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The following is a
selection of positive and encouraging e-mails that Annette a
suffer of OCD has written to me since I created this website. I felt
that such good advice and therapeutic ideas would be helpful for other
sufferers and Annette has kindly agreed for me to share with you her
insight by including some of this correspondence in the self help
section.
Annette has given her consent to publish
the e-mail correspondence below, please be assured that I do not publish
anyone's e-mail to me without his or her permission.
Christine,
I read your entire memoir in a few days. It's amazing the patterns of
your life is identical to mine in most areas. This is me, this is me,
this is me, I kept repeating. It's as though I have known you all my
life, Christine, I think that your mother had AS ( Asperger Syndrome).
She could not help herself, it seems, because she was in the prison of
her mind. She lived in the prison of fear. Her choice of friends were
with people who would not highlight her cultural idiosyncrasies, example
the foreigner, the Indian lady. She felt uncomfortable with people and
kept to herself. She preferred your sister because you reminded her of
herself even more and you were a mirror to herself. Her fear made her
weak, so she reacted rather than make mature choices.. In fact most of
her life she seemed to react to everything, and not realize that you had
a life too. She wasn't evil just afraid. .The dentist was one of the
manifestations of this fear. The fear of hospitals also was one. Empathy
was lacking in her, so she never did much to help others if they were in
hospital or needed to go to the dentists and then she’d send another
person to stand in for her. She even left your aunt alone to die because
she lived her life, a prisoner of fear. Her behavior resembles someone
with AS.
Children of AS people are going to possess the traits of their parents,
I suspect. Why do I say that? Because I study my own genealogy. My
father had OCD. I wasn't raised with him. I found out from others. You
say you have empathy and this is not holding with an AS diagnosis. You
know that things go in a continuum, Some people with OCD are very messy
and have problems with filthy houses. Some go to the other extreme. and
are extremely neat and clean, all manifestations of the same disease.
Interesting enough when I am with other people I am always very outgoing
warm, and friendly, but when I go home, I go into a state of AS symptoms
where I don't speak to anyone but get lost in my own brain. As I get
older my symptoms change. I read all kinds of books to find out what I
am going through. In a book on schizophrenia, I read that a symptom of
schizophrenia is the same for AS - loose association, altered affect,
ambivalence, autistic. Lately I am so wrapped up in my brain that I do
not engage with people outside of me and it is a shock to see how self
involved I have become. This is what it is like to be autistic, I think
to myself when I realize the intensity of my introversion, where the
whole world disappears for a time. Then looking back I see the life long
pattern I've had since I was baby, how I saw the world without
interacting with strangers when they spoke to me. These were my mothers
acquaintances and friends and she would always say, "she is
unconcerned." I always felt apart from others, different, alone from the
rest of the crowd. All my life, I go out to others and interact but I
always come back to myself knowing I am not one of "them' I am by birth
apart from them. It's just the way it is with some people. It is a good
thing.
The gifted part of the population comes from this group of people. I
consider this the price for this gift. Suffering is the price for the
insights we have. From this group of people will come man"s progress
into the inner world of man and the brain, the prophets and the wise
men. It is the most important discovery for man and his ultimate search.
I therefore feel that I have autistic traits. I like my gifts, I would
not trade it for the world. Empathy is the reverse side of lack of
emotions. Women have OCD a lot, men have autism a lot. Perhaps being a
woman softens this aspect of this brain disorder. Empathy gene is
probably affected perhaps with extreme sympathy or no sympathy.
Something to think about. In some ways autistic people and OCD people
are both self involved with their brain, hyperfocusing, and circular
thinking that goes around and around and we block the world out, though
in AS it is more extreme. We have more awareness of our disease in OCD
however so we tread both worlds of the normals and the AS able to go
into both worlds at will.
Dear Christine.
I have so much to share with you. I was born on May 9, 1957 on the
little island of Trinidad, in the Caribbean. I was baptized Catholic and
raised in a very Catholic environment. My mother was a strong woman,
compulsive perfectionist. She did everything with a high standard of
perfection, order and cleanliness. She was rigid in wanting those under
her to live with her standard of perfection. There was only one right
way to do something, her way. She was a good provider and took care of
all our obvious needs. Looking back in my life, I realized that she was
the person who has sacrificed for me the most, and how she has been
always there for me when I failed, even to this day. She lives about 25
miles away. When I was six I went to live with my father's mother. She
was a saint. Everybody who knew her had great respect for her. She was a
devout Catholic who prayed all her waking hours as she went along doing
her duties as postmistress of our village, going to Mass every morning
after waking at a.m. and doing devotions during the day, and helping
care for the church in our village.
My father and I never lived together because he and my mother was
separated when I was growing up. But ever since I was a baby I was told
I acted just like him. People who knew him when they met me they would
chuckle and remark to my mother ho I acted just like my father, In adult
life, I discovered my father had symptoms of OCD and remembering what I
knew of him he had on OCD personality.
