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I have
not written anything in my blog for well over over a week. There are
many reasons for this. I have slept in later than I used to due to
the effects of my new Prophylactic migraine medication which makes
me sleep better at night: if I do not rise early in the morning and
work on my computer the only other time I have is on Saturday and
Sunday mornings but lately life has been so complicated by other
matters that require from me a lot of writing, I will not explain
these problems right now, but my time on these mornings has been
further absorbed by this necessity. I have also become increasingly
depressed and the motivation to write has diminished no doubt due to
this. My communication skills seem like everything else in my life
to be getting worse and for important medical appointments including
one with a psychologist I now have to write everything down at least
to get it clear in my mind, fortunately my new psychologist has at
least read what I have written, it may surprise you that many will not take the time
to do this despite the fact that I try to explain that this is my
best method of clearly and precisely communicating my problems.
Moreover writing for me is increasing complicated by problems I have
mentioned before which involve OCD, checking rituals and obsessing
about casing harm or upsetting someone. This has become so awfully
tormenting that I have begun to dread coming on here and writing my
blog entries due to the anxiety and exhaustion which arises from
this aspect of my OCD. It is not easy to get out of bed when I am so
depressed but the added anxiety over writing and worrying about
everything I write decreases such motivation still further and the
indecisiveness concerning what to write is a real torment. Most
people would say, well why do this if this is causing you so much
unhappiness. Well the problem is if I was to abandon this endeavour
OCD has won again. I would eventually have to pursue some
other interest and when I did so OCD would turn its attention on the
new pass-time and gradually destroy that for me. So here I am today
struggling against depression, anxiety, aches and pains and the
threat of yet another migraine. My migraine medication seems not to
be working although I have had eleven days migraine free but not of
course tension headache free, I was rather hoping that the situation
was improving. Although of course such optimism is not well founded
as of course these odd migraine free gaps of a few days in
succession have occurred before but hope always leads one to believe
that one is on the mend despite ones logic concerning a less
favourable
outcome. Even someone as negative as me seems unable to quell that
feeling of hope that often presents, almost like a compulsive
thought, against all odds. They say that hope is a destructive
emotion, at least in certain situations, it at any rate in most
instances leads to disappointment. But it appears innate for most
people to continue to hope and I am no exception therefore today's
headache if it turns to migraine will be a bitter disappointment. It
has to be said that during these eleven migraine free days I have
been anxious that today will be the day they return for the usual
two or three weeks of frequent attacks, and this anticipation of
course kills any pleasure I might receive during this respite.
Moreover if I am out and about I am on tenterhooks if I have gone
for more than two days without a migraine should one turn up and
spoil my day, any twinge or an outright attack of tension headache
is profoundly fear educing should the headache turn out to be
migraine.
May 2nd
I would like to comment upon the tragic events that took place
during the Virginia tech shootings in the USA. Although it is not
definitely clear it is suspected or rather rumoured that Cho
Seung-hui was autistic that he had either Asperger syndrome or high
functioning autism. Cho´s great aunt, who lives in South
Korea, said during an interview that he did not speak much as a child and because of
this after the family emigrated to the United States, doctors
thought he may be autistic.
Rumour
mongering can really get out of hand on the internet, so much
supposition has grown from a comment made by someone, a distant
relative on the other side of the world, which has led to erroneous
and harmful speculation, which after a time translates to many as
fact when in reality this is not the case.
Neither school officials, who have his educational records, nor
police who have his medical records, have mentioned such a diagnosis. Autistic individuals often have difficulty communicating,
however lack of communication difficulties presents with other
disorders moreover the diagnosis of autism in any case would not
explain his violence.
To
reiterate, there has been as yet no confirmation of a diagnosis of
autism.
And most importantly this does not in any case explain his violent
behaviour; such is completely uncharacteristic of people with
autism: "...to make any link between autism and the extreme,
violent behaviour displayed in this case is irresponsible.
Individuals are already often the targets of bullying and hostility
and such speculation only risks inciting prejudice.
Autism does not make a person more likely to intentionally commit a
crime. Indeed, in many cases, individuals with autism are unusually
concerned to keep the letter of the law, due to the nature of the
disability. Some people with autism may also be more vulnerable to
criminal acts against them because of their social difficulties."
The
National Autistic Society - Virginia Tech
I recall when the first news reports came in describing the personal
characteristics of Cho that he seemed like an Aspie, at least these
where my first impressions, but I thought no more about this
as such behaviours are at variance with the characteristics of a
person with Asperger syndrome. Such symptoms could just as easily
fit the diagnosis of a sociopath. People with Asperger syndrome are
usually law abiding, they stick rigidly to the rules even
inconsequential rules. It would be completely out of character for a
person with Aspergers syndrome to violate such a major infringement
of the laws of society, or the rules of moral and ethical conduct
unless of course he or she was suffering with an additional serious
mental illness and remember autism is a neurological developmental
disorder, not a mental health problem. Many Aspies (an affectionate
term for people with Asperger Syndrome) and others on the
autism spectrum may have problems with anxiety and depression, some
of which may be the result of society's rejection of anyone who is
different. However just like anyone else an autistic person can have
the sad misfortune to suffer with a more severe type of mental
illness, even a psychosis which appears to be the case here. Now
bear in mind that none of this is as yet official: At this
time Cho Seung-hui’s health status is merely conjecture, the
inference to him as having had autism stems from an interview with a
great aunt mentioned above.
As those of you who regularly visit my blog will know my son has a
diagnosis of Asperger syndrome. I also believe that there is a
strong possibility that I may also qualify for a diagnosis of
Asperger syndrome or at least have significant autistic traits.
Neither he nor I would be capable of such an act of violence as is
also the case for the majority of people who are either high
functioning autistics or have a diagnosis for Asperger syndrome or
indeed anyone anywhere on the autism spectrum. see link:
Autistic spectrum - Wikipedia, the free encyclopedia.
My son, husband and I are all vegetarian, none of us kill any
living creature not even an insect. It must not be construed that
even if Chow did have a diagnosis for an autism spectrum disorder
ASD that that was the reason behind his motivation to carry out his
atrocity. Again I must strongly emphasize that such acts of
violence are not characteristic of autism, people with autism are
not prone to commit violent acts. Moreover It is also important
to bear in mind that most atrocities of this nature including wars
which result in the death of countless millions of people have been
carried out by neurotypical NTs ( people who are not on the autism
spectrum). In fact it is suggested that fewer wars would be
undertaken if everyone was autistic as people on the autism spectrum
would be unable to collaborate with one another in order to carry
out these insane genocidal acts of appalling violence which many
condone as a necessary evil , evil being the operative word, accepting such as normal.
I have the deepest sympathy for the people who lost their lives and
for grieving friends and relatives in this dreadful tragedy. One
never quite gets over the death of a loved one even when that person
is old let alone when they die in a violent manner at the threshold
of life with much to look forward to. There are no words that can
sooth the bitter pain such tragic loss brings. Life is precious to
all and to hear of anyone’s demise brings a measure of sadness to
me, a pang of loss. it is a tragedy when anyone in any circumstance
whether young or old dies prematurely, unnaturally as a result of
violence.
It is also tragedy when the perpetrator did so from the motivation
of bitter resentment and a seething anger that seemingly he could
neither express nor suppress. I do not know the facts and no one can
claim to know what takes place in anyone’s mind. Such acts seem
surely that of someone insane. I do know the frustration of
loneliness borne from the inability to be part of the whole, to fit
in, to be accepted for who we are no matter our differences. Many
people are incapable of what is considered as normal interaction
with their fellow human beings, for instance people with social
phobia, avoidant personality disorder and all forms of autism
including Asperger Syndrome. People with Aspergers syndrome would
like to be part of society to have friends but do not know how to
form friendships, they simply cannot fit in, yet they so much want
to be part of society and often the result of ostracism or bullying
leaves the person ever more lonely, the increasing isolation
resulting in increasing depression and anxiety. Of course such
circumstances do not condone such atrocities and clearly there other
serious issues, delusional thinking which have brought about such an
extreme and violent reaction.
