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August 1st
My husband is standing
outside we are preparing to go out for a day trip, he is talking to
a man whom I do not recognise. My first reaction is to retreat
inside and wait until the conversation is over because of my social
anxiety. However I hear mention of the factory and reference to the
noise nuisance and feel compelled to make some effort to find out
what is going on: do I have an
ally - often I feel that I am on my
own with this problem but from what I can gather from this
conversation there are others who may be experiencing problems, also
this man is a new person, someone I have never met before. So I
gather my courage set aside my social anxieties albeit with
difficulty, reminding myself that if I do not I will be tortured
with regret and beat myself up for once again letting an opportunity
to do something about this problem slip by because of my social
anxieties, and I step outside to talk with this person. After
interrupting with regretfully little social grace such as hello I
proceed to ask this person about his problems with the noise. As the
conversation goes on I mention the lady at the end street who has a
letter from the council concerning an agreement to limit use of this
machine I also say that she and I are the only people who seem
bothered by the noise.
After he leaves I ask my husband who this person is,
a new neighbour perhaps? No to my consternation and deep
embarrassment it turns out I know this person, he is the husband of
the lady I referred to who also is effected by the noise. I have
spoken to him upon several occasions. But I did not recognise
him. I felt so embarrassed. During our trip I ruminated about what
he would think: did he know I was referring to his wife, did he know
I did not recognise him or worse did he think I was crazy! I went
over and over again and again who said what to whom, did he make the
connection, perhaps he had not really taken in what I had said after
all people do not listen you know, I mean really listen. Perhaps he
did not realise I was referring to his wife, perhaps he did not
realise that I did not recognise him. Such incidents make my social
anxieties more difficult. Sometimes when I have to go out, for
instance to get in the car and I see a neighbour passing by I am not
sure if to address him or her, whether to shout hello, smile, wave
or ignore them. Often I err on the side of caution and wave or say
hello whatever even if I do not recognise a face only to be ignored
or stared at as if I am nuts.
Returning from our trip, an harrowing outing of
exhaustion fatigue and anxiety on this very very hot day, as we are
getting out of the car I hear the pip pip of a car horn as a red car
passes by. I look directly in but do not recognise the driver so
make no acknowledgment thinking that perhaps he is sounding his horn
to attract the attention of someone else. My husband than tells me
that this person is our neighbour right across the street! Result:
more anxious rumination, the anxiety here is that people will begin
to think of me as rude, unsociable or simply just odd and again for
the second time in one day my social confidence is undermined. This
is a problem I have had for...well as long as I can remember
although it is only relatively recently I have become more aware of
it as a problem rather than just a quirk or an occasional
occurrence. This problem may have been the reason that I earned the
reputation of being rather reclusive, standoffish or plain
unsociable. Some years ago my immediate neighbour whom I managed
to recognise because I saw her often ( apparently I have to see
someone most days to able to recognise him or her and even than if
this person is seen somewhere unexpected I may fail to recognise
them even after knowing them for years!) told me that I would walk
past people in my street and ignore them. Other neighbours had told
her this.
Unless I see a person regularly and he or she is in
context i.e. my next door neighbour being... well... next door rather
than roaming about in the Yorkshire Dales or other place where I do
not expect to bump into him or her I often fail to recognise this
person. This condition is becoming much worse in recent years.
Yesterday really bought this problem to the fore and I am
ruminating, obsessing and gradually becoming quite hypochondrcal
after looking up the symptoms and causes of Prosopagnosia the name
given to the problem of not being able to recognise faces
Since reading extensively about autism for the
reasons mentioned elsewhere on my blog I believe that I have a mild
form of Prosopagnosia. In fact realising this is one of the reasons
I consider that I have at the very least significant autistic
traits. Prosopagnosia sometimes also known as face blindness or
facial agnosia is characterised by the inability to recognise faces.
In people with autism including Aspergers syndrome this inability
may be one of the reasons for social impairment, it is most
definitely an hindrance in social interaction. The condition of Prosopagnosia can be mild, for example an inability to recognise
familiar faces, to the extreme of not recognising the difference
between a face and an object or even one’s own face. I believe as I
have already said the cause of my inability to recognise familiar
faces is due to having autistic traits or even being on the autistic
spectrum. However whilst trying to find some suitable website links
to add to this entry I am now having quite an episode of
hypochondria, an anxiety disorder that is more prominent in my
thinking than I perhaps realise. Having read that Prosopagnosia can
result from a stroke or brain tumour or other degenerative disease I
am now worrying that any one of these more dire causes could be the
reason that my prosopagnosia has increased.
So what is the point of all this? Well now even I am
confused after all this time sitting here with a splitting headache
after a huge fight with my husband propitiated by another very
complex OCD issue upon which I will not elaborate. (There are so
many such issues that I would be sitting here all day if I were to
tell you about them all and if I where sitting here all day well
these incidents would not occur would they because I would have been
occupied elsewhere: i.e. sitting here rather than in a
situation which would give rise to OCD issues that effect others. Mind mumbling logic I know but that is how my brain
works, complex, analytical, ruminative, obsessive-compulsive
and neurotic.) I am actually wondering myself what my point is in this
rather confused ramble. I guess it is to do with one of my big
obsessions which my mother used to refer to as “bees in my bonnet”
and involves the idea that co morbid or coexisting conditions may
have an effect upon my OCD and may explain for me why my condition
is intractable. I personally believe that the more co morbid
conditions one has the more difficult it is to cope with or overcome
the primary condition, which for me is OCD. It appears to me to be
simple logic.
Yet in the past for the most part these coexisting
conditions have been overlooked or even ignored when an assessment
for treatment is made, this was particularly so during my stay in
hospital. Please note for the ease of description I refer to autism and
aspergers as conditions, nonetheless I recognise that there are many
people who consider that autism and particularly aspergers are
simply other ways of being and some “sufferers” do not consider that
they have an illness or condition. To some extent I agree with this
perspective although the common problem of digestive difficulties
amongst people with ASDs may indicate that there is a proponent of
illness present in some way. Also parents of a child who is totally
unresponsive and sits in a corner rocking may see this as an
illness, indeed a severe disability rather than a way of being. Notwithstanding this consideration if
valid it does not negate the notion that if one was an aspie or
other autistic that this way of being/condition would not of course
effect his or her OCD in much the same way as OCD is effected
according to neurotypical ways of being. It would simply mean that
autism may effect your OCD in a different way than it does a
neurotypical and you may need a different treatment approach or at
the very least your autism should be taken into consideration. In
fact OCD is manifested according to many different ways of being
according, to your personality, your likes, dislikes, your world
view ,your individual and unique perspective and this applies to
neurotypicals and autists alike. If indeed autism is a way of being
rather than an illness, disorder, syndrome or condition in the same
that being introvert extroverted, friendly unfriendly, happy
unhappy, caring uncaring, creative unimaginative and so
on are ways of being than of course OCD will morph to fit into ones
individual way of being autistic as it does any other. So it is
indeed safe to say that autism will effect your OCD and vice versa.
Particularly social interaction, sensory dysfunction and Prosopagnosia which effects ones ability to socialise which in turn
may effect ones ability to cope with their OCD. I believe that all
co morbid conditions form a complex web enmeshing the primary most
problematic condition into such complexity it is more difficult to
eradicate ones self from. I beleive that my co morbid condtions may
be the reason why my OCD remains for the most part remains
intractable
Prosopagnosia I believe
when not being overwhelmed by hypochondria is further evidence that
I may have some form of autism or traits of autism significant
enough to be considered as having an effect upon my ability to
function and the prognosis of my OCD.