I responded to a couple early life experiences with great anxiety. But
they went away. At three I experienced my first fear of annihilation,
which was to come up many times again, enduring overwhelming pain
throughout my life.
But until six I was lucky. I heard about hell and was sure I was going
to go there. I thought I was bad and will suffer the eternal fires of
hell, after my cousin mentioned it to me. She was just a child herself.
I have so much reason to hope, Christine. I have gone through a similar
life to yours, but I see that my search is paying off and despair has
given way to happiness for the first time in my life or at least in
years, Why do I say that. In many ways in my heart I have died many
times and never felt I could live again, but my life is becoming full of
hope. I know the fight was worth it. No energy was wasted. Nothing I did
in my life has not yielded a lesson or a fruit. Only regret I have is
sleeping more than I should to escape depression. That was the only time
I wasted, I believe. That does not mean I am not sorry for my sins. I
only mean that I learnt what not to do through my failures. I see hope
for those who search, but we must know where to search. I am learning to
pilot my life now. I feel you will feel more hope than you feel now.
Have a nice day. Annette.
Dear Christine,
You do not understand how much your writings have helped me. I was
searching like crazy for the pieces of the puzzle to bring my life
together. For me, it was a life or death matter, because whatever this
OCD is, it has a stranglehold on me, and I felt it would certainly in
the end destroy me. When I read your writings, I finally began to see
more clearly the picture. You are a person from a totally different part
of the world, but our minds and thought processes are identical. I too
married a person with AS traits, I too, joined a cult, I too left after
an initiation ceremony. I too was hospitalized for severe OCD. My day
goes like yours, and so I prefer to stay alone, because its too much to
be with people all the time. I too read many books on religion and the
like. You see how alike we are. I've gone through ninety percent of all
the OCD you described. In reading your story I am finally begin to
realize that the 'demon' is in my brain. If you saw the Wizard of Oz,
you will see, that in the end the wizard is small but was pretending to
be powerful. we give it its power by paying attention to it, and it can
not hurt those we love, but if we let it, it can terrify us and drive us
crazy. And it became clear to me that I will not die, nor my son, it was
all the symptoms of a very severe disease, not having to do with what is
outside of me. And whatever life brings, I am not afraid of death
anymore. God will give me the strength to handle all my problems. Now
keeping my courage up will be the battle now, because the fear comes
back when I don't expect it. but I have more tools now to fight it. The
terror is in my brain, and not in reality. And because of this
realization I am closer to the cure than I've ever been.
Dear Christine,
How are you? I received your email today..
Does your dreams at night feel like OCD? I am beginning to see a
connection between my neurosis and my negative dreams. They have a
paranoid feeling about them as if something is trying to get me, in the
day less intense and the night dreadful images surface. I feel hope now,
that the fear is in me, not outside of me. I feel more control now, and
that means a lot to me. I am not afraid anymore. I keep saying this to
myself , trying to get in the habit of confronting my fears. This has
helped me a lot.
The artwork that you put on your website is very well done. You
certainly have a talent. Maybe you can tell me about how you do it. I
followed your writings about your trips and vacations in rural England.
I saw the photos, and thought about how wonderful it must be to be
there. You are very fortunate to be able to go every year on a vacation
in the town you mentioned. England has so may historical places, and I
will like to see them one day. The photos are beautiful
Dear Christine,
How are you? I feel a lot of hope and I will like to share with you the
good news. I borrowed a book from the library called Anatomy of Anorexia
by Steven Levenkron. It was one of the most revealing book about my OCD
that I have ever read. Let me make it clear it is not a book about OCD
but a book on anorexia. After seeing a starved girl pictured on a
magazine, and some body dysmorphic people on Oprah, I realized I was
just like them, mainly in my delusions, except I did not take the
cultural path of the body obsessions but the religious and health
obsessions. I know at fifteen before I got my first severe OCD
breakdown, I was trying the anorexia route but it was not part of my
Trinidadian culture, so it did not take a hold on me. I know when I went
on a protein diet, I lost a lot of weight. I could see the anorexia side
of me coming out. I thought I was miserable, and that gaining weight
might help my nerves was one of the reasons I stopped. But I could see
how easily I could have become anorexic.
Now the good news. The book I mentioned above. I will have to purchase
my own copy, maybe. He said that anorexia is caused by a lack of trust,
that did not develop properly when a person was a child. Maybe because
their mothers could not give it to them, because the mother had
problems, or because the child was born with a sensitive nervous system,
or maybe both. Either way the child has not learned to attach properly.
So she turns inwards to parent herself. But the problem is the child is
a child herself. So how does she parent herself. She tries to find a
solution to her anxiety, say its losing weight, she trusts that diet and
exercise are her only solutions for all the anxiety she has, so she
loses weight every time she encounters anxiety, rather than turn to her
parents for comfort. In my case I wash my hands, count numbers avoid
certain things. In this way she develops a method to comfort herself,
which she relies on every time she is anxious. Thin is the answer for
everything. Nobody could reach her. She can trust no one. She trusts her
infant rational to protect her. The way to help her is to send her back
to that dependent state when she was a child, the therapist can do that,
to teach her how to trust, that it is a safe world. The anorexic cannot
trust and that is why she has developed this problem. The therapist must
send her back home to Mother, usually she is under twenty-one in the
book, and she must learn how to trust mother and mother must learn how
to parent her. They must save her from her obsessions and compulsions.