I have sympathy for Cho even if it turns out that he does not have
autism. I also have sympathy for his family who must be devastated
by this tragedy with is a tragedy for all concerned. I feel a
certain sadness when I hear about the death of anyone, death is so
final it is particualry sad when the perosn concerned has had a
wasted life of unhappiness.
Who is to blame? Obviously Americas gun laws have much to do with
this, it is unlikely that here in the UK such a tragedy would have
unfolded, at least not with such an high death toll as even with our
present rise in gun crime it is not possible to walk into a shop and
purchase a gun as it is in the USA. I for one would be very anxious
to live in such a society when it is possible that your next door
neighbour has a gun, particularly in today’s increasingly angst
ridden volatile society when everyone's temperament seems more
unpredictable. It is said that Cho parents recognised that he needed
treatment for mental health problems but could not afford such
treatment and moreover they did not have the time to attend to his
special needs even though they recognised that he was autistic. It
is sad that such a wealthy country as the USA cannot provide a good
free health service, surely a basic requirement for any civilised
society. The cost care and special needs requirements and medication
is phenomenal to fund privately, well beyond the means of the
parents finances to provide. Here in the UK simply getting an
assessment for an adult with Asperger syndrome will cost in the
region of £1000 to £1500. Here in the UK although health care is
free when it comes to mental health, services are stretched to
breaking point in some regions with waiting lists for CBT are as
much as two years! Furthermore many psychologists do not have the
qualifications to carry out an assessment for AS. I made this
enquiry concerning a private diagnosis recently as a matter of
curiosity should I fail in my endeavour to get an assessment on the
National Health Service NHS and was shocked to learn the extent of
the cost which is far far beyond my financial means. If I cannot get
a diagnosis assessment on the NHS I will he no choice other than to
let it go and make my own conclusions. I was told by the diagnostic
service of which I made the enquiry that they would take NHS funded
patients and I should consult my doctor however I was told that at
my age this is not likely to be granted without good reason, just
wanting to know would not be considered a good reason. My reasons I
will share with you in due course in an article I am trying to write
concerning the importance of an accurate diagnosis of all co
existing and co morbid conditions. Most certainly if like me you are
an adult and suspect you may have an ASD you have to have a very
good reason why you need an assessment furthermore there has to be a
person qualified to do this. I also got the impression that this
person also considered that my age would also be of detriment to
acquiring a diagnosis funded by the NHS. My resent psychologist has
no such qualification. I think unless your
symptoms are severe as an adult you have little chance of getting a diagnosis
here in the UK unless you pay privately.
It is of no use to blame the parents who where I understand struggling
to maintain a very basic life in terms of material needs. Yes it is
easy for me to say these things. Many would say that you would feel
differently if you had had a loved one taken from you so suddenly,
so violently and yes I would feel differently, of course I would as
such would be natural, human. It is human to feel anger, hatred. I
myself am not a forgiving person and harbour bitter resentment from
wrong doings towards myself and my family which are years old and
are minor in comparison and when these resentments arise from time
to time, as they do with all of us I would imagine, still the anger
and resentment is there.
There was more going on with Chow
than his alleged autism, he was certainly a complex and little
understood individual whose life could have been so different with
the right care and understanding. And this is the case for many of
us who suffer with an ASD or mental health problem or indeed
anything that makes us different from the
normal. I would like to see a society where everyone is accepted for
who they are regardless of differences. We need diversity in
society, it is this diversity that motivates change that gives
momentum to creativity and invention, often it is those afflicted
with conditions such as autism and mental health problems that have
provided us with the arts that have lifted our spirits , enriched our
lives and the inventions that have astounded recent generations. We
have made progress concerning racial discrimination, last Sunday
listening to Martin Luther King's moving speech I Have a Dream included in a film I
was watching I hoped for a time when all people are respected and
treated equally regardless of race, creed, gender or condtion of
health and this will include those of us with a mental,
developmental and neurological problem or indeed anyone however
different as a necessary and valued part of society. I would want to
see a world where every person is
appreciated and valued for whoever she or he is and remember
everyone has something to offer and that most certainly is the case
for people with autism and mental health problems. I have done this
on many occasions here on my blog but now is a good time to remind
ourselves just what those who have an ASDs and mental health
problems have contributed to society.
Bill Gates : Computer technology founder of Microsoft - Suspected Asperger syndrome
Howard Hughes: Aviator, film producer, entrepreneur. Hughes' vast wealth was left to
the medical research institute which he founded
Howard
Hughes Medical Institute | Biomedical Research & Science Education (HHM.
-
OCD and I suspect also that he may have had Aspergers syndrome
Van Gogh: A Dutch painter - believed to have had bi polar disorder
and I suspect Aspergers syndrome
John Forbes Nash Jr : mathamatician. - schizophrenia
Friedrich Nietzsche: philosopher - OCD and Asperger syndrome.
Tchaikovski: composer/musican - bi polar disorder (manic
depression).
Albert Einstien: scientist - Asperger syndrome, ADD
Bearing in mind that where the diagnosis is posthumous such is of
course likely to misinterpretation and several condtions lay claim
to the same individuals. Nonetheless clearly these people had either
mental health problems or autism
This is an extensive list and I could go on. Society has been
enhanced and enriched by all these people and many many others who
never become famous but who have nevertheless contributed in some
way. So isn't it time society had more respect and indeed
appreciation for the mentally or neurologically ill and indeed for
anyone who is different
Here
is a link to ten positive things about autism :
Terrific Traits of Autistic People
And remember your average aspie is a law abiding person with a
social conscience often an opponent of social injustice but in a
constructive rational way I hasten to add. It is a fact that a
person with Aspergers is more likely to be the victim of crime than
a perpetrator. In modern history as far as there is information
there are few incidences of the crime of murder where a person
with AS had been the perpetrator and one of those is at the time of
writing is only alleged: the case of Chow. Compare that to the untold
countless murders perpetrated by NTs. People with Aspergers are less
likely than anyone else to commit violent crimes.
May 3rd
I hope that I have not upset anyone with the above comments,
perhaps it is best not to have mentioned this at all, although I
cannot imagine that there is anyone who has not heard of this tragic
event and the speculation about the medical status of Cho
Seung-hui.
I have
to admit that at times I do say or even write things that some
people may misconstrue particularly when it comes to such sensitive
issues. I was anxious to post the above entry.
Concerning less sensitive issues writing is easier than oral
communication as of course there is more time to think about what I
have written or rather to obsess about what I have written. The
tendency to say the wrong things is one of the reasons that I
obsesses to extreme lengths before publishing my entries and this
leads to long delays and of course my entries perhaps being a little
out of date. This is becoming a serious problem and the increasing
stress and frustration is just awful and it is a real battle not to
allow OCD to deter me from writing or maintaining this website. And
even though writing is easier for me than oral communication, due to
OCD it is by no means easy. Moreover just lately I simply cannot
think how to express myself easily it takes hours and much editing,
as though even this medium of communication is becoming difficult,
less natural. There is so much in my head, my mind is full of
thoughts, both positive and negative but I simply cannot explain
them either orally in a conversation or in writing. The other
day a simple request I had to put into writing. It was one paragraph
in length, about six sentences, yet it took a while to compose and
than with all the checking even more time and patience was consumed.