For instance it is often difficult for me to explain
to doctor just how depressed I am. Often I cannot express verbally
how deeply depressed I am, day in and day out as my heart is weighted
by a despondency which I cannot convey to others. My face often has
little expression, or so I have been told, except in extreme
circumstances and sometimes I have been perceived as uncaring. Moreover I hesitate to cry because of headaches although I cried
when my sister died and have done so on other occasions. I do have
profound emotion I am highly sensitive to Suffering but that is it I
guess I seem only to have empathy for those who suffer; I have no
empathy for happiness, or other positive emotion and never show much
enthusiasm or excitement. I am never fired up, energetic, fervourently passionate, vivacious or in anyway light hearted. I am
of course inwardly passionate about social issues such as animal
welfare and so on but these passions are not animated and remain
internal. Anger is the only emotion that you would be able to tell I
had and on occasion sadness I am told that I look haunted. My
inability to express myself well except by writing and believe me
that is enormously difficult also has been an hindrance to my
recovery from OCD.
Depression and social anxiety have interfered with
my progress. Moreover Hypochondria adds another burden of stress and
the more stress in ones life the worse ones OCD becomes. Moreover
conditions such as migraine and headaches and fibromyaliga add their
misery to the mix and complicate still further any possibility that
I could improve my OCD. I believe my OCD is intractable due to the
presence of untreated and undiagnosed co morbid conditions. Moreover
the various co morbid conditions effect one another for instance my
social anxiety is accentuated by Prosopagnosia a condition that of
course brings with it social difficulties and effects my self
confidence. Prosopagnosia also effects my OCD and propitiates a
ruminative episode where such embarrassing situations as those above
are ruminated upon and analysed in the way typical of people with
OCD.
Because of my social interaction difficulties I
hesitate to seek help. Although when I finally see a therapist or
counsellor I am sometimes able to talk about my difficulties in a more
animated way but not in a way that really conveys the level of my
depression or the precise nature of my OCD which is so complex it is
virtually impossible for me to explain precisely in a verbal way. My
therapist told me I express myself well. This can happen from time
to time as given the opportunity to talk and, if I feel comfortable
with the right person, I than proceed to appear confident and months
of fears spill out but most often these are not the primary concerns
and it takes a keen observer to recognise when I am covering up a
more pound fear issue. For instance when I first sought help I
complained only of my depression but the specialist knew that there
was something more, those embarrassing religious/ scrupulosity OCD
issues of which I was too embarrassed to discuss. With some
therapists I am very tongue tied and responding in any helpful way
is enormously difficult. Many therapists do not have the time to
read pages of lengthy accounts of my OCD. I do understand why of
course as the pressure on the mental health services and its
practitioners is considerable but surely in the initial asessment
perhaps reading such detailed accounts when the sufferer is having
difficulty explaining his or her problems surely saves time in the
long run.
Often throughout my life I have been told I do not
appear depressed, conversely I have been told that I look miserable,
haunted. My OCD is intractable right now and there has to be a
reason; is that reason the presence of co morbid conditions. However
many OCD suffers have co morbid conditions, the most common are GAD
and hypochondria. So I do not know what to think anymore. I wish to
be rid of my OCD but it is becoming increasingly more complex and I
do not know where to turn anymore and tend now to muddle through
with my life as best I can notwithstanding the severity of my OCD. I
do need to find out if I am on the autistic spectrum which
apparently includes ADD; I most certainly have ADD if nothing else.
I need to know if this consideration is valid or just another bee
buzzing around in my bonnet. You know I tend to hesitate using
metaphors such as “bee in your bonnet” because non English speaking
visitors to my website might be confused, indeed I often only
understand the meaning of the most familiar of metaphors myself.
Well just lately you may think I am going crazy,
perhaps it is the result of sunstroke:-) If all the above seems
rather a disconnected muddle well than you would be right in your
assumption. But that is what it is like for me, it is like a kind of
association. I begin to write and one thing which leads to another,
in theory I could write and write and write for infinity. Not that
it would of course naturally make sense and you might finish up with
an entirely different subject at the end. But hey! I cannot use the
word infinity if there is an end:-) Infinity of course means
boundless without end. The above entry began as an account
concerning my difficulties with recognising faces and that was all I
intended to do, was to point out this difficulty and how it was
brought home to me. The subject went on to autism to hypochondria
one thought leading to another and another and another. I was tempted
to diverge into a ramble about hypochondria as the search for links
induced this kind of anxiety. Another divergence concerned my social
anxiety and my thoughts concerning the effect of co morbid disorders
and than on to the different perspectives of autism and I was
tempted to go on and talk about the idea that autism is related to
OCD that the two are in some ways very similar and to me appear to
be slightly different manifestations of the same condition perhaps
as a result of the same gene cluster.
Is it normal to write this way. I guess conversations
digress and one thing leads to another but generally when one is
writing it is normal to stick to a general subject or theme. But I
am not a professional writer. Often I can’t think of a thing to
write, but as I sit here and begin writing pretty soon something
will occur to me and from there... well one idea leads to another
but I worry that such is discordant rambling. A lot of what I write
doesn't get published, it would either cause offence - at lest that
is my worry- , be boring or is plan and simply rubbish.
I have a terrible compulsion to write and write and
I sit here now when all I intend to do was to read e-mail :-) Can you
believe it that was all I intended to do and now fifteen paragraphs
latter here I am still writing. I have set up may paint pallet and
should be painting but no here I sit giving in once again to the
compulsion to write. Yet it is not a compulsion in the OCD sense...
or is it. I have so many ideas crowding my mind, it is overwhelming
and the need to write them all down is like an awful insatiable
addiction. Often I become irate if I have to turn my attention to
other things. I get angry because I cannot type quick enough to
express my thoughts without encountering red squiggly lines and this
is frustrating. It is not an obsession like for instance
contamination OCD; it is not done because I fear that harm may come
to another if I do not for example wash my hands. Yet this
compulsion is becoming a misery, an addiction difficult to break in
order to return to some semblance of normality concerning my
writing. I did not experience this while writing my memoir, nor in
the beginning when I first created this website but now it is as
though I feel compelled to write and these feelings are making me
feel depressed and I have turned what once provided some
satisfaction into a source of unhappiness or rather my OCD has for
of course all this happens against my volition as does all my OCD .
After counting all the paragraphs before making the
statement above I am now having problems concerning my superstitious
fear of a certain unlucky number which today because of my high
anxiety I cannot write down. So I have had to divide some paragraphs
to avoid this number of paragraphs. Aaaaggghhhh the frustration, the
misery with OCD. I want so much to throw caution to the wind and to
ignore the fears, the intrusive thoughts that lead to
the
obsessive-compulsive behaviours that make life hell. But there
is always some reason why I simply cannot do this despite the fact
that I know that such thinking is a result to my OCD.
August 2nd
I really obsessed about the previous entry. It is
rather muddled rather rambling. But if nothing else it serves to
illustrate the different anxiety disorders from which I suffer and
how they can present throughout the day or even whilst sitting here
writing. The above highlights my superstitious, ruminative ,
and doubting OCD, my hypochondria, hypergraphica and goodness
knows what else. My obsession with perfectionism is driving me nuts
and I considered not posting this rather lengthy ramble but after
spending so much time writing it I have to publish as I can't cope
with ruminating about the waste of my time if I delete it. Sometimes
one OCD behaviour counteracts another. OCD is a very complex
disorder, it is aggravated by the existence of co morbid conditions
and often the sufferer is really not aware how complex it is and how
intricate and enmeshed all the different presentations of both it and
the presence of other disorders can become.
August 3rd
If you where to visit my home in the near future you
will be greeted by a notice informing you that if you wish entry to
my house beyond the kitchen you will be asked to remove your shoes.
Yesterday someone entered my home
without removing his shoes. This was a person who came to do a job
and although I ask other visitors to remove their shoes it is not
always easy to ask a repair man to remove his unless they are really
covered in dirt i.e. a builder who in most cases will remove his shoes without being
asked. There are a number of reasons that I do not ask repair people
to do this one of them is because it appears unreasonable, however
after yesterday I have changed by view. Suffice it to say this
person came in with his shoes on and after he left there was a stain
on our new carpet which took some considerable effort to remove.