They must replace it with parental attachments, and detach her from
turning inwards.
Anorexia is usually a lifelong problem, with very little recovery. Now I
know when people get a sudden religious conversion to Jesus, why the
prison of anxiety can fall away, it's because the unconditional love
received, might heal them from the emptiness that some people carry
around from childhood. This is my opinion. The thought comes to me
sometimes.
The bottom line, one needs to learn to trust to overcome obsession
compulsions, and if you did not learn it from your parents, you'd have
to find some one to do it, like a parent. a therapists or some one with
that position so you can learn to turn from inward self comfort like
washing hands, etc, to attaching in a healthful way to a parent figure.
This person will teach you when to stop and what is appropriate.
You are doing a good service to all OCD sufferers in your account of
your disease, and one day you will see how many people your story has
helped. You do not see it now, but like Samuel Johnson, your countryman,
who could not see his contribution because of the smoke of battle, one
day you will, see that your efforts counted for something and how many
people you have helped, and that your life was for a great purpose, far
beyond your comprehension. Please, let that life unfold, and trust it is
for good. All good.
Sincerely, Annette
Dear Christine,
I am sorry to hear that your son might be suffering from orthorexia
nervosa. Sometimes I also have a rigid eating health obsession, but I
did not know that could be a disorder, but I see this pattern in other
people I know. I am beginning to see that I have become a loner and
turning inwards when I am under stress. I am going to change this
pattern and try to reach out to others and share my life with them. It
seems difficult to get good timely psychiatric care in the UK., In
Boston where I was previously, they gave free help to those who could
not afford it. It was on a weekly basis usually. And lots of research is
done in Boston on OCD and Tourette Syndrome. Since coming to Central
Florida, it's harder for me to receive help. But I realize that even the
institutions have their limits, too. And in the end, situations in life
can provide therapy if I look for them.
Does your arm hurt still? You are brave courageous soul to suffer on so
many levels and still keep going. November is a dark month in the
evenings, even in Florida. And with good people like you, you help the
sun shine on a mental level for me Seasonal affective disorder affects
us both. I bought some day spectrum lights a few years ago for use in
Boston. I stayed away from processed sugar to keep my mood stable.
Perhaps you could send me some tips on how you cope.
Anorexia nervosa is something that I have been studying now for the past
few weeks, because it offers me the opportunity to see OCD objectively,
because I do not direct suffer from its effects, but I have the same
inner mental workings. To me, its OCD visible. The person does not see
themselves as they are or as others see them, but have unrealistic
images of what they should be. In the end anorexia takes over every
thing. OCD is invisible in its ravages to the outside world and we hide
it well, but it does the same thing. The anorexic wants to take control
of her or his life, and in society that does not care, she or he feels
some level of accomplishment in taking control her or his health, when
everything else was out of control. It was something I could be proud
of. In Anatomy of Anorexia, Mr Levenkron said that anorexic has zero
identity. They do not feel they have identity, so when they find dieting
works, they bond with it as though their life depends on it. To lose it,
means they have nothing - that's how they feel. So they cling to it at
all price. The therapist must make himself more attractive to the
anorexic to pull him from going in to himself and show him how to trust
another. The anorexic has taken his own counsel and listens to no
others. In the end, it destroys because the counsel which is self
comforting is immature and childish. This is what the book says and
applies to anorexic and how they think.
Love, Annette.
Dear Christine,
How are you and your husband and son? I am feeling better. I think of
you often knowing we are fighting the same battles, and learning from
your writings. When I experience OCD, the experience is subjective, so
it lacks objectivity, but when I read another sufferer's account then I
see it more clearly, and things fall into perspective.
When Pope died John Paul 11 this year, I was going on a far different
road. For years I was on the road of despair, and knew no way out, no
matter what I tried. Around the time of his death, the Terri Schiavo
story was big. It was taking place in Florida where I live. Being a
Catholic, I was strongly aware that life which is sacred was being taken
from a helpless woman who could not speak for herself, by a husband who
was sleeping with another woman who had given him two children. I saw
how her mother's unconditional love was trying to save her and was
rebuffed at every turn. It broke my heart to see Mary Schiavo run
desperately around knocking on every door to save her daughter and the
coldness and cruelty of every heart that shut the doors to her pleas. In
other areas, I saw the cruelty of the legal system in Florida for so
many people. I saw innocent children, and people who had erred once,
forever punished by the legal system, the law was becoming heartless
towards all, especially the onetime offender.