Indecisiveness played a role also and I printed out two versions and
asked both my son and husband which was the better of the two.
I
feel so frustrated by these difficulties which I imagine are
becoming worse as my anxiety becomes more accentuated. It is as
though anxiety and stress increase by their own momentum: increasing
anxiety further generates more anxiety which in turn produces still
more anxiety and so on and on it goes overwhelming you until your
whole life is lived in a state of hyper-anxiety and tension and the
least little thing brings about an explosive tantrum of anger.
Earlier I could not get the tin in which I keep my medication into
the cupboard, the door would not close something had fallen
behind and prevented me from pushing the tin in far enough to close
the door. My rage was volatile, swearing and ranting. I recognise
that such is an in appropriate response to a very minor difficulty,
such difficulties beset everyone all the time, yet still I could not
quell the rage over what to most is nothing other than a minor
irritation. Any disturbance whilst I am doing something such as now
for instance sitting here typing and finding everything written with
caps lock on or having to use the toilet or someone on the
telephone, raises my stress levels, the frustration is profound.
However this kind of stress I believe is due to the stress that
arises from OCD which has morphed and become generalised until any
tiny thing in my environment which does not function or works out
the way I expect
brings about disproportionate levels of anger and stress. Such
feelings have become common place that my stress threshold is
virtually nil and any thing and everything makes me angry,
frustrated, irritable.
May 4th
My hands are so dry these days that it is very uncomfortable in fact I
would say extremely uncomfortable and if I do not have access to a
continual supply of hand cream I cannot sleep at night due to the
discomfort. My hands look crinkly and old, this makes me depressed, in
fact my increasing age is becoming more of a source of depression and I
cannot bear to look in the mirror or catch a glimpse of myself as I
passes by a shop window. I have removed all mirrors from my bedroom. yes
I am getting older of course and such is expected but sadly my hands
have aged rapidly because of the years of repeated hand washing and
looking at them now increases my depression regarding my increasingly
older looking appearance. I am at the moment having consultations with a
psychologist. I am at the present time under an assessment to ascertain
my suitability for CBT, so far it is not looking good for one
reason or another which I will explain in another entry otherwise this
one will be rambling and muddled. As part of the assessment I am too
write down all my emotions the thoughts and actions behind them and the
degree of anxiety, anger or whatever which motivates them. Because of
the severity of my OCD this is virtually impossible for me to do this;
if I did so I would be sitting around doing nothing other than write
this all down . Yes my OCD is that pervasive that it presents in every
facet of my life. And looking at the state of my hands I am not
surprised when I wash my hands wash my hands dozens and dozens of times each day. My skin in general is
dry due to too frequent showering perhaps, and after years of such abuse
of ones skin there is rarely a time that my hands feel comfortable
unless lathered with copious amounts of thick hand cream which I have to
apply each time I wash my hands. They are so uncomfortable now as I
write that I will have to apply some right now, they feel like parchment,
taunt; I keep making fists with them to relieve the tension as the skin
feels stretched. If I apply hand cream at any other time accept directly
after washing my hands I will have to wash my hands first before
applying the cream which as you might realise of course increases the
number of times I wash my hands Often my hand cream gets
contaminated and unusable. I think that I am going to be in for rather a
shock just how much OCD encroaches on my life, most of my thoughts my actions
are effected by OCD. More and more of which is beginning to
resemble pure O without compulsions although if I look carefully there is
probably some compulsion even if it is mental covert one rather than an
overt very noticeable compulsions such as all this hand washing.
May6th
Please visit the above
website for more of Kirk's excellent artwork. it is always a
refreshing change to hear of something positive concerning a
sufferer of OCD.
May 9th
In the next few weeks I will not be able to update my website or this
blog. As I have previously mentioned I am right now having an assessment with a psychologist to
ascertain my suitability for CBT. In the process I need to write down
information on a chart which will monitor my thoughts. I have to
keep a record of every stressful or OCD situation; any situation that
precipitates a change in mood, increased depression or brings about
emotions such as anxiety and fear and what I was doing or thinking at
the time. I have to record my emotions at the time, such as fear, anger,
anxiety and the precise extent and nature of my thoughts. Because my OCD
is so pervasive and presents in just about every action I take, even now
as I sit here I am obsessing that perhaps I should not be writing this,
I will be writing all day in fact it could get so overwhelming that in
theory I could be doing nothing other than write which of course would
rather defeat the object and a clear picture of my condition would not
result. So I guess that perhaps I should not take this literally and
perhaps I should not record the same thoughts as they occur over and
over, but there again as my son pointed out, perhaps the psychologist
needs to see how many times these thoughts occur. But it is just
impossible for me to record on this chart every single thought and
action, and to write concisely which as those of you who read my ramblings
know only to well is impossible. So far I have recorded and explained
only three thoughts.
Today I have a
significant headache and feel under pressure to decide if it is migraine
or just a tension headache as we need to go out. Now when I say just a
tension headache this remark does not imply that these tension headaches
are merely an annoyance, no indeed they can themselves be severe but
unlike migraine they are just bearable. Nonetheless filling out his
chart will increase the severity of my headache as was the case
yesterday. In fact I found the whole assessment session very
stressful and my existing headache got much worse during the course of
the assessment. I consider this is rather a difficult task to expect of
people who have an anxiety disorder and or depression. It is not so
difficult to write down examples of my thoughts, behaviours and the
emotions which accompany them but to have to write every thought action
and emotion and to rate the intensity in percentages of 01 - 100 is in
itself a daunting and stressful task. I wonder what would happen if I
was not able to write. I cannot for instance write concisely. my writing
is very detailed, rambling . I cannot generalise. I was told during the
session that the way I was describing in detail two instances of my
social interaction difficulties that this would inhibit the success of
therapy and that I needed to generalise which is something I am not
capable of doing. I am in fact quite depressed about the whole idea as I
do not feel I can do this, at least not to the extent required. I will
of course try but I feel so overwhelmed right now and do not see how
this task can be carried out. I think it is a lot to ask of people who
are severely stressed. The only way I can do this is by trying to
remember my emotions, situations and thoughts and from time to time
record them as best I can.
Therefore because of
this I will not be on-line and able to respond to e-mail for two or
three weeks or update my blog or website as I really must concentrate on
this as this will be my last chance of making any improvement.
Furthermore I do need some time out to relax, sit in my garden, or go to
some of the lovely places in my location in-between this frantic
recording of my thoughts, and enjoy this marvellous sunshine we are
having right now - although I have been told I will need to take my note
book everywhere. I wonder if I am taking this too literally, recording
every thought and emotion seems impossible! Also being rather a computer
addict if I go on line to check e-mail I will get distracted and do
other things on the computer and it can take a long time to write
e-mails, sometimes over an hour or more and also thereafter endless
checking which because of this assessment I will not have the time to do
as I can only do so much writing in any case, as after a while my brain
becomes confused, brain fogged if you like.
I like to leave you all
with something positive:
Here are a few photos
my husband took recently on one of our trips out.
These photographs will
open into a new window
May 24th
It is very difficult to get back into
writing for my website after the last couple of weeks being away from my
computer, or at least away from the internet. I had enormous difficulty with my CBT assessment forms
recording Automatic Thoughts. It was rather overwhelming and I simply
had no time for anything else. I decided that perhaps this form of therapy was
not right for me. The psychologist was very understanding and said that
if I changed my mind that I should ask for another referral. One of the
problems was that I had been assigned to a primary psychologist, a
primary psychologist only provides therapy on a short term basis usually
to patients who are not chronically ill and for whom psychological
problems are likely to be only temporary rather than chronic, which is
not the case for me. These are the reasons that I wrote for my psychologist
which try to explain my difficulties in recording these thoughts:
I have found it very
difficult to record in this manner all of my thoughts in their entirety.