Moreover this precipitated an OCD meltdown of spraying the carpet
with carpet cleaner, scrubbing and even washing with a mop. My home
now feels irretrievably dirty, tainted, contaminated. I was
extremely angry as such an occurrence can have catastrophic effects
not only in this one area but through out the whole range of
problems which comes under the category of OCD contamination. One
event can lead to other rather like a chain reaction. For instance I
could now feel that the floor is contaminated and when anything
falls on it I will not be able to touch whatever it is without
washing my hands or I will need to wash whatever it is that has
fallen no the floor if this is possible or i will thereafter avoid
touching this item. This can spread still further for instance if my
husband or son picks some something up off the now contaminated
floor and puts it on the table I will need to either disinfect or
avoid using the table. This is now it works with OCD one thing leads
to another and another and so on. So your see in this way one
problem like this can have a far reaching effect and can lead to
severe incapacitation. I need to think of this and consider my
health and well being, not the effect this simple request will have
on other people who for the most part do not give a dam about me. No
this is not being nasty or negative it is merely the truth people
simply do not care mostly because they do not know the effect their
behaviour will have but also because they simply...well.. to put it
bluntly... don't give a dam. To protect myself from such trauma I
need to stop this happing again. No this is not giving in to OCD it
is protecting one's self until such a time arrives when or if I am
in a position to challenge my OCD. Right now this is not the time so
I need to do as much as I can to prevent the problem getting any
worse than it is already.
Often as sufferers of OCD we think that it is not
normal to make such a request or have such a ruling in our home. We
may consider it unreasonable as this not normally expected and we
say to ourselves that we are led by our compulsions. Maybe your
reaction to such things as someone walking dirt into your home can
be extreme OCDish and definitely not normal and we react with
anxiety even fear if this happens. But really just because most
people do this, does that make it normal, is normality judged
according to consensus. What is normal in this regard? It is normal
in Japan to removed one's footwear before entering someone's home or
any building.
Just because everyone
else does it is it normal for you to allow someone to walk into your
clean carpeted home with shoes that have been goodness knows where,
in dirty streets where grime and dirt accumulate, grease from
petrol, dog mess, mud, dust, chemicals and so on. There is concern
in America that many people are becoming ill due to contamination by
pesticides and one of the reasons that has been suggested for this
is that people walk these chemical into their home from their
gardens on the bottom of their shoes and children and animals, your
pet dog or cat have contact with the floor and this way ingest these
harmful chemicals. This is just one example. However the mere fact
that dirt carried in by someone’s shoes makes your carpets get
dirtier quicker is surely enough reason to stop this accepted habit,
which we should bear in mind is a habit that is not quite as
accepted as it once was. Why should you permit any behaviour in your
home which will cause you distress and escalate your already
difficult symptoms still further
Often people will not permit this in their own homes
but will think nothing of tramping through yours with their shoes
on. You have to be assertive, if this behaviour is likely to make
your OCD worse or you simply want clean carpets because you cannot
afford to replace them or whatever the reason you have the right to
dictate what happens in your own home.
Some years ago I had an assessment by a psychologist
who did not hesitate to agree that it was not acceptable for people
to enter your home with their shoes on. He was not going to include
this in the desensitisation therapy program as he personally did not
enter his home with shoes on or allow others to do so.
In my mind it is a filthy habit, an unnecessary
habit and one that can be broken. Surely it is no trouble in a warm
carpeted house for your visitor to take off their shoes. I cringe
when I see people walk into their homes with their shoes on and curl
up on the settee or bed with their shoes still on soiling the settee
and bed linen. The whole thing for me seems now so unnatural
although I admit that prior to suffering with OCD contamination I
did much the same. But surely we move on don't we. Times change and
so do attitudes particualry concerning standards of hygiene. Anyone
my age will perhaps recall that many people had only one bath each
week and in between had only a daily wash. This was acceptable. Now
most people will have at least one shower or bath every day. Twenty
or thirty years ago most people washed their hair only once each
week, now many people wash their hair once a day. A few decades ago
many people would not discard a shirt or a blouse after only one
wearing now many do so after one wearing even if such is only matter
of hours. If we go back still further to Tudor times no one washed
at all. Queen Elizabeth 1st was unusual she bathed once a day and
was advised that so doing could bring about a chill or pneumonia.
Times change, standards change. Its time we followed the Japanese
custom and remove our shoes when we enter a building particularly
someone's home. The stained carpet was in our hobbies room a tiny
room which had been decorated and in which we had only a couple of
weeks ago fitted a new carpet. We had put a lot of effort into
making this room pleasant. I was angry and felt that this had
tainted this rooms a special room for all of us where we do our
artwork and use the computer.
Despite ones OCD there
are times when some of our concerns are warranted. I think I am more
than justified to ask people to remove their shoes and they are
justified to refuse and they can do so but from now on they will not
be permitted entrance beyond the doorstep.
Another annoyance and
yet another revolting habit which is common place is the licking of
fingers by sales staff in supermarkets who habitually moisten their
fingers with their tongue to open plastic carrier bags. Surely such
is unhygienic I really do not want their saliva all over my food as
he or she proceeds to handle my food including unwrapped food such
as vegetables with spit all over his or her fingers. Wouldn’t it be
more pleasant for all concerned if shops used a soaked sponge pad
that are used in banks to count money instead of sales assistants
licking their fingers to separate bags.
Another huge and similar irritation and the cause
for me personally of great stress is the checkout assistant who has
a cold. He or she reaches for a handkerchief blows his nose and
returns the handkerchief to his pocket and proceeds to handle your
food. You know sometimes we do have a point do we not. I do not
think it is of much use to complain about a specific employee who
behaves out of habit, habits which we know from our own experience
are not easy to break but rather complain to the supermarket
management. I hate getting a specific person in trouble but a
general non specific complaint not mentioning any particualry
employee might help this situation. Such behaviours are unhygienic
but are very habitual. Maybe if you do not have OCD you might
think this over the top but in Queen Elizabeth 1st’ first's time I
would imagine that most thought her behaviour with regard to bathing
was extreme.
Even if you cannot
bring about changes in society in general you most certainly have
the right to say who will enter your home and dictate the
circumstances upon which they enter, From now on I will admit no one
to my home who will not remove his or her shoes.
August 7th
My heart is in my throat, at least a huge lump is or
rather that is what it feels like. There is an overwhelming
sensation that rises from the pit of my stomach to my throat which
produces feelings difficult for me to describe, it is a most
powerful and consuming feeling, it feels as though my body as gone
into overdrive. This sensation which I can only put down to anxiety
makes me feel as though I am about to be sick, although I do not
feel sick. My husband and I are driving to our nearest town. In
recent months such sensations have occurred whenever I leave my home
but today these sensations are particularly profound and
overwhelming and as I sit here now writing after the event some half
hour after retuning home these sensations are still coursing through
my being.
In the back of the car on their way to the charity
shop are two suitcases full of clothing that must be ten years old.
All are sizes ten to twelve all are now too small. After ten years
most are too old fashioned and unless my obsession with dieting
returns, these cloths will never fit. (I will not call this
obsession anorexia for my dieting did not get to such an extreme
level, at least not for a prolonged period, although it could well
have done but that is another story for another time and is in any
case included in my memoir.) Also in the back are a few tins of
unused paint. So why am I so anxious?
