to sleep, and besides I simply cannot get any help with this
problem as seemingly I have no recourse in law unless I can afford a
solicitor and engage in an expensive court case and even it I could the
law simply does not support my position at all, in other words I have no
rights. In the twenty first century the misery of noise from this
factory which occurs in my village is an anachronism of a by gone age
but like so many anachronisms that where seemingly things of the past it
is here today and will remain here today if nothing is done about it.
Wouldn’t you think that in this day and age a factory employing 200
people would not be allowed to work in a residential area at night
unless it was entirely soundproofed? If anyone reading this has any
knowledge concerning my position in law regarding this situation I would
appreciate your advice.
Yes I was very naive indeed to have bought a house here and there is not
a day that passes that I do not regret this. Yes I saw the factory when
we made an offer to buy our house, it is in plain view. Initially I thought
it was a warehouse but even if I had not it simply
would never have occurred to me that they would be allowed to work
throughout the night. I really regret buying this house now and feel the
mistake of moving here for this and other reasons will be something that
will haunt me now for the rest of my life. There is no going back for
many reasons and somehow I have to either do something to stop this
noise which seems increasingly unlikely or move elsewhere and this is
something none of us feel able to cope with right now as the stress and
anxiety of such a course of action is just too overwhelming .
September 23rd.
Well I lamented the passing of summer in late August far too soon it
would seem, two days after the autumn equinox it is still so warm, at
least for the time of year. I sit here now really quite warm, hot in
fact.. Although it is pleasant to feel such mild temperatures at this
time of year it is indeed unusual and brings to the fore the reality of
global warming. It is so warm in fact that it would be lovely to be able
to open the windows, it is 5am and there is little traffic on the road
and I might just get to here the birds sing - well I would if it were
not for the continued noise of the factory.
I rang the department of the environment yesterday as I was really at my
wits end with the noise feeling so ill after having hardly any sleep. As
you know telephoning for me is becoming an increasingly difficult task
due to my problems with social anxiety but I was so angry. Anyone else
notice how anger can give you that extra bit of momentum to take action
that would otherwise not be taken in normal circumstances? To my
amazement they have received other complaints. Knowing that I am not
alone in this helps considerably. Because I have OCD and have this
sensitivity to noise which may or may not be due to aspergers syndrome
or simply due to high levels of stress (I still of yet do not know the
reason for such sensitivity as no diagnosis is available) but
whatever I am often regarded by my family as overreacting to noise and even at
times imagining it all. My son who has a diagnosis of Aspergers syndrome
seems only to be disturbed by certain noises, noises which affect him and
which are different from the noises which affect me and besides he
sleeps at the back of the house where the noise does not penetrate. My
husband well....... He is one of those people who sleeps like a log, a
bomb could go off and he would carry on sleeping. So neither are really
affected although both can hear it in the front side of the house but
because they’re the least effected they seem to take it in their stride,
at least they do not appear to react. Maybe they’re more laid back but
maybe they are depressed, tried and simply worm out by the increasing
difficulties and frustrations of life. Yes so am I but depression like
all thi |