Filled with despair about my own mental suffering, and the heartlessness
around me, I was depressed. After about three and a half years of
unending depression, with no hope for relief, I almost started to think
that it would only get worse, though I wasn't going to give up trying to
get better. When John Paul 11 died, I felt this will be the lowest point
as the lights went out in the papal apartments. Who will fill the void
in this dark world. I thought of all the great souls that had carried
the light before and made the world a better place in the last twenty
five years before. There was Mother Teresa who taught compassion for the
poor, Princess Diana who highlighted the sufferings of the world’s poor,
Sister Lucy of Fatima who had revealed to us the Fatima message, she had
died about three weeks before. And now the pope who was concerned for
all, he was gone. All the lights had gone out in the world, I thought.
But, just as it became darkest for me, I started to see the light. Pope
John Paul 11 was being highlighted on CNN and the news media everywhere.
People were celebrating a great life of someone who had brought light to
everywhere on earth he could go to. I decided to see what this light was
that he had spent his entire life for. What gave him so much hope while
I was in such despair? I looked at his photos. Why was he smiling so
radiantly when his life was far worse than mine? What was his secret? As
I passed his picture on my kitchen table, I'll ask him why he was
smiling in such a miserable dark world. And I knew it was that he had
found Christ.
Then I thought I would study this man's life to see why he was who he
was. This is what I found out. He was born in Poland on May 18, 1920,
(there was an eclipse on the day he was born and in the prophecy of
Malachi, he was foretold to be the Pope of the eclipse of the sun.
Incidentally the day he was buried their was another solar eclipse in
America where I live). His mother died when he was a child. So he took
the Virgin Mary as his mother. His older brother died shortly after, and
his Father died after. So he was all in his family that remained. The
Nazi's invaded Poland and enslaved the people. Karol Wojtyla, his name
before he became pope, was forced to go to the mines and dig for the
Nazis and prevented from practicing his religion. He saw his Jewish
friends killed. It was a dark time for Poland, and a dark time for
Wojtyla. But he managed to hold onto his faith, and to form a theatrical
group to perform the Polish classic plays. He went to an underground
seminary where he was ordained a priest. He was ran over by a Nazi tank,
and still survived. He made a special devotion to Our Lady of
Czechtowska, Queen of Poland. He was strong and kept the flames of
Christ's hope alive in his heart and those who tread the same path who
met him when Poland was oppressed by the Nazis, and the rest of the
world had forgotten them. There in the dark cold mines, enslaved by the
Nazis, a light burned within him. He could have despaired, his family
was all dead, he could not practice his religion openly, he had nothing
but his faith and his theatrical group which was illegal. And yet he saw
the demise of the Nazis.
The Communist soon came in and took over Poland. He could not practice
his religion. He lived in a dark oppressive environment almost all his
life, but did he know when he was in the was in the dark enslavement of
those days when the Communists oppressed his nation and he could not
freely practice his religion, that he would be the one responsible for
the toppling of Communism. I believe that God used this man to topple
Communism. The point of the story, is that Poland which is one of the
most oppressed nation in Europe was the vehicle for the down fall of
communism. Just so, we who are the most oppressed by OCD will be most
instrumental in showing mankind the liberation of the mind, we are
enslaved all our lives in the darkness of our minds. Our oppression is
similar, and we often feel hopeless, but just before the dawn, it's
always darkest. We the slaves of OCD, can rise up and say with the Pope,
"Do not be afraid." The one thing that all enslavement have in common is
'fear'. Once we stop fearing the enemy it loses its power over us. Its
precisely that we fear death that we get enslaved, because the enemy can
threaten us with death or ourselves and those we love if we do not give
in to its demands, and we go along to get some peace, but its not a true
peace, and the enemy comes back asking for more. He is insatiable. Whole
nations are enslaved.
OCD works the same way. Where there is fear the fuel for OCD is present.
But I have learned to turn around bravely and face my fears and often
what I see my fears melt away, and I do not die but I feel more alive.
The I understood more clearly the resurrection of Christ, He had gone
through the darkest moment of his life, death on a cross, and when it
all seemed over, Christianity scored its greatest victory - Christ
overcame death for all mankind. Man need not fear death anymore, for
even though his body will die, the true Christian will not die. That
explains why Jesus' death and resurrection was the beginning of the
largest religion ever. That explains why John Paul seemed more alive now
than when he was dead. When a Christian dies, his life begins, not all
people but people who died in Christ. And that is why death had lost its
sting. Study history, when the good die their lives seems to begin
instead of end, and when we stop fearing death, then we begin to live.
Christ brought victory over death. That is why the Pope was smiling in
his pictures.
Ever since that realization, I seldom get depressed and I know that I
need not fear anything on this earth and that I have been given the
tools to fight in this warfare. I know that Christ would take care of me
and that there is no burden on earth that I cannot bear, for either he
will give me the strength or he would carry me, and if I am his basket
case I am going to find peace there. I am fine with that. Looking back
in my life I saw this to be true that He has never left me alone. So,
though I still fall, I have to remind myself not to fear and turn around
and look at my fears. It's an ongoing battle, but when I face my fears I
get the victory. And that is why I feel better these days.