In fact these thoughts are only a fraction of the OCD and other negative
thoughts which pass through my mind. It has been very stressful and has
bought about in itself its own measure of depression and anxiety. There
are simply too many thoughts . Some of these thoughts are very complex.
For instance the thoughts concerning the compulsion to wash the tap
after washing my hands and than washing my hands again is a complex
thought not easily explained: The nature of this fear is of
re-contaminating my hands when I turn off the tap as of course I have
touched the tap with contaminated hands when I turned it on. If I do not
wash the tap my hands are again contaminated and I will than go on to
contaminate other things in my environment such as my clothes,
furniture, books, food and so on and on like a chain reaction which is
difficult to explain concisely or precisely. The fear is that
contamination will eventually be passed to myself, family and others.
Some thoughts and obsessions are even more complex involving a variety
of interwoven obsessional thoughts too complex to even describe. I feel
that my writing is nothing more than a crude approximation of what I
what to say as I can express neither the thoughts nor the feelings
behind any of my thinking processes adequately enough by either writing
or speaking. Also many compulsions are carried out without the thoughts
presenting, this is because these compulsions are so habitual and
automatic that the thought no longer presents itself and it is difficult
to verbalise what for all intents and purposes is merely an essence of a
thought, if indeed there is any thought there at all. Many of my regular
routine hand washing compulsions are of this nature. In such instances
the anxiety rating is low because the compulsion is invariably carried
out, if this where not the case the anxiety rating would be very high.
Indecision makes it difficult to rate my emotions and much time was
spent trying to do so and really in truth the ratings I finally decided
upon are rather haphazard. I have a constant stream of thoughts of an
OCD nature and other negative content, anxieties about my social
interactions problems, and general anxieties; it is impossible to
accurately record and rate all of them.
I have included in every instance both
anxiety and depression but it should be noted that depression and
anxiety are on going, continuous chronic: I have a constant back ground
of moderate depression with no precipitating thoughts with intermittent
bouts of a more severe depression which sometimes is precipitated by
either thought or circumstances. My anxiety is also constant in the
background, it too is increased according to thoughts and circumstances,
for instance the very sight of a dog will increase my anxiety to the
level where it becomes fear. It is also important to remember that
throughout the day right from waking I am beset with thoughts of a
morbid nature, death is never far from my thoughts in one way or
another. These thoughts are so numerous that to record them all is
impossible. I see most of my life through my fear of death, death
negates life, makes it feel pointless. Fear of the annihilation of my
consciousness, my sense of self is always in my thoughts as is the fear
of something happening to my husband and son, this I fear more than my
own demise, thoughts involving these concepts are never far from my
mind. I cannot list in detail all of these thoughts which flow like a
constant stream and in some way are involved in the other thoughts that
intrude, such as anxiety about contamination
Also I cannot write
concisely, I cannot clearly verbalise the thoughts which result in the
compulsions and other negative emotions. I cannot think how to express
my thoughts and it can take a while to compose a sentence which clearly
explains my thoughts. I cannot spell so I need to record in a note book
first than transfer to my computer. I am no typist; I cannot touch type,
I make numerous errors as I cannot coordinate trying to spell whilst
trying to hit the correct keys whist trying to compose a sentence. I
have also to correct my many mistakes, the kind the teachers would refer
to as careless errors. For these reasons it would be impossible to
present this to you to in hand writing as mistakes here are worse and
also my hand writing is illegible.. Moreover it takes me many many hours
to write because of my OCD concerns about making mistakes and writing
something that may be harmful or misunderstood. Writing is therefore
further hindered by checking compulsions. I know I have written much
about my OCD which you have read however this took many hours and much
of it was written previously months ago. It is in any case much easier
to write an account of my problems in the manner I have previously
presented to you in “My Story” from my website, the account I wrote
about my present situation concerning OCD and other problems, and the
account about my speculation that I may have Asperger syndrome. This
type of essay like writing is much easier for me. Also even though I
have said that it is easier for me to write than to speak, writing is
easier not easy. Communication of any kind is difficult for me and
both written and oral are difficult and filled with frustration
Headaches also
present difficulties as due to concentration these become more of a
problem when trying to record these thoughts which are often difficult
to put into words. I am also often too anxious and depressed, it is not
easy to find the motivation although I have struggled with this and have
done the best I can.
Some of the pages are not dated I could not go back
and do them after printing as I am so unorganised and my brain gets
tired and my thinking confused and as a consequence much time would be
lost. Neither are the thoughts in the sequence they occurred there is
not one day which contains every thoguht in consecutive order, or indeed
every thought. Because of the frequency of my thoughts I have often
forgot to record them and have added them later as it occurred to me
that I should have added this or that thought. To cut a long story short
the forms are rather muddled and disorganised. To be honest I found the
whole thing a huge ordeal which increased the intensity of my headaches
and stress levels, it also increased my feelings of inadequacy as it
does appear, from my asking others on the net how they coped, that none
have experienced the difficulties I seem to be having. For a few days I
gave up altogether. However I believe, as I have mentioned to you, that
other difficulties in addition to OCD, such as Migraine and daily
tension headaches, perhaps Aspergers syndrome and ADD and problems with
spelling and writing as mentioned above also in their own way bring
added difficulties. Regardless of the lack of a formal diagnosis of AS
and ADD I have many of the symptoms of both these conditions - I most
certainly have some attention deficit and an inability to organise, all
of these difficulties have been a significant hindrance.
Incidentally I have
noticed that because I am so overwhelmed with so much writing and there
is a deadline I have had to compromise my perfectionism quite a bit. Yes
it is very anxiety provoking, the forms are in such a muddle as I have
mentioned before and things have been repeated with entries included
twice, spelling mistakes and careless errors all of which are impossible
for me to correct in the time I have. I feel extremely anxious and
depressed about the muddled confusion on these forms. The last four
pages I have just listed some thoughts as they came and when it was
possible for me to record them.
Please bear in mind that all these
thoughts are only a fraction of the thoughts that pass through my mind
in the course of a day and are not representative of the pervasive
extent of my condition. Many thoughts have not been recorded simply
because I have not had to confront certain situations, for example there
is no mention of my inability to go out alone which is due to not being
able to cope with my OCD and the fear of having a migraine attack and
not being able to get home.
Now I do not want
anyone to be put off CBT and I am rather regretting not continuing but I
really thought such a short course of therapy would only skim the
surface and when left to my own devices the whole thing would start all
over. Also you should be mindful that it is in fact not your OCD
thinking that is making the decisions as I think may be the case here.
Your mind will tell you all sorts of reasons why you cannot do this or
that and afterwards in retrospect you realise this. Sometimes there is
no clear cut dividing line between OCD thinking and your normal
thinking if indeed there is any normal thinking left. Normal thinking
seems only to arise in hindsight when it is too late to reverse your
decision and than you are left with the torment later when you have
realised that perhaps your decision was based on OCD’s delusional,
negative and very destructive thinking. Often though a rational
perspective of another person is needed, otherwise it can be days,
months even years before we can spot the OCD thinking and how it has
really controlled the decision we have made. This kind of OCD covert
pure O thinking is less obvious than is the thinking concerning for
instance contamination fears, it is more subtle and not easily spotted
and you can be carried away in what can only be described as psychotic
episodes when it appears that all insight has failed you and you are led
away into all kinds of negative delusional thinking.