Those of you who have read my blog and other
writings will know that I have trouble with discarding anything
except obvious rubbish such as food scraps and junk mail. So in a
way this endeavour is progress but it comes at a cost, this being
these awful sensations that are paralysing, crippling and which are
mostly fed by anxious thoughts although there is also an indefinable
anxiety involved, a great unease boarding on fear, so powerful yet
unexplainable. There are also more clearly defined anxieties such as
have I left something in the cases amongst the cloths that I really
need; are three any papers receipts or other important documents -
although I know this is impossible but I ask my husband anyway who
tells me he has thoroughly sorted it all out. I could not sort
through these cases as I would never have disposed of any of the
contents. But the job needs to be done these two huge cases full of
cloths need to go as they take up so much room. We have a very small
home and it is getting increasingly cluttered. But there is so much
fear. These cases have been sitting in our kitchen for a few days,
if I do not get rid of them now I never will as more and more
worrying thoughts crowd my mind. Are they clean, should I wash them
again? Should I make sure there is nothing that could cause harm,
should I keep them maybe I will need then. You may well laugh but to
my shame in my less enlightened days I bought a fur coat. I cringe
now at the very thought, it was only made from scraps of rabbit fur
stitched together and really cheap and I justified it as a
by-product of the meat industry. Oh boy do I hate myself for my lack
of awareness of this awful indulgence but this is not the point. The
point is that when I became vegetarian and no longer believed it was
right to kill animals for meat and most certainly not for fur I did
not throw this old coat away until we moved house keeping it in case
there was an ice age LOL. Silly I know and perhaps this bizarre
reasoning was merely an excuse to keep something that for
indefinable reasons I could not discard even though for me it
reminded me of my former less aware self regarding animal cruelty
and which made me feel ashamed each time I saw it.
As we pull up in front of the shop my husband
dithering not quite sure if he has the right stop here in this
traffic free zone drives me to
distraction. I get irritated wanting to get it over with, getting
past the point of no return by taking it to a charity shop before I
panic and change my mind. I experience a surge of increased anxiety
I can hardly swallow. I worry that there may be something harmful to
others yet I am not clear precisely what. The compulsion to sort
through the cases is strong but finally my husband takes the case to
the shop and it is over. I try to console myself that at least
someone will benefit from these cloths and that this may counter
balance any negativity.
After dropping off the
two suitcases we need to take the paint to the council tip. I
already feel stressed by our previous call and the anxiety feeds
further on this new event and thoughts previously not considered
rise to the fore as the paint is dumped in the skip. Thoughts came
to my mind that the skip was perhaps not the correct place to
discard the paint. I know that you should not throw paint in
the dustbin and you should most certainly not pour it down
the drain, as this is very damaging to the environment. You can see
how anxious I am about getting this right as I have emphasised the
word not. You are supposed to take it to the council disposal dump,
which we were doing. On a previous occasion we had asked where to
put unused paint and where told to put it in the skip. But I was
still worried that this was not right as I often do not trust that
these days people know what they are doing as people seem so prone
to making mistakes. I read somewhere that there was a special
section just for toxic items such as paint, the skip had only non
hazardous things, for instance household items such as old
furniture. Moreover I had been more anxious than usual to take this
particular batch of paint to the council dump, which was paint we
had mixed up. Two different kinds of paint emulsion and a kind of
silk finished paint. We hoped to use it up but it did not work well
most likely because the two different types of paint did not mix
well together. I had the notion that mixing these two different
types of paint would be hazardous, the mixing might produce a
chemical reaction and release dangerous toxins or it might explode.
The paint had been left in the yard for two weeks and this had not
happened nonetheless I was anxious. But we had managed to make the
paint to the dump and throw it in the skip but immediately as it
disappeared into the irretrievable recess of the skip I panicked
asked by husband to return and remove it but such was impossible as
he could not get inside the huge skip.
I have mentioned before my problem with hoarding,
cluttering and discarding useless items. This problem is two fold
and consists of two OCD related ways of thinking. The first as
already mentioned is the fear of throwing away something perceived
as harmful either to others or to animals that may forage about in
the tip. The second fear is less definable and consists of a general
free-floating type of anxiety which yesterday bordered on fear. This
problem with discarding things and collecting other things is
increasing and it is becoming more of a problem for not only me but
my husband son also. My son has a large portable stereo system ,
only part of which is usable. Yet he cannot throw it away and it
sits in the cupboard under the stairs taking up space and making
life difficult as indeed does all the clutter we hoard from books
long read, books that will never be read because it has taken so
long to get round to reading them that the original interest has
been lost or books waiting to be read. Hoards of soft toys right
from when Kevin was a baby and the additional collection over so
many years, as we just love cuddly toys are everywhere in our home,
along with all sorts of odds and ends. Mostly every ornament we have
bought since we were married and of course a lot of the clutter of
by sister’s and brother-in-law's which sits on a bookcase on the top
of the stairs. It is too painful to discard them. It is getting
difficult to throw way papers receipts, documents no longer needed,
old letter because it is just too time consuming and anxiety
provoking to sort through them as the fear wells up that I might
accidentally throw something important away. The time and anxiety
needed to check and recheck over and over all the doubting and
anxiety is just formidable to contend with so they are left for
another time somewhere in dim distant indefinite future, a future
that may never arrive. If we moved house again all this clutter
would be packed into boxes for sorting when arrive at our new home,
as it was when we moved here from the southeast. And yes you guessed
it for the most part things were just dumped into cupboards.
Well at least I got rid of those cases that had been
here since we arrived.
August
8th
We are
mentally very rich when we desire nothing.
Lama Yeshe Losal Rinpoche
The above quotation appeared on a fridge magnet,
which I recently bought. I bought this as a reminder that whenever I
find myself fretting over some minor concern or disappointment, for
instance over some circumstance that as not turned out the way I
expected or wanted, that desire of any kind causes unhappiness. And
of course I am strictly speaking of very minor things, such as an
anticipated parcel not arriving when I hoped it would, silly
inconsequential things that interrupt even the more agonising OCD
intrusive thoughts from time to time adding their own little extra
negativity to the already over loaded mix. I believe of course that
it is entirely normal to desire certain things or circumstances in
life such as a home, food, companionship from loved ones and the
like and in my opinion it would be odd if one did not get depressed
or unhappy without such. Such levels of non-desire are only in the
realms of saints if such is even possible or desirable or is even sought-after in
anyway.
I will of course never attain such a state of being
or want such a state of being and I doubt that many will. But I
would like to get a more rational perspective upon the outcome of
some less important desires and not be so adversely effected by
small disappointments. Mental health issues such as OCD interfere to
a great degree with attaining such a state of rationality, it puts
sufferers of such at a great disadvantage when it comes to
overcoming depression or unhappiness as a result of
inconsequential circumstances when life has not gone as one hoped or
wanted. Those of us with mental health problems often become very
sensitised to any disappointment or frustration perceiving such to a
greatly aggregated degree, catastrophising over the smallest concern
or unfavourable circumstance we become easily discouraged often to
the degree of becoming profoundly depressed. Mental illnesses,
illnesses of the mind are one of the most awful forms of suffering
brought about by conditions of ill health. Although we cannot compare mental health problems to physical illness in
quite the same way. For instance a mental health problem is not as
likely to kill you as cancer at least not in a direct way but mental
illness is chronic for many and it is pervasive entering every facet
of your existence. These conditions present thoughts beyond the
control of the sufferer as in OCD, thoughts with which the sufferer
is tormented against his or her volition. Thoughts which compel us
to carry out activities such as compulsive hand washing, checking,
and other repetitive behaviours. For instance many sufferers
repeatedly wash their hands because of intrusive thoughts that their
hands have become contaminated. Such repetitive behaviours borne of
these thoughts will be numerous and often despite having insight
into the inappropriateness of such compulsions these thoughts and
behaviours are extremely difficult to ignore. In fact insight in a
way compounds the problem as frustration sets in as the suffer is
compelled to carry out compulsions that he or she knows are
irrational. Illnesses such as schizophrenia take on an even more
serious delusional state, with hallucinations and hearing voices the
sufferers mind is not his or her own. The scenarios of either of the
above abhorrent mind states are always negative. You do not have
intrusive positive thoughts do you, they are always negative. If you
hear voices they are not kind voices telling you nice things are
they. If you have hallucination you do not see roses growing on the
wall but see millions of beetles as did a girl I shared a ward with
whilst I was in hospital for my OCD.
Indeed mental illness in all
it’s awful manifestations takes over your life, alters your
perspective of the world, takes your mind, your very existence.