Christine, the fear of death is the problem. I think of you much, and I
feel I have never ever met anyone on earth similar to in mind than you,
That is why I feel so close to you. Goodbye, Christine.
Dear Christine,
I received both your letters and was very pleased to hear from you. How
are you? I hope that you are better and not bothered by migraine and
tension headaches. You write very well, in your letters and your
writings. Did it go well with your son at his appointment for benefits?
I hope so. I read your November blog and enjoyed reading it, as usual.
The noise can drive people crazy, and sometimes when the man upstairs
apartment plays his loud crazy music, I put on my own music to mask his.
How about some recording of thunderstorm or ocean waves while you sleep
to relax you and mask the incessant noise. At first when I saw your
artwork on your website, I believe it was a scene in a field in
Glastonbury, I had to look several times to see if it was a photograph.
It is so well done, you are a talented artist, and I wonder why you are
always putting yourself down, since you are an excellent writer and your
crafts are excellent. We cannot be good judges of ourselves since saints
called themselves abject sinners and evil people tend to see themselves
as good. Strange, isn't it?
There are many good people in the world, I believe, and they all make up
points of light. My mother once said that there is evil the world but
there is more good. I take comfort from what she said. My point with
Mother Teresa, John Paul 11 and Diana is that they were world renowned
celebrity who stood for life and the poor. But I search my mind for
persons who could fill their shoes with such celebrity and goodness, and
is known worldwide. I think Benedict IV fits this. Perhaps you could
come up with some. I was browsing in the bookstore about two years ago,
when I came across a book, I am not even sure what the name was, and
there was a picture of a lady prematurely wrinkled, it seemed and not
too attractive, but she looked happy, and she said that all her life she
was miserable, but one day after many years, she woke up in the morning
and she was happy. She said that she stopped struggling with the way she
wanted things to be, and simply shifted to accepting things the way it
is and she was happy. The book might be called "The Way It Is." I didn't
buy the book, but I went home thinking about the seed she had planted in
my mind. And for about two years I've thought about it. OCD seems to
struggle with the way things are, we want it perfect, we want it lineal,
we want the world sterile, we want the world ideal and perfect for all
creatures, we want our unruly thoughts to behave, we want to make God in
our own image and likeness. We want to the world to be black and white.
We want safety, security and no risk, a guarantee for every thing. We
fear disorder, we fear the darkness within ourselves. But the world is
not so. It's many shades of grey, the rain and the waterfalls fall with
passion and care not about perfectionism.
When we love, as soon as we feel the excitement, we are terrified of the
dark shadows they cast. We fear we would lose those we love. Thus
whenever we love, misery follows. But, I've come to the conclusion that
the shadow is neutral and harmless, and that anything that is in light,
will cast a shadow. I have observed this in nature, and it seems to be
true in me also. I am not saying that all love is good or all light is
good, but whatever love or light that comes in our lives be it good or
bad, brings it shadow.
I am learning not to fear the shadow anymore, since I think its neutral
but to just accept it the way it is. I accept people for what they are,
the world for what it is. But the hardest thing to do is to accept
myself, my evil impulses, my disorderly thoughts, my craziness. I spend
lots of energy fighting and suppressing it, but I am trying to learn to
flow with the way things are, for the world was that way before I came
into it. My mind has its own laws. And it has nothing to do with my
will. I never act on my dark side that haunts me twenty-four hours a
day. It's just simply the dark side of me. It's just the way it is. It's
there, but I choose good. Finding out what is takes my whole life,
because my perceptions get in the way, but I try not to recreate the
world in my own image and likeness.
I will think about contributing to your website if it might help others,
and if you see a piece that might help others let me know, and you can
use it.
Your son is struggling with orthorexia you told me. It seems that we are
all doing the same battle, different expressions, but all fear based. we
are afraid to die, and our illness is an attempt to ward of death.
Maybe orthorexia is fear of death, and anorexia is fear of the loss of
love. We fear the loss of love, so anorectic people get on the treadmill
to hold on to love, and they cannot get off. If we lose love, we will be
nothing, we fear.
So we go around and around, we don't know how to let go.
I am not going to fear death anymore, because it feeds my disease. In
this journey of life, I don't know what lies around the corner, but I am
going to flow with it, and trust it.
Christine, be kind to yourself and keep up the good artwork and your
blog, I enjoy them both. Your life has been an inspiration to me and I
will re-read it again for there are many lessons to learn from your
account.
Love, Annette
Dear Christine,
How are you? I hope you all are feeling better after that bug.
I am sorry that things did not go so well as you hoped with the
therapist. I know you did your best to comply but it seems as though the
therapist was not so straightforward with you. I know you have been
waiting a long time for this opportunity. I can't understand why they
don't take you as a person in need of help. Why do you have to jump
through so many hoops before you get the help you need? Don't give up
however, I am sure there is something you can do so they can give you
CBT. I think it will be helpful.