The following book was recommended to me by my psychologist. I have not
as yet purchased a copy but intend to do so. The book is entitled, Mind
Over Mood: Cognitive Treatment Therapy Manual for Clients by by
Christine Padesky and Dennis Greenberger.
May 25th
Continuing with the subject of the last entry concerning OCD and how
difficult it can be to differentiate between rational thoughts and those
that are of an OCD nature. Again it is the less obvious thoughts which
cause the greatest problems for me, at least now. In the beginning of
the full blown emergence of my condition this was not the case when
indeed religious thoughts that where obviously of a neurotic nature all
seemed very real and I was carried away by them for over six months
before I began to gain some insight into the fact that such thoughts and
consequent behaviours were not normal and that I was having some
problems for which I needed help. The religious thoughts do remain and
still today despite my insight I continue to experience problems and
loose contact with reality and persist in giving credence to the but
“What If” way of thinking and I remain unable to go against the strong
compulsions that arise from these thoughts. And all this despite the
fact that I am now agnostic. Such is also the case concerning my
superstitious anxieties with the number which I cannot now right down no
matter how much self talk I give myself concerning the illogical down
right stupidly of this thought and consequent compulsions.
In recent years thoughts of a less bizarre nature have also plagued
me with much anxiety and these thoughts concern more usual day to day
thinking, like the religious thoughts these are nonetheless
inappropriate however unlike the religious intrusive thoughts these
thoughts are difficult to assign a label of normal or abnormal and I can
be in quandary of indecision.
A while back we needed to travel quite a long way; I was
worried should my migraine medication stop working as I had been taking
so many doses in the last few months due to a sudden and drastic increase in my migraine attacks.
There is an alternative medication which consists of a combination of Codydramol and Lorazepam. This is less satisfactory than my regular
migraine medication Diclofenac because this combination makes me sick
and also lorazepam is very additive and the effectiveness wears off
quickly, but it is okay in the short term for a few days should I
require it as back up for for my usual medication. Now I was anxious to ask
my doctor because on a previous occasion I had been turned down for a
prescription of lorazepam; the doctor, who was only a stand in, had not
bothered to ask why I needed them but gave me a lecture about possible
effects of addiction and brain damage, he assumed as a sufferer of an
anxiety disorder I was popping pills to ward off an anxiety attack which
was not the case. I was at the time simply not able to express to him
articulately why I needed this medication so this was one reason for my
hesitancy. Another reason was my notion that the doctor would think this
a classic case of castastrophising, obsessing about the possibility of
my medication not working and that to request back up was neurotic. Was
this an OCD motivated request or was it sensible logic, the kind of
thing a non sufferer would do? I really ruminated about this for days
ahead of the appointment writing it down precisely certain I was being
neurotic and that my request would be denied. It does not sound much in
the scheme of all things OCD but to each his own as it where, for me
this problem generated a huge amount of depression and this consequence
was of course in itself irrational. Although because of the
decrease in my ability to orally articulate I simply handed the doctor
what I had written. She seemed rather genuinely nonplussed, kind of
surprised
that I was exhibiting obvious anxiety about requesting this medication
which she said was indeed a very sensible request particularly if
getting medical attention would be difficult as could well be the case
in an area in which I do not live. In fact many people have two types of
medication for migraine, one as a back up but, I hasten to add,
this must be done through your doctor as of course you cannot take
certain types of painkillers together: for example you cannot take two
types of Paracetamol even though they are included in separate types of
medication as this would be an over dose. So in this case the notions
which I thought where irrational borne of OCD where in fact considered
sensible by my doctor.
One year whilst on holiday to Glastonbury in Somerset we ascend the Tor on a cold and misty morning. This is another aspect of OCD which I
must mention another time and that is the neurotic compulsion to feel
that one has to do certain things because in the past one has always
done so. For instance in this case if we do not ascend the Tor which is
quite a struggle for me in recent years I feel uncomfortable as though I
am missing out on something and the holiday is not satisfactory as a
result. Anyway this is not the point I am making right now. The tower
which crowns the top of the Tor, which is an ancient monument the ruins
of St Michaels church, is so often subjected to mindless graffiti and
often much litter accumulates. This particular morning inside the tower
was a pile of discarded bottles of alcohol just left there in a heap. It
did not for one minute occur to me that it was my responsibility to pick
up these bottles even though I have this kind of OCD. This was possibly
because of my contamination fears; sometimes in the case where two
opposing OCD behaviours present the stronger anxiety, obsession and
consequent compulsion will cancel out the obsession and compulsion which
is less anxiety provoking. Besides I was huddled in the corner trying to
avoid two somewhat hyperactive dogs who where running with great
exuberance here there and everywhere. The owner a friendly women,
although I had to make a comment about not wishing the dogs to come near
as their paws where muddy, decided it was her responsibility to collect
these bottle and take them down to the bin at the entrance to the
footpath. Now had I done this both my husband and son and no doubt
anyone familiar with OCD and the sense of hyper-responsibility many
sufferers experience may have said that this was not my responsibility
and that picking up these bottles, which was no simple task as there where
at least a dozen or more, putting them into two carrier bags and struggling
down the Tor with them was inappropriate and a classic example of OCD
over responsibility. What do you think? Can you see the dilemma in these
subtle, less obvious types of OCD. In such a situation as those cited
and many others it is sometimes not possible to know if the thought
arises from OCD or more rational thinking. After all this lady most
likely lived there in the town but in any case few people would have
taken these bottles down on this very windy day. In some ways it depends
on perspective, if one is carrying the bottles down because one has a
fear that something awful might happen if one does not do this than it
is OCD. However the problem remains regardless of motivation: when do
you know whether your actions are appropriate or otherwise? Without OCD
would you feel so responsible as for instance in the case of an
occurrence a couple of weeks ago when a lamb was in the middle of the
road in danger of being killed or causing an accident and killing
others.
The lamb came running out of the undergrowth, the poor little thing was
in a state of absolute frenzy. It had escaped the confinement of a near
by field where it's mother was bleating in distress and it could not
remember how to get back and was running in frantic panic into the road.
Passing traffic ignored it barely slowing down despite my frantic waving
trying to indicate a problem. Prior to this both my husband and son
groaned with the anticipation, the knowledge that I could not drive on
by. But what to do, there was no farm house in sight. I could see no
where from which this lamb could have escaped. My husband insisted it
was impossible to try and get it back in the field but taking no notice
I walked along the road anxious not to leave it to fate both for OCD
reasons of anxiety about failing to take action and for genuine concerns
for the lamb. I had of course no idea what I was going to do as OCD
contamination fears would prevent me from touching the animal although
in dire circumstances I may well have done so. Whatever it would not be
easy to get this lamb back in the field, like all members of its species
it was extremely timid. Neither my husband or son had gotten out of the
car but fortunately for me a cyclist came a long and dismounted. I
wondered why he was stopping, it simply did not occur to me that he too
had stopped to try and help this lamb because mostly people just pass
by. By this time both my son and husband had joined us and we tried to
corner the lamb. The cyclist managed to trap it in the undergrowth and
pick it up and leaning over the fence to place it back in the filed
where it rushed with haste to its frantic mother for a feed. The cyclist
had cut himself and I was concerned but had no way of helping but I did
worry about this feeling somehow responsible, but even if we had not
been there I am sure that the cyclist would have stopped anyway.
Again if no one else had stopped it would have been considered as taking
responsibility that was not mine to take. Yes maybe OCD thoughts did
play a part in the whys of the matter but where my intended actions and
concerns justified. The cyclist did not stop to analyse his actions,
or consider whether it was his responsibility or not But with OCD in
this sort of situation it is not easy to know what is normal behaviour
and what is not. Quite honestly people generally speaking need to think
that perhaps it is time that they considered that things within their
lives, in the environment, in their interactions with others are perhaps
their responsibility instead of leaving it up to some one else.