People with mental health problems from the minor mild phobia, if
there is any such thing as of course any of the infinitesimal
categories of phobias has the potential to be a huge life shattering
condition, to the most series of psychotic illnesses live in a
different world, they perceive a different world through eyes
distorted by the horror of mental illness. The suffer of agoraphobia
goes outside his home on a beautiful sunny day with a great
trepidation, a beating heart accompanied by surges of indescribable
dread, stomach surging, a lump rising to his throat, his being
overwhelmed by fear, but fear of what precisely. Often the sufferer
does not know. Meanwhile his neighbour like wise goes out on the
same sunny day, his mood is elevated, his problems fade into the
distance, the warm sunshine makes him feel contented, even elated he
may even sing or whistle, greet his neighbours. He sees the worlds in
the glory of a summer morning and not as a nightmare of fear and
anxiety. If you do not suffer in
this way you do not know what it is like. how mental illness alters
your perception of life, takes over your mind, your soul you as a
being, however you wish to perceive that part of you that is still
aware underneath the burden of mental aberration is under attack
24/7. There is no escape from the effect of mental illness even in
your dreams; your entire existence is effected by it particularly if
your condition is chronic and severe.
The above quotation is of course derived from
Buddhist teaching. I have said much about this elsewhere in my blog
but of course the casual visitor may not have read this so in brief:
Buddhists believe that all suffering raises from grasping, craving
and desiring, not just of material wealth but craving for and
desiring anything, any condition that is different from the one we
are in. For instance wanting to be well when we are ill, wanting to
be more clever, better looking, more confident and yes even wanting
to be free of desire. If we seek such things with craving we become
unhappy and this makes any situation worse. The obvious example,
craving to be well when we are ill. My headaches are a nightmare all
on their own but when I become depressed when they interfere with
yet another plan as they did today well the misery of the headache
is enhanced by desiring that things are different. If for instance a
trip out is cancelled my headache is compounded by the added
disappointment. So you can see that being free from desire...
is...well... I just had it in mind to say that to be free from
desire was a most desirable state of being... So you see such a
state is for most of us unattainable, we are constantly desiring
something, even to be free from desiring is a from of desire if we
fixate or crave such a condition. But in many ways it is human
nature to crave for happiness and well-being but if one can free
oneself from such a state at least concerning unimportant
inconsequential issues perhaps we than can experience some
happiness, happiness free from the taint of desire a happiness
solely dependent on getting that which we desire. If we can at least
do this concerning less major issues it will help to mitigate to
some degree our suffering.
I know that my suffering is
compounded by feelings of disappointment over silly things
that have not worked out or concerns about less important issues. If
we observe our day to day life concerning minor issues often we can see that we feel better when
things go right and much worse when things do not go according to
plan. Again we are talking of smaller issues; no one can be happy if
for instance they loose their job or their home or when their health
or that of loved one is seriously compromised, but for less life
shattering events being mindful of how adversely we can become
effected by small issues may be helpful in improving our depression
or anxiety and our unhappiness. For example yesterday I felt much
better than I have done for a long time but this was due to the fact
that on this day I was virtually headache free, my writing seemed to
flow as did my artwork and although there was some dissatisfaction,
depression and anxiety as there always is because of OCD
problems, things were better. On close inspection though my more
positive day was bought about because some things had gone right for
a change, they were only little things the outcome of which would
not be such a potential problem so crucial to the mental state of a
well person as they are to some one such myself who can become more
depressed over quite trivial issues.
Yes I can hear you say... “that is easier said than
done” and although you have insight that your low mood is caused by
a minor problem and you recognise that you are desiring something
you can not have or attain does not necessarily alter you mind set.
Notwithstanding such considerations you continue to feel
disappointed, miserable and even profoundly depressed and you seem
to have no control over such feelings arising even if you do
recognise that such feelings are inappropriate to the situation.
Even with such insight this does not mean you can prevent such
feelings arsing or not be effected by them. Nonetheless just knowing
what increases our suffering and being aware of the many subtle
things that we desire and the disappointment that arises if we do
not have them does in a way help to alleviate perhaps the effects
of some of the less significant things in our lives that cause us to
worry and which add to the misery of an already existing mental
health problem.
August 10th
Am I obsessing or do I have a valid point. That is
the question, a question that in all honesty I cannot answer - at
least for now. The question at this time is do I have Aspergers/high
functioning autism or are the autistic like behaviours which I
manifest simply a result of stress or just autistic traits, traits
which I believe that most OCD sufferers have as I believe there is a
relationship between OCD and autism? There have been other
considerations upon which I have for want of a better word obsessed
or if you wish to use an expression used in autistic circles
perserverated.
It is not easy to know if such considerations are valid and are not
merely part of my OCD. After all there are many people these days
who obsess or consider that they may have Aspergers syndrome, this
is particularly so with the arrival of the internet where so much
information is available at ones fingertips including on-line tests.
Aspergers syndrome or high functioning autism are not easy to self
diagnose and reading personal experiences makes such even more
difficult for all of those who have Aspergers or autism have very
varying symptoms. Such doubts feed the obsession, if indeed to
consider such so intensely and to spend so much time in research and
consideration of this possibility could be considered an obsession.
When is an obsession an obsession in the OCD sense or when is it a
valid consideration. The word obsession is not necessarily a
negative word it all depends on the circumstances. And that is the question, is my preoccupation that I may have
Aspergers or high functioning autism a valid serious consideration to
engage my time in or is this an obsession, a bee in my bonnet as my
mother would have said. I have after all been preoccupied and have
ruminated upon other less likely considerations about which I will
explain in another entry. OCD and autism can exist together although
it seems rare; at least I have found little in the way of evidence
for this. Only one website created by parents of an autistic adult
with OCD and a couple of messages in news groups and the odd
reference in a scant number of articles. OCD behaviours can be
present as part of Aspergers and indeed other types of autism but it
is only when they manifest in a very significant way is the sufferer
diagnosed specifically with OCD as a separate diagnosis.
For the most part I have insight into my OCD i.e. I
know that my thoughts and behaviours are part of a neuropsychiatirc disorder, it doesn’t make
it any easier of course to ignore either the thoughts or the
compulsions notwithstanding such insight. Mind you this has not
always been the case of course, for about a year or so when my OCD
became full blown and manifested as religious/ scrupulosity OCD I
most certainly did not have any insight and was carried away by
these most bizarre thoughts and compulsions. Religious/ scrupulosity
OCD is one of the most unreal aspects of OCD that you would think
would be easily recognised as a problem. Although my behaviours were
bizarre I had no insight whatsoever, not once in at least a year did
it even cross my mind that my behaviours and thoughts were
irrational. Moreover it never occurred to me either than that other
people did not behave this way. Yes if someone had asked me if other
people behaved in such a way I would than have known immediately
that no they did not. But this question never entered my mind and no
one asked it because no one not even my husband had an inkling into
what was going on. I always had an excuse for any unusual behaviours
such as not eating all day and not buying cloths; I was dieting and
saving money for a deposit for a house. (If you re not familiar with
my religious OCD please read chapter seven of my
memoir or my
short
story.) In comparison to my OCD contamination which came later on
these thoughts and their compulsions should have been more readily
open to more rational insight even it I could not improve them as a
result of such insight. I knew my life was miserable, I was depressed, anxious
and fearful but it would be at least a year before I began to
question the rationality of my behaviour. Mostly after recognising
that I had a problem and that the problem was OCD new obsessions and
compulsions when they arrived were recognised, I had insight into
them as irrational. However than as now such insight did not mean
that I was able to abandon my behaviours, far from it, but at least
I knew that I had a problem and needed help.
However there are times now when it is difficult to
have any rational insight into some of my thoughts when it is not
immediately obvious that they arise from my OCD, thoughts which on
the surface may appear quite normal, and know if such are part of my
OCD or are valid thoughts and considerations and ruminations. Now in
stead of having no insight I now question every thought, consideration,
idea and every action and ask myself is this coming from my OCD or
is this thought idea, action, or whatever coming from my real non
aberrant self and is therefore a valid action or consideration. I
often ask myself if there is indeed any rational non aberrant self
remaining and such questioning in itself than becomes as obsession;
the idea being the obsession and the analysis of the thoughts or
actions being the compulsions, a kind of pure O with mental
rather than obvious overt compulsions. Are my ruminative
considerations upon such subject’s normal or part of my OCD? After
all it is important is it not to recognise any co existing condition
as of course these effect my OCD; If I have Aspergers/ high
functioning autism this will become enmeshed and effect my OCD in
just the same way as my migraine has become entwined with my OCD
behaviours.