I am glad that Kevin is getting out there and going out with his friend.
It's a good start and he may soon expand to other things.
I try my best to socialize with my neighbors and have gotten better at
it lately. My tendency is to be reclusive and to run from others, but I
force myself to talk to others and to greet others, especially at my
apartment complex. It makes them happy and I hopefully am a better
person because of it.
I have made a most important discovery about my condition. I feel my
problem has something to do with control. The more I try to control my
thoughts or external surroundings
the less control I have. I noticed this years ago, but did not have a
clue how to change this pattern. I notice the more I try to control
things around me, the less control I had. Gradually, I discovered it was
a word problem. My gift of words and my readiness to produce the right
word worked well in literature and in school but was a handicap in my
life. It actually got in the way and caused me terrible problems.
Sometimes, I think that was the problem with Samuel Johnson who wrote
the first English dictionary, (no disrespect to this great sage and
genius who contributed much to the world). He was a genius at writing
and at learning but in day to day living he was challenged. The more I
dictated to myself how each thing should proceed in my life, the worse
things got. Even the uneducated seem to do better than I in ordinary
things. Then I realized that I had to remain calm, silent and
disciplined. Even more so, I had to learn to trust God, to trust life
and to trust that things would work out without me being anxious. I had
to learn not to anticipate what will happen next. I am still learning
how to relax and let go. It's something that I work at all the time.
When I try to control I lose control. How is that? Aren't I trying to
take responsibility? Then I discovered that for things to work out I
simply let go. Each moment presented its own challenges and revealed its
own answers, all I had to do was dance with it. The old people say 'go
with the flow' or the seasoned person says 'roll with the punches'. It's
something I practice until I get right. So far it has worked on my OCD
better than anything else I have tried so far. I let go, I let God.
The harder I work at control the less I have. Let go, let God.
Christine, I know things will get better. There is much that can be done
for OCD. It's okay to make mistakes as you walk along the path, that's
how we learn. Don't forget to let the child in you come out. You
weren't born with OCD, and there is a part of you that is free. Let her
enjoy life.
Dear Christine,
How are you? I received your e-mail safely. I am sorry about the great
difficulty you have in obtaining CBT in the UK. The answer to most of
life's problems, though hard to practice is simple. We have to face our
fears and talk ourselves gently through it. This is what CBT is all
about, or almost all OCD therapy is all about. Except you have to carry
your own therapist within you, when there is no one available for you.
There is only one bridge to cross to overcome OCD. It's our fear of
death, and even worse the fear of death of those we love. And the only
way to cross it is accept that we can die and those we love can die, and
know we can be okay with that. When we accept our mortality and that
those we love can die, then we can begin to live our lives freely.
Acceptance of death is the main thing. That is what I mean by crossing
that bridge. Until then we can be held hostage by each passing fear that
blackmails us into OCD rituals, or make us hide in our homes in terror.
I have problems with eye contact. But interestingly enough, acceptance
is the solution also for eye contact for me. When I fight my shy nature,
I have more problems with eye contact. When I accept my fears and
shyness, I am more likely to act more comfortably with people. When I
try to be something I am not, the shy self trips me and causes me to
blink and develop a nervous tic. So I have learned to accept my shy
self. I also accept my broken self totally, my imperfect self also, and
the parts of me that I feel unacceptable. When I accept myself totally,
then I feel more relaxed with other people and I am more likely to be
amiable and gracious. I also like talking to young children because they
seem to be more close to God, after all they have just left Him, and are
not yet spoiled by the world, their unselfconsciousness, their freedom,
and they are not self aware as yet. They just express love without
restraint.
Princess Diana is one of my role models. I think she was just like us in
her shyness. She too looked at others with shyness. But she did what has
she had to do and loved others anyway. So I always follow her as an
example. And you know what, the public found Diana to be disarming and
lovable and charming. This is because she took her shy nature and loved
anyway and not many people could claim the hearts of others as Diana.
I read somewhere that autistic people were found under MRI to have
smaller amygdala. As you may already know, the amygdala is a part of the
brain found in the limbic system, where intense emotions and fear are
processed. They found in autistic children at the age of four the
amygdala is unusually large. But by thirteen it has shrunken to smaller
than the average size. They were observing that autistic people when
having eye contact the amygdala lit up, in normal subjects it did not.
Did this constant arousal of fear shrink the amygdala? Interestingly
enough, I found these studies published on the Internet.
Dear Christine,
How are you? I hope you are well. I received your e-mail a
couple days ago. I could tell you that OCD is not an easy
battle, as you yourself know. It has been a battle for me every
day of my life. But recently, I have had victories. And this
gives me hope and I feel there is hope for you, too. In OCD, I
believe, that you have to cross one bridge. SELFTALK. What do
I say to myself as I go through my day? What do I say to
motivate myself throughout the day? Everyday you are probably
in front of your computer putting input into the keyboard. You
program your computer to produce material and whatever you put
in you get out. If one does not know what one is doing you can
even get stuck on the computer and may even have to get outside
help to get things right again.