During childhood and early adulthood I lived in the midlands. In
those days when there was a heavy fall
of snow everyone went out and swept the snow from the pavement in front
of their house, the only exception where people who where too old or
disabled to do so, but more often than not a considerate neighbour would
do this task for them. It cleared the pavements and made walking much
easier and safer. Now no one does this. When I went to live in Sussex
the first time it snowed when we had our own home I swept the snow away
from the front pavement of both ours and our neighbour's house. But no
one else did and eventually also in the midlands this happened less and
less often. People today think it is always someone else's
responsibility to come a long and sort it out. I know with OCD being
over responsible can become very intense until you convince yourself that
everything is your responsibility and as other people get to know this
you can find yourself taken advantage of. For people with OCD it is
often difficult to know where to draw the line concerning what is our
responsibility and what is not, is it my responsibility or is it just
the OCD telling me it is. The same applies with other less obvious
manifestations of OCD when it is not clear which thought and subsequent
action rises from our OCD and when it is in fact normal behaviour. Yes
if the thoughts that motivate the behaviour have an OCD type reasoning
behind them yes it could well be an OCD thing and inappropriate but this
may not always be the case. You can still have OCD thoughts that make
you feel its your responsibility and the thoughts come telling you that
something awful will happen to your family if you do not do this or that
and fear takes over and you give in to this fear and do whatever.
However just because the thoughts have intruded does not necessarily
mean your final actions where inappropriate. These thoughts are now so
habitual that they crop up in any situation where you feel that
something is your responsibility. So in some instances it is not easy
for the person who has OCD, who is trying to cope with their disorder
and trying to overcome its compulsions, if he or she is unsure that the
action they are about to take is due to OCD and therefore inappropriate.
Was it over-responsibility to rescue the lamb? The cyclist didn’t think
so. Was it
over-responsibility to collect the bottles from the top of the Tor, the
dog walker did not think so. One of the greatest difficulties when
challenging OCD behaviours is knowing what is normal and what is not and
even with the more obvious contamination OCD manifestations it can be
very difficult to recall how you once behaved and what is now normal for
you.
When I was a child we had only one bath each week and washes in
between, except for the fact as a child and most certainly as an
adolescent I did not care to stand in a freezing unheated bathroom and
wash every day. I am ashamed to admit this I was not a very clean
person, my time was for doing other things washing was not one of them.
Most certainly hygiene and worrying about germs was not a problem and I
recall being fascinated when in the sixties the newspapers where full of
news articles about Howard Hughes and his strange obsession with germs.
Indeed I remember saying to my mother that I can’t imagine being
like that, we all thought his behaviours truly bizarre. My mother used to
have to nag both my sister and I into having a bath the thought that one
day her daughter would become like Howard Hughes would not have occurred
to her at all. OCD had of course reared its ugly head but contamination
fears where at that time not its manifestation. In early adulthood
before the emergence of my full blown OCD which went on to include
severe contamination OCD I was a little more hygienic but certainly not
the way most people where in the mid seventies. So if I where to
challenge my OCD behaviours which I have done two or three times in the
past, including a three month stay in hospital, I found that the
greatest difficulty was not knowing what normal behaviour was concerning
many of my OCD behaviours and this I believe has had an effect upon the
progress I made or rather didn't make. Yes I made some recovery but it
was never sustained the OCD always came back sometimes to a lesser
degree but than a new obsession would rise its ugly head and the whole
process would begin again. One of the biggest problems is my inability
to generalise. When I found out what was normal in a certain situation I
could not carry this over and adapt it too a different situation and
would have to check if this or that was normal and this in itself became
a compulsion, OCD is a very pervasive complex disorder not easy to cope
with without help and even with help it can be a struggle to contend
with the way it morphs, reintroduces itself into your life and once the
support is taken away, which it invariably is, and you are left to your
own devices it once again takes over you life. This is my experience, it
may not be the same for you there are a number of people for whom
unfortunately for reason not known seem to have intractable OCD.
May 26th
We have all gone down with some dreadful infection. I have not felt
so ill for years. The infection has gone to my chest and I have felt as
though I have been
torn apart by coughing and sneezing which makes it difficult when you
are prone to chronic headaches. Despite my contamination OCD I rarely
get ill - at least not now in adulthood and do not recall having flu
ever, well not until now if indeed this is what this is. In childhood
however it was quite a different story and I had a good number of very
serious and potentially life threatening conditions including pneumonia,
whooping cough and even scarlet fever. I had the awful thought this
morning that now as I am getting older I will be prone to some very
nasty illnesses.
Life right now is very difficult and the onset of this illness is not
making things any easier. I in fact had the beginnings of this when I
had to go and see the psychologist and this did not help me to think
clearly and now also I worry I may have passed on this infection to her.
I did not actually turn down treatment in so many words, at least not
at the beginning but merely said that I found it difficult to fill in
the forms and that the cure seemed worse than the disease which was a
poor choice of words, but because of my social ineptness sometimes I do
not always say the most appropriate thing, or at least it could be
expressed in a better way, and finish up giving the wrong impression. As
soon as I made this remark I regretted it even though I had practiced
how I was going to express my problems. All I really wanted to do was
point out the difficulties I was experiencing, at that point I had not
made any final decision not to continue. I had been rather confused
unsure whether or not at this juncture I had been accepted for therapy
and this sapped my motivation thinking that all this very time consuming
writing could be for nothing. Now do remember I have communication
problems and although writing is easier than speaking it is by no means
easy
It takes me an enormous amount of effort to come up with the right
words to produce all this writing. It is by no means as easy as you
might expect, it takes many many hours. This is even more difficult when
I need to express myself concisely as would be the case with the
automatic thought forms. The psychologist gave me an example of how I
would express my thoughts using a recent encounter with someone on the road who overtook us in a dangerous manner
as a case in point. I can't
recall her exact words but it was a couple of very short sentences along with the possible
emotions I may have experienced such as anger and stress, she did not
hesitate struggling to find the right words, there was no delay in
response,
instantly she found the appropriate way to express this and she finished
by saying :" It is as easy as that". But sadly for me it is not,
although I did not say so. It would take me a long time to formulate the
words or to think of the right way to phrase the sentence, such for me
is not automatic, it takes time for me to process information. Than of
course there is the OCD doubting and checking compulsion which does get
in the way and which I can't just disregard because I am in a therapy
situation, as of course if it were that easy to do so I would not need
therapy in the first place. Over the last two weeks or so it has
been a nightmare of frustration. I do now obsess rather over that last
conversation and hoped that she did not think I had gone for a diagnosis
of Aspergers and nothing else. I worrying I might have given this
impression. This of course was not the case as regardless of diagnoses
all issues can be addressed indeed you do not have to have any specific
condition to benefit CBT. However I
believe that to treat any patient effectively all conditions have to be
diagnosed and the patient treated as a whole and at first I admit I was rather
disappointed. However I got the impression that a psychologist offering
CBT is not really concerned about diagnosis seeming to accept the ones
you previously have but not willing or able to provide further diagnoses
this I imagine is under the remit of the psychiatrist.