After all everyone ruminates to some degree. Most
people contemplate and analyse you could not make a decision without
so doing. It would be impossible to come to any conclusion
particularly major decisions with out some rumination. A scientist
for instance has to ruminate, although ruminate is not normally the
word one would use to describe the kind of thinking done by a
scientist. However rumination is a word that essentially ,means: ...
"musing", "reflection",
"thoughtfulness", "contemplation", "reflexion" "cogitation", "study"
- attentive consideration and
meditation; "after much cogitation he rejected the offer"
"consideration"
- the process of giving careful thought to
something "meditation",
"speculation"
- continuous and profound contemplation or
musing on a subject or series of subjects of a deep or abstruse
nature; "the habit of meditation is the basis for all real
knowledge" "meditation"
- (religion) contemplation of spiritual
matters (usually on religious or philosophical subjects)
"introspection", "self-contemplation",
"self-examination"
- the contemplation
of your own thoughts and desires and conduct.
Definition:
rumination -
definition of rumination by the Free Online Dictionary, Thesaurus
Another example would be a philosopher, philosophers
such as Aristotle, Plato, Socrates, Buddha reached their conclusions
by what could be referred to as ruminative thinking sometimes
producing original thought or extending and considering the ideas of
others.
But this word has now become part of
the OCD vocabulary in a negative connotation. As I have said a
scientist an obvious example also contemplates, considers, ponders,
analyses, all things that we as OCD sufferers tend to do the
difference is that mostly OCD sufferers do so concerning negative
considerations rather than positive ones. However there are times
when it is not easy to know the difference even after one has been a
sufferer all ones life. When are our ruminations normal, how can we
tell that the thoughts in our minds the ruminative introspective
cognitive thoughts are normal, such as those involved in making a
decision or coming to a conclusion. All OCDers have decisions to
make, life altering decisions, such as which school to send your
child, or where to relocate or even whether one should relocate.
Huge life altering decisions I have had to make in my life.
Decisions which OCD can interfere with in such a way that you might
not be aware of it's influence because despite having insight
generally into your condition in the most obvious areas of its
manifestation there are more subtle areas of ones life when OCD
thinking can rear its ugly head and you can become unsure who made
the decision you or your OCD. Particularly when you examine your
decision in retrospect. Moreover it can also be difficult to know
when trying to arrive at a conclusion if either your ideas or your
eventual conclusion, if one is ever reached that is, are valid.
Particularly if such a conclusion is difficult, the considerations
vague even for a non-sufferer. In my experience OCD enters the
equation in any decision, consideration or conclusion sometimes in
an obvious way but often in a less obvious and subtle way that its
interference is not immediately apparent. And it is this latter
problem which can cause the greatest difficulty, as we can so easily
be lead away to coming to all kinds of erroneous and inappropriate
conclusions and decisions.
And this is now the case concerning the cause of my
social anxiety: Is the consideration that I have Aspergers or high
functioning autism a serious consideration or am I off on some OCD
type tangent.
For your interest the following is a
link to an on-line self test
Wired 9.12: Take The AQ Test
Take the test, but not too seriously.
Although the test is popularly used for
self-diagnosis of Asperger Syndrome, the authors caution that it is
not intended to be diagnostic, and advise that
anyone who obtains a high score and is suffering some distress
should seek professional medical advice for conformation or otherwise
I scored 38.
My son scored 40. He is officially
diagnosed as having Aspergers syndrome
I do not wish to trigger any ones
obsessions but it may be a valid consideration and if you see this
as a possibilty and it is adding to your OCD than you need to see a
doctor. But please do not take this test too seriously as it is not
always possible to know precisely how these questions and their
responses would be considered by professional, For example question
one
:I
prefer to do things with others rather than on my own.
I had difficulty answering this although for me the
others were less ambiguous. It was not easy to answer yes or no or
indeed any of the shades of yes or no (slightly agree slightly
disagree). My answer is that I am okay doing things with my
immediate family, husband and son, but with other people most
certainly the answer would be no. So you may find that the questions
can be rather ambiguous and you may be unclear what is required. So
please do not take this too seriously although I must admit that I
have given my quite high result some serious consideration.
August 11th
Warning ! Possible OCD Contamination triggers
Yesterday I received from an e-mail pal the
following link to an article by
Fred Prenzel ph.D: .Stronger than
Dirt-OCD and Contamination-
"Recently, while going through some back issues
of the OCF newsletter, it struck me that unless I was mistaken,
there had never really been any special articles written about
contamination problem. Perhas it's because it is so well known. On
the surface, it's not a very complicated subject dirt, germs,
washing-what could be simpler? Actually, when examined more closely,
contamination is quite a bit more complicated than this
First of all, what we are really
talking about breaks down into two parts: contamination
obsessions and decontamination compulsions. Let us first examine
the nature of obsessive contamination fears. Contamination isn't
simply limited to dirt, germs, and viruses. It can also include:
bodily
excretions (urine, feces)
bodily
secretions (sweat, saliva, mucus, tears, etc.)
blood
semen
garbage
household
chemicals
radioactivity
broken
glass
greasy
or sticky substances
people
who appear unwell, shabby, or unclean
spoiled
food
soap
(really!)
lead
asbestos
pets
birds
dead animals
newsprint
This
list is by no means complete. There are practically no limits to
the things that could be contaminating. From my own experience,
I would guess that the fear of certain illnesses is still the
leader. Many years ago, cancer was one of the more commonly
feared illnesses. In the last decade or so, this seems to have
been replaced by AIDS ( see my previous OCD newsletter article,
OCD and AIDS When epidemics Collide)
One particularly
unusual aspect of contaminating substances is the extent to
which tiny amounts of them are often believed to cover very
large areas. Some sufferers believe that a minute quantity of a
contaminant (such as blood or urine, for
example), can somehow be spread to coat entire rooms, or even
everything they own."
I can of course only speak for myself but I have contamination
concerns about most everything on the list except perhaps the
sticky substances although if the substance is unidentified I
will have a contamination problem thinking that the substance
may be toxic.
Yes indeed the list is typical of many of the concerns of OCD
sufferers regarding contamination issues but most of the above still
relates to fears of germs, viruses and chemicals, toxic chemicals
at least that is the case for myself personally. These areas for
me are areas where contamination from germs, viruses and toxic
chemicals is likely. For instance bodily excretions and
secretions : feces, urine, saliva , sweat and so on for me
present contamination fears about the contraction of germs and
viruses. However there is also an undefined revulsion not easily
for me to describe or put into words not even in my own mind.
There is just that revulsion factor when it comes to bodily
secretions or excretions. Feces and urine are obvious purveyors
of germs and most people feel revolted by such but for the OCD
sufferer the reaction is extreme and the source of contamination
not as obvious as it would be for the non sufferer. After all no
one likes stepping into dog dirt but the average non sufferer would
probably not throw their shoes away or scan the ground while
walking in order to avoid dog mess or imagine that there is dog
dirt on their shoes because they see a pile of dog dirt across
the other side of the street or be afraid to enter a shop or
other public place because there is dog dirt close by. But as
the article suggests it is not always the obvious and more
logical, albeit extreme, situations that give rise to fears of
contamination. Just reading the word rabies in an exam practice
paper many years ago induced a hand washing session and my
segregating this paper to prevent the spread of contamination. A dog being
bought into the dinning room when I was in hospital for my OCD
precipitated a huge panic and a vehement argument with a dreadful women who considered because she was some authority in
the hospital that she could flout the rules. The recent tragedy
of an outbreak of rabies in China and the unfortunate massacre of 50, 000
dogs has made my fear of rabies increase this week. Incidentally
I am an animal lover that is why this type of OCD as bought me
much sadness, the thought of this awful and cruel slaughter of
these animals haunts me this week, they even slaughtered dogs
which had been vaccinated!