Well, your brain is an even more marvellous computer. What
commands are you putting in your brain. Your words are like
punching in the keyboard, where you give yourself the program.
Do you give yourself healthy self-talk or do you tell yourself
negative terrible fears all day long? If you engage in negative
self-talk your brain will respond like wise with chemicals
coursing through your body, a negative response brings cortisol
and adrenalin flooding your system and weakening your immune
system. A positive attitude and kind self-talk brings happiness
eventually. Whatever you put into your head even if it's
innocently done, if it's negative part of you, you will believe
it, and will act accordingly, even if it's false information.
You are in charge
of your ship, not your guilt, not your fear, not your mother,
not your anxiety. You have to be at the helm. They are your
crew, not your bosses. You have to tell them where to go. If
you leave the crew in charge and leave the helm, very soon
mutiny will happen. OCD will try to take over the ship. He
doesn't have guns or knives, but something more effective, your
worse fears......"you will die or somebody you love will die if
you don't do this (crazy command). Just do it and OCD will
leave you alone and you'll be okay. Death or peace?" So you
chose peace? But OCD lied to you, and now he's sitting at the
helm with his companions - anxiety, guilt, fear, telling you the
captain what to do. He knows exactly what you are afriad of and
he knows how to push your buttons.
When that happens to me I do self-talk. The obsession says,
"You know you have to wash those dishes again because I feel
there are germs on it and it will harm my son" So I take
charge, "But what I did was enough. I have done too much
washing in the past and it took so long. I don't believe there
are germs there." "But
if you ignore this you'll make someone sick and you'll be a bad
person.... and the voice goes on playing a horror scenario in
vivid colors.
Do you listen to
this voice?
No, you're in charge. I have listened to it a zillion times and
all I get is more sick. To get well, I hear it once and if
it's inappropriate I do healthy self-talk. I want to be well. I
washed it reasonably enough, and I am willing to take the risk.
I am not perfect but I am a good person. I am going on to the
next task. Maybe I'll think about this tonight if it's still
important and you go about the rest of your day. You shift to
the next important thing or you relax and do something
different. Later on when you come back to it, you see it for
what it is - trivial. And you feel stronger. Let your commands
be kind and firm to yourself. Talk to yourself with love and
compassion. Don't beat up on yourself. Life is still lived one
step at a time, one small self-talk at a time.
To close, you are the
computer programmer. Program well. You are the captain of you
ship. Stay at the helm. As it says in my course on anxiety, "You
are the lock, you are the key."
I hope you enjoy this spring, the flowers and nature that comes to
life.
Dear Christine,
I received you e-mail safely. How are you? I hope well. Reading
through your e-mail I come up against one theme over and over again.
You are always taking on the weight of the world on your shoulder, the
weight of your family, your son, the suffering animals, every life form
no matter how small. You go easily into the past or the future without
realizing how much you are burdening your mind. You cannot carry the
weight of the world on your shoulder. That's God's business. We have
to stay in our own business. What's our own business? The moment we
live in. When you wash dishes, you wash your dishes. But in OCD you
say that intrusive thoughts tells you you will harm others if you don't
do certain rituals or say certain things certain amount of times. The
immune system can handle many germs. Your problem is to do the dishes in
a commonsense way, and disregard the bad thoughts. You listen and
follow the compulsions and you'll never get better. Never. Our
ancestors have lived with all kinds of germs and have built up
resistance which they handed down to us. Our ancestors lived close to
the earth. Country people are some of the healthiest, hardiest people
you'd meet. Personlly, I'd rather suffer in reality rather than go
through the slavery of OCD again. I rather have real pain of diarrhoea
made by error than live a slave to OCD. And you know what, every time I
take risks to be average and imperfect, I don't get sick, I get better
and stronger. I get OCD thoughts often but I usually challenge them and
try to replace them with healthy habits.
To get back to what I am saying, we can't worry about the suffering of
the sheep in the countryside without doing something about it, or else
you'll soon become depressed. Let's say you went to the countryside to
have a good time, and you see some sheep in the cold suffering and
looking miserable, helpless without choice and you feel for them. That
might ruin your whole day. But, you're not God. You probably can't
solve that problem. But as one person, you could write some one who
could do something about it, like what you do with your petition on the
Internet, you can pray for the sheep. You can do work with an
organization that cares about cruelty to animals. I know you already do
these things. Set aside some time to do just that. Then after, shift
to something pleasant that you enjoy like nature or art. Don't stay in
that sad zone too long or else it will drag you down. When you are sad,
just do purposeful activity to alleviate the animal's plight, or else
the energy you're expending worrying will drag you down. If you are
worrying beyond a specified worry time you are doing something wrong.
Worry never solves anything.