My psychologist in fact could not give me an assessment for AS. At
our first session she asked me to explain my situation but I can not
recall how, it was not a direct question, and in retrospect I get the
impression that perhaps she was not asking me to list my diagnoses as
such. In fact I did not understand exactly what was required so I told
her about being formally diagnosed with OCD and depression but also
mentioned other disorders which I suffer with such as GAD, hypochondria
and finally my social anxiety problems which at this preset time I
consider may be Aspergers syndrome, for reasons of which you are now
familiar. The last of which I rambled on a bit about anxious to justify
what may seem in itself a neurotic notion, a kind of variation on
hypochondriacal imaginings. I somehow lost all confidence that my
consideration that I may have AS was valid. It is amazing how quickly we
can loose self confidence when the time comes and we have to justify
such reasoning. During the week preceding this appointment I had
obsessed about making this request and asking for a assessment writing
in some detail why I think I may have AS. But it was not until I was
sitting in her consultation room that I final made the decision to broach the subject. I
than gave her my papers, extensive writing concerning my problems 38
pages of A 4 single spaced. She accepted them without much comment
seemingly not to appear surprised or overwhelmed by the amount of
writing, all my worrying about overdoing this was all for nothing. Which
just goes to illustrate how much we can spend our lives worrying about
what might or might not happen particularly concerning other peoples
reactions. Psychologists are just like anyone else, each is an
individual with his or her own ideas and just because I had difficulty
getting the previous psychologist to look at my writings did not
necessarily mean this would be the case every time and from past
experience it had not been, but I had focused on the negative experience
rather than the positive one and had worried and obsessed unnecessarily
in this instance. She did not seem that taken aback with this idea
concerning AS but told me that she was not qualified to make the
assessment the only person who could do so was the psychologist who had
decided not to other me therapy. I did not know what to say. She further
suggested that what I may think of as the symptoms of AS where in act
symptoms of anxiety - at least that was my understanding at the time,
however I cannot be sure how accurate my assumptions where. Yes indeed
there are similarities and sensory issues can be the result of high
anxiety however there are other symptoms that could not be related to
anxiety and more accurately fit the diagnosis of AS but at this point I
had not had an opportunity to explain these symptoms and of course the
psychologist could not read my notes while I waited so she was not aware
of the facts behind my reasoning concerning the possibility I may have
AS.
The subject of assessment for AS was not mentioned again during the
subsequent four sessions but she had read what I had written which
included : 16 pages of My Story from my website; 10 pages concerning my present situation
with OCD; 4 pages about my migraine, IBS and fibromyalgia and my 8 pages
stating my reasons for thinking I may have AS. She had read all this
understanding that I was better able to explain my circumstances in this
way and would have addressed all of these issues not just the ones with
a specific diagnosis. I got the impression that in principle CBT in
general address the problems and is not interested in specific
diagnoses. However I think diagnoses are important, sufferers of
these very pervasive debilitating condtions find comfort and a sense of
belonging when they are diagnosed, most people need to identify with
others who are experiencing similar difficulties with life. They need to
put a label on why this or that is happening to them, why they feel
alienated, different from others, why life does not seem to unfolded the
way it does for normal people. Without a diagnosis you are simply not
confident enough to present yourself for instance at support groups or
even on-line groups. I find it disappointing that still after so many
years mental health professionals just do not understand this. I can
appreciate the CBT approach of not focusing on specific diagnoses and
indeed this is a good idea for other issues often need addressing which
would other wise be overlooked if attention was only upon specify
diagnosed conditions. And indeed this has been the case throughout
my life when it appears that my social anxiety was never really
addressed not even during the three weeks that I spent in hospital.
Most sufferers life a label it is as simple as that and
often just knowing what is wrong with them and that there are
others in similar position can do much to enhance their lives and speed
up the process of recovery or improvement. I was better able to
understand my condition when I was formally diagnosed in hospital as having OCD. I
was therefore in a much better position to join support groups and find
appropriate information.
I think this psychologist may have given me an
asessment if you had been qualified to do so but really that is not what
CBT is about. She was at all times very pleasant and had sympathy for the difficult
life I have had. She had been prepared to at least find ways of helping
me cope more effectively but could not address such a long standing
problem in eight weeks. Yes indeed I do have regrets and feel that once again neurotic
thinking has intervened however I did find my situation rather confusing
and felt as though somehow I missed or misunderstood quite what was
expected and I was not sure if I was still undergoing an asessment or
had began therapy proper. I felt very guilty as though I had let
her down.
I feel very awkward going back to my doctor who had requested that I
see someone as soon as possible and now feel guilty and uncomfortable as
though it may appear as though I do not want get better, as this is not
the case.
I think that to get the best out of CBT you need to know something of
what to expect. I asked my psychologist the kind of person who would not
be suitable for therapy, and along with those seeking a diagnosis you are
not suitable for therapy if you have a learning disorder which is of
course obvious if you cannot read or write CBT is not possible. There
where other reasons such as psychotic illnesses - in fact there was such
a long list I lost concentration and spaced out. I felt guilty about
that and hoped that she had not noticed but most people do it can be
quite obvious at times. Yes guilt was mentioned on the emotions section
of my automatic thoughts list a good number of times. Certainly my inability
to express myself would be a hindrance , but perhaps I was looking too deeply into this after all
ones writing does not need to be explicit, eloquent or grammatically
correct it just has to express the situation and the emotions
experienced. Perhaps I was making it more complicated than it really
was.
May 26th
One of the difficulties that people with anxiety disorders have about
appointments is waiting for his or her turn in the patient waiting room.
My son gets so stressed by sitting in waiting rooms that he delays going
to see his doctor. This has also been a significant problem for me now for some time since my
sensitivity issues became more accentuated. Yes
partly it is impatience particularly if you are having an unpleasant
examination and want nothing more than to get it over and done with or
you are overwhelmed by the close proximity of the other patients, the
noise from the incessant ringing of telephones, conversations and
nowadays increasing the babble of radio or TV. The coffee table upon
which there was once a selection of magazines is generally gone, it has
been relapsed by radio and TV. Our local hospital has two TVs in the Ear
Nose and Throat departments waiting room. Seats are arranged directly in
the front of the TV. You enter and most people are staring at the TV
like a bunch of zombies. I find it unsettling why can't people simply
wait their turn read a magazine, a newspaper or a book or just sit
quietly. Often when I go to accompany my husband for his appointments at
the hospital I have to go and wait for him in the car park as I just
can't cope with the noise. Do people like the addition of TV and radio
in the waiting room. One clinic there is a drone of a middle of the road radio show interspersed with the babble of the presenter the sound
quality is poor it is nothing more than an annoyance at best, but a source of
anxiety at worse.
The worse waiting room I have had to endure was the one in which I
had to wait to see my psychologist. The medical centre where the
appointment was to take place was new to me, at least I have never been
inside. It was a doctor’s surgery in a local village and not my own
doctor’s surgery. I find I have nowadays an anxiety about anywhere
unfamiliar a relatively mild anxiety nonetheless it all takes its toll
on the overall anxious feelings. The waiting room and other surroundings
was more like a hospital, and an old fashion one at that, than a modern
doctor’s surgery and the reception area was more like that in a bank
where the receptionist was enclosed behind glass. For my first
appointment I was early, I doubted I had the correct location even
though I had checked it several times . However I am always early,
anxious not to be late I go to appointments ridiculously early, it
irritates my husband who of course has to accompany me and stay there
during the appointment as I panic if he wonders off and I happen to come
out of the consultation earlier than expected. So he has an hour and a
half stuck in this dreadful depressing windowless waiting room rather
like stepping into some time warp and finding oneself back in the
sixties with the additional paranoia of the added securities that
despite the old-fashioned surrounding is a more modern phenomenon, where
shouting through glass now seems commonplace. I hate to have to shout
through glass it is stressful and takes away your privacy.