Animal or even human saliva brings to the fore my fear of
contracting rabies and this is why I feel contaminated by
animals particualry mammals as of course it is only mammals that
contract and transmit the rabies virus. But underneath this again there is
that undefined fear of contamination even if I touch an animal that is not
a mammal such as a amphibian, a frog for example. Some
years ago now I had to pick up a huge toad from the road to
prevent it from getting run over, neither my husband not son
would do this. The fear of the guilt and what could happen to
this poor creature was greater than my fear of contamination,
nonetheless I felt contaminated and held my hand in the air
until we reached a public toilet to wash my hands. Yet I could
not catch
rabies or anything else from this animal at least as far as I
know nonetheless I felt contaminated. So again fear of germs and
viruses appears not to be the only factor
here that makes me feel contaminated but it is the main
precipitating reason. There is this indefinable
anxiety or so it would seem but perhaps there is some
subconscious fear that I will become contaminated by creatures
regardless of the fact that these creatures cannot transmit
diseases to humans. I wash my hands and feel contaminated by
even an insect, maybe this is because I do know where the
creature has been previous to my contact with it. It is all very
complex and not as straight forward as many people think.
Blood is a huge issue for me both, my own and others. I fear
that blood of course may carry the AIDS virus. At the present
time for undetermined
reasons I feel fearful that my blood will spread contamination
but this was not always the case. Some years ago there was a
definite reason, this fear was focused on the unlikely
possibilty I may have contracted AIDS from a blood transfusion.
After having a blood transfusion after losing my baby some years
ago now I spent the next six months thinking I had AIDS. No
I did not fear my own demise although this was in my mind but
rather I feared that I would infect others if even a drop
of my blood was shed. I spent the next six months with plasters
all over my hands each time I had even the smallest nick. I had
to have an AIDS test to alleviate this anxiety. At one time I
even had the bizarre notion that if a drop my blood, and again
like the article mentions the tiniest drop of perceived
contaminate can be thought to spread over huge areas, I would
worry that someone would ingest it and I than I would be guilty of
causing someone to commit cannibalism as a result of them
inadvertently digesting my blood. I know how
crazy that
notion sounds but at one time this was one of my concerns about
blood. I recall cutting myself when doing outwork for my
husbands firm and throwing away the key rings which I was
assembling because I feared they were tainted by blood which
someone could ingest by touching them even though there was no
evidence at all that there was any blood on any of them.
But even now today I would be very anxious indeed it I shed any
blood anywhere and always cover wounds.
Garbage of course is another obvious concern and again for me
personally anxiety about contact with garbage arises from fears
of contamination by germs and toxins although none of the latter
gets thrown in my in dustbin. Again there is that reverse
situation where I feel contaminated by garbage with the
consequence that I feel the need to decontaminate:
wash hands, shower and change my cloths because if I do not I
fear contaminating others. This has to be done immediately
otherwise as the article describes I will feel that the
contamination will spread over a huge area, anywhere I go
until I have decontaminated. This is the reason that once my
hands are contaminated I will hold them away from my body or
cloths and not touch anything until they are washed to prevent
the contamination from spreading. Also concerning garbage
there is for me fear of throwing things away I feel will cause
harm not only to humans but also to an animal such as a rat or
other creature which many forage amongst the rubbish in the tip.
Yes most of the above for me personally are connected to my fear
of contamination by germs viruses and chemicals; these things and
many others not listed induce fears of contamination. The
exception is broken glass. But there is an OCD problem
with broken glass but not related to contamination but fear of
causing harm such as broken glass on the pavement cutting the
paws of dogs and other creatures or being picked up by children.
Glass in the road presents fears of it cutting tires and causing
accidents. I feel the responsibility to pick up glass and feel
uncomfortable if I cannot do this. This used to be huge
compulsion in which I had on occasion put my self into
potentially life threatening situations venturing out onto a
busy road to pick up glass. Now having written all that about
glass yes of course there is a contamination fear here; after
picking up the glass of course I felt contaminated by the fact
the glass was lying in the dirty road or pavement and unless I
knew what the glass contained I was also anxious about
contamination from toxins. So I would have to make my way along
the street with my hand away from my body or clothing until I
could find a place to wash my hands. Moreover I could not
discard such glass into the waste bin in the town or city in
case a child or a tramp rummaging round in the bin cuts
themselves. The glass had to be put into a carrier bag and taken home, carefully wrapped and
put in my own dustbin. Yes I know you do not see children
rummaging round in bins and tramps are very few and far between
these days but that does little to mitigate this type of
anxiety. OCD is again as the article explains is more complex than
many people realise.
Incidentally statistics concerning the likely hood of any of our
concerns coming to fruition do little if anything to mitigate
such fears or stop these and similar compulsions. I recall
explaining to a psychologist how I felt it my
responsibility to either tell the sale assistant if there was
something wrong with food in the supermarket or if this was not
possible I bought the offending item and threw it away. The
psychologist replied that customers would notice themselves that there was
something wrong with the food. To which I replied that no a
customer would not if he was blind. My psychologist replied that
this was just so unlikely as not to be worth considering.
Unlikely is not the same as impossible, whilst something is
possible no matter how unlikely, rare, exceptional I continue to
be anxious.
I must comment on soap. Yes this is true really, this is
definitely an area that a non suffer might miss concerning
contamination fears. Soap is in fact a great concern for me
personally, after someone else has used the soap I will consider
it contaminated and will rise and rinse over and over to wash
away the precious persons contamination. This is part of my
showering routine; after showering and using soap I will
wash the soap leaving it under running water as I deem it
contaminated after I have used it to shower. Keep in mind here
that for me contamination is a two way street; when I
become contaminated I than fear contaminating others until I
have washed my hands and or showered. So I fear that after
showering away my contamination, not forgetting that most
of time we OCDers shower to decontaminate rather than
simply to have a wash, I feel that I have than contaminated the
soap for the next person so it has to be washed, lathered
several times and left under running water. In extreme
times of real panic I have rinsed soap in disinfectant. So
yes indeed soap belongs on that list which is as the article
points out is only a short list of infinite possibilities.
I am pleased that this article has highlighted that
contamination is often perceived by OCD sufferers to cover a
large area. in fact an infinitesimal area depending upon
circumstances. Often this fact is over looked. For
me personally whole streets have become no go areas because I
have encountered dog mess or other contamination. When my son
was younger I had to change the school route entirely, a
considerable distance and inconvenience because of dog mess that
had contaminated the pavement close to where my son and I walked
home with his friend and his mother, who was at that time one of
the few friends that I had. Because of this our friendship
deteriorated as she thought that my behaviours were of detriment
to her children although of course I kept my behaviours as covert
as possible. But she knew I had OCD and knew there was
problem... well it is a long story and is included in my
memoir.
The reasoning behind this was as follows. The dog mess had
obviously been spread over the entire area by those who had
accidentally stepped in it and it was spread on their
shoes over the entire route home as many people would of course
take this route home, at least to the centre of the village,
rather than use the other longer route. It did not matter that
there was no perceivable evidence of dog dirt further away. For
me personally there does not have to be any visible evidence,
the thought that even one molecule of any contaminate could be
present is enough to induce contamination anxieties . The fact
that you cannot see individual molecules with the naked eye
leaves room for doubt in my mind, there could be a molecule of
dog dirt. Yes of course you could say this about anywhere you
walk but if I had not seen the original dog dirt or other
contaminate than I do not worry. It is complicated and yes
irrational but that does not make it any easier to ignore. It
took a few years before I could use this route again. The
problem was made more difficult by the fact that because I was
accompanied by my friend and her children I would find it
difficult to contain the contamination as they may wish to visit
with me. Although visitors were excepted to take off their shoes
I would as a consequence of this contamination still feel that
my garden door step and so on was contaminated.