The only thing to worry about is what's at hand. Pick up that socks,
just once, no ritual. You are strong. You will not die. Put one foot
in front of the next. Resist the urge to clean. If you are worrying
about the past or the future, you are not living your life now. I am so
small that I deliberately break most things up into the smallest unit
before I tackle it. I do one small thing at a time and I learn to look
for the joy in it. When I fall, I get up and try something small
again, and doing small things I make my way in this world. Thank God,
life flows in moments, that way I can do small things and I rest
whenever I need. And, I feel I get victory just taking small steps.
Stop worrying about things beyond your control, give a little comfort
here, a kind smile there, a small prayer here, a kind act there, a
volunteer project there as you do on the Internet, little kind acts
along the way, and let God do the rest.
These are just suggestions that has helped me, please use only what you
like.
Feel free to use anything that I write to you for publication or
whatever you feel you need it for. Like you I want to help fellow
sufferers.
Dear Christine,
I am very careful what words I put into my head . What ever we say to
ourselves we carry on as though it's true, even if it's not.
The first time I saw the Wizard of Oz, I did not really think much
about it, just a lot of characters and costumed figures dancing. But
later on I came to see there was a deep moral to the story and many
lessons hidden in it. It has become the story of psychiatry. Did you
see the movie? It starts off with Dorothy who lives in Kansas. A
tornado transports her to the land of Oz. She meets the good witch,
Glenda who gives her a pair of red slippers. All Dorothy wants to do is
go home. So she sets out on a journey to find the way home. Like
people with OCD who has lost their way, she's trying to came back home.
She meets the scarecrow, who wants a brain. He'll be happy if he only
has a brain. He goes on to describe all the great feats he'll
accomplish if he only had a brain. When I was looking at the movie,
recently, I realized with all the big words he was using that he already
had a brain. She meets the tin man who wants a heart, but by the way
he related to others he also had a heart, but he did not know that. He
joins the journey. Then they meet the cowardly lion. Everybody knows
that the lion is the king of the forest. But this lion acts like a
scaredy-cat. He too joins the journey to find his goal. They are all
going to Oz to find the answers. The wizard of Oz, they are told, has
all the answers. They finally get to Oz.The wizard of Oz hides behind a
curtain and makes a big display of his power. Dorothy and the others
trembled at his booming voice and the magic effects he created. He
makes demands on them before he would give them what they want. But
towards the end Dorothy's dog, Todo, pulls the curtain aside to reveal
an impotent man who has no powers at all. The wizard is impotent and he
rules from lies. But before the story ends, he gives the scarecrow a
diploma and tells him with this paper he will be able to be as brainy as
he wants. He gave the scarecrow permission to be what he already
was. He gave the tin man a document showing him as a philanthropist,
allowing the tin man to express his love. But the love was there all
the time. He gave the lion courage by giving him a purple heart medal
and set him to rule Oz with the tin man and the scarecrow. But the lion
was already king of the jungle and had that power within him.
The wizard who was from earth set to return there
in a balloon with Dorothy, but a wind blew the balloon and Dorothy was
left in Oz much to her dismay. At the moment of despair, the good witch
appears to Dorothy and tells her that all she has to do to go home is
click the slippers and say I want to go home. But if it was so easy why
didn't you tell me before, Dorothy asked. The good witch Glenda simply
said, "You won't have believed me."
It was that simple. She could have left Oz at anytime without going the
long arduous journey if she had only believe she could.
Oz has come to represent for some the land of mental illness. We can
come back to health once we realize we have courage to fight our
terror, the heart to leave our shells and love others and allow
ourselves to be loved, and the brain to reach my objectives in spite of
the setbacks I have had in the past. Isn't that what OCD is all about
- inability to get your brain to work for you. I realized I had faced
all the problems of the four main characters big time. I am learning
courage, I am in charge of my emotions. I am learning about heart, I
learn to greet people whenever I see them and open myself to love. It's
a day to day practice. I am learning to accept my brain as it is, and
live a whole life with it. And like Dorothy I want to go home (to
health and my true self is my version of home}. And I get their by
believing I could do it. But the big lesson in this for me, was that
the powers of OCD and the fear of death is powerless over me. The
wizard of Oz was all threats and demands but when he was revealed he was
impotent. OCD is all threats and no substance.
We have all we need to live our lives. We must give ourselves
permission to do it now.
If you think about all your OCD problems and you don't dwell on the good
things of your life, you will make yourself miserable. You have a very
wonderful life but you don't see it, because you're focusing on the
negative. So your mind is doing exactly what you tell it to do - look
for the germs, the danger, the disease. You are not looking for the
good in the situation. You have a lot to be thankful for, at least a
thousand things and more, but you are always focusing on the problems,
so there is very little room left for joy in your life. Your faithful
brain, like a computer, has done everything you have programmed it to
do. Start being nice to yourself and thanking God for everything you
have. No complaints, just say only thank you for just one day and I
guarantee you that at the end of the day you will feel better.
Spring is coming up this month and I know that the country side will be
budding with flowers and trees will start to turn green, the birds will
be singing more, and the weather will get warmer. You have so much of
warm days to look forward to.
Self help for sufferers by
sufferers
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