I needed to use the toilet, of course I have both IBS and irritable
balder, my tension was though the roof such is therefore inevitable. I
stood outside the toilet for about five minutes like an idiot, having
tried the door and finding it locked , until I am told that I needed to
get a key from reception. I could not believe what I was hearing I
felt like bursting into tears. Apparently the toilets where locked
because children came in and made a nuisance of themselves in the
toilets. So now I had to go to reception and wait in a queue for at
least five minutes to get the key! I really felt like I wished to turn
round and go home. Mostly in such stressful circumstances I will need to
use the toilet two or three times and each time having to ask for the
key was a nightmare for anyone who is anxious. Surely it could be more
acceptable, if this ludicrous over reaction to kids messing about in he
toilets was necessary, easier and more pleasant for patients if the key
was simply left on a hook near the reception. People with bladder
problems also could find this inconvenient and so could very young
children and older people who often need to go urgently. The next
fifteen minutes dragged on seemingly interminably until finally I was
asked to go upstairs where I would be met by the psychologist. This
doctor's surgery here appeared even more hospital like and an old
fashioned one at that. The main door at the top of the stairs could not
be opened from the outside I had to wait for the psychologist to admit
me. Indeed I most definitely consider this just about the worst place to wait for an appointment the only
plus side was there was no music, radios or TV! However thereafter I
arrived exactly on time to avoid having to wait too long. The toilet
situation though made a stressful appointment more stressful, I dare not
have a drink until I had arrived home, so that morning I did not drink
until about 11.30. I can't help but wander, do these people think
these ideas through before introducing them, a doctor's surgery of all
places surely someone should realise that having to get the key would
make things difficult for a good number of people. I cannot understand
why no one challenges these ill thought out solutions to what really is
only a minor problem. The reception was after all right near the
entrance surely a better eye could be kept on who enters the building
My personal award for the best waiting room is the dentist. No music,
radio or TV Pleasantly furnished, light, but not fluorescent
lighting, natural lighting, mostly no other patients because he is the
only dentist so its ideal which is a good thing considering my dentist
phobia. As silly as this may seem to others not effected by such things
as noise, lights and so on, but the waiting room is one of the reasons
we choose this dentist. When you are already very anxious the last thing
you want is noise and racket. Our previous dentist in Sussex even had
the radio in the consultation room. I wonder if anyone has asked the
patients what they want.
May 28th
Its bank holiday Monday here in the UK. It looks from my window more
like a winter holiday. Here in the last couple of weeks the weather has
been miserable, cold and wet. The last few days have been particualry
cold the chill in this room when I entered took me by surprise this
morning, I have rarely felt it quite so intensely even during winter.
Awhile ago there was a shower of hail.
We
all continue to be very unwell, yesterday I was on the verge of
hysterics. I am used to not being well with the headaches, aches and
pains and so on but this infection that has gone to my chest is just
awful, I could barely eat yet felt hungry, I felt weak and weary just
dreadful . The weather adds to this misery chills you right inside. The
promises of a long hot summer now seems very far away as is the usual
talk of global warming and melanoma each time the sum comes out. It does
seem these days does it not that society in general always focuses on
the negative and when something positive occurs like a pleasant warm
sunny April all you hear on the news and current affairs programmes were
the dire implications of global warming and endless advice about
how to avoid skin cancer. Apparently no sun tan oil is adequate and an
article in the medical journal the Lancet advised wearing thick dark
clothing such as denim and black T shirt and wear a hat. Yes of course we need to be
aware of the harmful effects of the sun but do we have to add so much
negativity each and every time there is an improvement in the weather.
It is very difficult for those of us who are in any way easily depressed
to have our depression and tendency towards negativity validated by
society. If the sun ever shines again which I am sure it will, although
for us to day it might seem it never will, can we not enjoy it without
the constant reminders of global warming and other negative issues.
May 29th
I am finding it increasingly difficult to include entries for my blog
or any other written material on my website because of all the checking
and ruminating about content. I am also concerned about so much negative
content; while everyone raves about CBT saying it is the best thing
since sliced bread I can't cope with it and I feel not only a failure
but also that it might not be such a good idea to write so much about
why things did not go the way I had hoped. Mind you there was so much
more I could have written but some things remain private as they do for
anyone and therefore no one should make a decision about CBT based upon
my experiences or anyone else's. I think I reveal far too much of
my life sometimes and at times this too can make me feel rather
uncomfortable. I also find it difficult to find some positive content to
counter balance some of the more negative aspects of my personal
ramblings but unlike a writer of for instance a current affairs blog, a
writer of a personal blog of this nature cannot always find new or
positive content to include and I am often stuck with nothing much
to say other than the negative occurrences in my life which concern the
conditions from which I suffer.
I would like to publish entries as they are completed instead of in
batches after endless checking and obsessing. But checking and obsessing
is not the only problem, it takes some organisation to include daily
entries or to publish entries as they are written and I feel if I
attempt this I will actually include fewer entries. My
organisation skills are non existent. My husband recently bought me a
pill organiser, a plastic box divided into the seven days of the week
into which you put each day's medication so you can see if you have
taken your pills or not. Just lately I either forget to take my
medication or I take it than minutes later doubt I have done so. A good
idea you might think and in theory yes it is for most people unless you
have ADD. I simply can't get this box organised; I managed once for a
few days but got flustered and took pills from the wrong days. It has to
do with lack of attention, not being interested in routines which are
boring and my mind is everywhere except focused upon what I am supposed
to be doing at the time. I am finding everything even taking pills is an
irritating interruption, you know the kind of feeling where there is
always something do be done, lots of little things that consume your
time yet not give you any satisfaction.
Continuing the comments about waiting rooms there is one thing I
should say and that is for the most most part the staff are always
pleasant and helpful. Behind what may appear negative there is often
something positive. And we should also bear in mind these things are not
done to annoy us or anyone else. Unless people complain it is unlikely
that things will change. I do not believe that anyone has any
theory of mind, no one knows what it is like to be another perosn, no
one can know how you feel or what your views are about music or a TV in
waiting rooms or elsewhere unless we complain or make some comment.
Although these things are not done to annoy us the fact remains that the
level of noise in public places does annoy a lot of people.
Maybe there are times when we cannot say anything very positive but
instead we can take positive actions. Here are a number of urgent
actions you can take to help wildlife from campaigns organised by the
IFAW. Here is just one of these campaigns which mostly involve signing
sending a letter or e-mail which takes only a few moments. You do not
have to register to take part.
"Bidding for
extinction
eBay™ is the Internet’s single biggest shop window. And as this
report indicates, national websites run by eBay are being used as one of
the main channels through which illegal trade in wildlife and wildlife
products is conducted over the Internet. A comprehensive and alarming
failure by eBay to stop this wildlife trade is allowing users to buy and
sell wildlife products made from some of the world’s most endangered
species."
"Please take a moment to send a letter to eBay corporate
headquarters, urging eBay to enforce a complete global ban on ivory
sales immediately."
To help in this and other urgent actions please click:
Take Action.

*
Disclaimer :
No responsibility is accepted for the content of external links
including blogs:
Concerning blogs : Although I have initially looked through the
recommended blogs in my blog roll I have not read every single entry and
have selected each on its overall merit: interesting regular entries .
However the comments and opinions of the respective blog owners do not
necessarily reflect my own opinions.
*
Contact
I will endeavour to reply to all e-mail, however please bear in mind
that I have a number of quite debilitating illnesses and there may be
times when there will be considerable delay. Also I will not
publish anyone's comments, as appears to be the procedure
with blogs, without permission of the author : If you would like me to
publish your comments please indicate clearly at the end of your e-mail.
All comments are welcome including polite constructive
criticism and difference of opinion. However I reserve the right not to
publish anything that I consider would be offensive or in any way of
detriment to anyone particularly those who sufferer with the illnesses
included on this web site.
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