Here is another example and one that is even less obvious. Like
the scenario with Howard Hughes in the film The Aviator I have
difficulty getting out of the ladies room if I notice that the
person who has just left has not washed her hands. I have to
open the door with a tissue otherwise my hands would feel
contaminated. I could not return to wash them as of course the
same thing would happen all over again as the door would still
be contaminated so I have to use a tissue to open the door. Furthermore I have
to do this very carefully. After opening the door I have to fold
the tissue in such a way so that the contaminated area is in the
inside, screw it up and up it in a plastic bag, when I arrive
home it gets flushed down the toilet. The reasoning behind this
ritual is as follows: If I left the toilet after the person who
did not wash her hands my hands would be contaminated as a
result of touching the door handle that she had contaminated. My hands
would now be contaminated, if I than touched my cloths these in
turn would be contaminated. If I touch my bag and my purse the
contamination would spread further. It would be carried still
further if I than touch items in shops. Again the contamination
continues to be spread as I hand over change. If I wish to sit
down in a cafe than the contamination is spread from my cloths,
my hands, my handbag and whatever I have bought from the shops
to the seat. After ordering coffee or whatever I have than
contaminated the cups and everything I handle which will than in
turn contaminate the cups of other customers, when my cup is
washed the contamination spreads in the water. This can go on
and on spreading further and further like a chain reaction
one thing contaminates another than another. The money handed to
the sales assistant than contaminates her and whoever receives
it in their change and than whatever these people touch is
consequently contaminated and so on and on. Of course all this
does not come to mind each time I have to use the toilet or
whatever the situation is because I take such precautions to
avoid this, such as in the above instance
using a tissue, if I did not this is the type of reasoning that I
would be tormented with. So this is the reason at least for me
personally why contamination is perceived to be spread over huge
areas.
The article goes on to explain an even more complex and unusual
type of contamination fears which are mostly not related to
fears of germs, viruses and toxins.
"There
is also a whole category of fears of contamination of a stranger
and more magical type, which could include:
thoughts
words
names (of
illnesses, disabilities, people who are ill or disabled, or
who have died)
places where
bad things have happened
mental images
overweight or
unattractive people
colors
bad luck"
Thoughts and words have played a huge
role in my OCD in a more superstitious way as explained at
great length in both my memoir and shot story, Here again even a word can set
of concerns about contamination; the word rabies as already
mentioned can bring on the compulsion to wash my hands and
become more anxious about contracting this decease even
though this of course is totally illogical. Concerning my
hypochondria which is an anxiety disorder much like
OCD. the mention of any illness can precipitate
anxiety and cause me to consider that I either have or will
contract the illness mentioned. Bad luck associated
with places or even items of clothing present themselves and
anxiety borne of unhappy associations can bring about fears
of similar consequences occurring.
Often what one
thinks are sometimes more anxiety provoking in their own way
than are the fears of contracting an illness by becoming
contaminated and contaminating others in the ways already
described. Often I have the notion that others are
contaminated or rather effected by what I think as I
have described in my memoir. Moreover I often have great
concern that others or myself can be harmed or effected by
positive thoughts, it is as though I fear that I temp fate
by making a positive statement. For instance if some one asks me how is your
headache I become anxious to say it is okay the fear is that
by doing so I will cause the headace to return. The fear is
even greater if I have to make positive statements about
another person.
There is for
me also a web of OCD thoughts and behaviours that have over the years become
enmeshed forming an intricate web of neurotic behaviours
and thinking from which it becomes increasing more difficult
to categorise my OCD into separate types of behaviours.
For instance
the fear of contaminating other people and indeed animals
arises not only from a deep
concern about the well being of all creatures but it also
stems from a fear that if I do accidentally or even worse
deliberately, such as during desensitisation therapy, contaminate others than something unlucky may
occur to myself or a loved one. This is one of the
reasons that it has been enormously difficult for me to make
progress with overcoming my OCD or sustaining any improvement.
I like the way Dr
Penzel describes the two worlds of OCD . I have such a duel
existence as he describes with the exception of the outside
world where until I see otherwise I consider contamination
free. Of course I soon see that it is not and I notice
countless sources of contamination before I have barely
stepped out of my door. Yet until I know that something is
contaminated I feel it my responsibility to make sure it
remains uncontaminated as I fear being responsible for
contaminating the environment outside my home. When leaving
my home I consider that I have to be more than usually
clean to enter any facet of the world outside my home.
The fear of contaminating others is profound and this
includes animals. Concerning animals again this is an
example of a two way street. For example when I go for walks
in the countryside, a difficult endeavour as you can well
imagine I take care not to wear hair spray should one flake
fall to the ground and be ingested by an animal and cause it
to die. this is just one example.
The greater my
contact with others the more anxiety I experience and the
more washing rituals are undertaken before leaving my home.
For instance going to the cinema will mean clean cloths, clean hair. When I mean
clean I of course mean OCD clean which is not the same as
for a normal person. An outfit might look clean, it might be
freshly washed, but if I were to accidentally drop it on the
floor, the floor of my own home I might add, it becomes
contaminated and I can't wear it. Or if it accidentally
touches, for instance, the curtains on my way out, which I
perceive as contaminated because of leak from the radiator
close to the curtains, the outfit then becomes contaminated.
I do not put my clean cloths on and I make sure my hair does not
get contaminated until I am ready to leave the house. Once
dressed I do not sit down or have contact with anything I
deem contaminated in my no go areas in my home. The
same applies to other public places outside my home with
increasing anxiety in medical faculties such as a doctors
surgery. So indeed I most certainly have a dual existence in
my home, it is not a visible existence but there are areas
in my home I will not touch unless I am prepared to wash my
hands afterwards and as this is exhausting for the most part
I avoid these areas which are really not whole swathes of
space but rather individual items. For instance the laundry
basket, the rubbish bin, certain books and ornaments deemed
contaminated often for reasons long forgotten, the blind
cords, the radiators everything in the garden .. well it is
along list and I am sure it is included on much of my
website rambles and of course my memoir.
Anyway I think
I have written more than enough for one entry. the article
highlights the complexity of OCD a complexity that I can
most certainly relate to and as I have grown older my OCD had become much
more complicated and difficult for me to explain even to a
psychologist.
Articles by WSPS Practitioners
August 12th
First I was
undecided now I am not so sure.
Platitude written on a key ring
I am changing my fonts again! This
evening I am experiencing some difficulty with my eyes.
Sometimes they seem more sensitive and the print seems to shake
and lines appear to merge. it is only ever so subtle but it is
nonetheless a problem. I have mentioned this before and have
changed the colour of my fonts because of this but still this
evening I am experiencing difficulties. This problem can be
caused by stress, headaches, dyslexia and no doubt a number of
other reasons so I feel I need to do this even if this only
effects a small number of people. But I think that for
everyone concerned this font verdana is easier on the eye. It
will take some time for me to alter previous entries
though and I hope this will be the last change. It is odd is it not how our perceptions change notwithstanding the
eye problem and sensitivity I now consider that this font
actually looks better than the Times New Roman which after much
indecision and rumination I had decided to use throughout my
website. I hope this is not going to become an obsession and a
new torment a new time waster that will drive my crazy.
August 17th
Everything great
in the world is created by neurotics. They have composed our
masterpieces, but we don't consider what they have cost their
creators in sleepless nights, and worst of all, fear of death.
Marcel Proust
The following link will take you
to an interesting article concerning the connection between
creativity and mental illnesses. Mostly the article focuses upon
manic depression however I often think as the quotation above by
Marcel Proust, which is included in the article, that many
creative and other accomplishments have been brought about by
neurotics. I hope no one objects to that word, I know that it
has become used as an insult in every day terms, here however it
is used in it's proper context, as medical terminology.
Creativity,
the Arts, and Madness
The rest of the website is packed
with interesting articles for anyone interested or involved in
anything creative. One should not however always think perhaps of creativity in
quite such an obvious manifestation such as an artist, writer or
musician. Often people will exclaim when asked: "I have no
talent!" Most often this is not the case particularl |